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Psoriasis- Desperate!

Posted by hopenr @hopenr, Aug 18, 2025

I have had psoriasis for about a year. It started on my legs and is creeping up so that one tube of steroidal cream is good for about three applications and it is expensive! I use pine tar soap and I take vitamins D, K, Calcium, Magnesium and zinc. I do not eat gluten or dairy. I use clobetasol and tacrolimus. And....it just doesnt get better. I just had covid during which time it got way worse. I simply do not know what else to do so I am asking you all- who has had good luck on a biologic? I have been scared to try it cause I dont want to lower my immune strength but I am desperate. Can you let me now. Thank you!

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tisme | @tisme | 4 days ago

anyone use mometasone lotion?? for psoriasis of the scalp?? how do u do it with a head ( mostly ) full of hair, doc said the scalp /skin looks really dry , ( i did clean my scalp the other day with coconut oil .

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rashida | @rashida | 4 days ago
In reply to @njbay "@rashida It wasn't working and I have since switched to Bimzelx, but that hasn't been working..." + (show)
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@rashida It wasn't working and I have since switched to Bimzelx, but that hasn't been working yet either. I think Bimzelx is causing me some additional issues with my eyes and mouth as well. I keep getting blepharitis as well as psoriasis in and around my eyes and now I have a white tongue, too. I still have to get my tongue checked out but I've already had several treatments for the blepharitis and it goes away but then comes back a while after stopping treatment. I never had this on the other biologics. Actually, while taking Humira, I never had any of these issues, but I can't take that anymore unless I want to pay full price for it. I have to bring all this up with my rheumatologist at my next visit. The last time, she mentioned if Bimzelx didn't work, I could try Tremfya, however, I am skeptical of that working either. It targets the same protein as Skyrizi, which reversed all the clearing I had with Humira, plus my knee blew up while on it.

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@njbay I know the frustration of having to switch from something that worked for you to something that reverses all progress! I’ve been there!

I am so sorry Bimzelx has not been working for you. Every body reacts differently to medications so what works for one does nothing for another. Psoriasis treatment is trial and error until you hit the right one. Don’t give up - keep trying the different medications till you find the one that works for your body.

Are you being treated for psoriatic arthritis, or the psoriasis? Have you seen a dermatologist in addition to your rheumatologist?

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