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Pseudomonas … to treat or not ?

Posted by sharonednaramsey @sharonednaramsey, Jan 19 5:45pm

I was diagnosed with Pseudomonas and Bronchiestasis 2 years ago. At the time my dr treated me with 3 weeks of Levaquin without follow up sputum. It was diagnosed with a bronchoscopy. I now have a BE specialist and he says there’s no reason to treat it because it has colonized and will always be there. My cultures show heavy growth. Thoughts on treating or not treating ?.

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sharonednaramsey | @sharonednaramsey | Jan 25 10:59am
In reply to @robot "@sharonednaramsey Sometimes pseudomonas was medium & sometimes heavy - but always treated with levaquin. Change in..." + (show)
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@sharonednaramsey
Sometimes pseudomonas was medium & sometimes heavy - but always treated with levaquin. Change in mucus viscosity must have to do with brinsupri. As long as i use nebulizer sodium chloride & albuterol followed by aerobika using the monometer to watch the force of blowing out - i’m pretty sure my lungs get cleared each time. But, of course, bronchiectasis just fills them up again in 24 hrs & i repeat the process.

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@robot I use the aerobika but what’s the manometer

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sharonednaramsey | @sharonednaramsey | Jan 25 11:02am
In reply to @robot "@sharonednaramsey Sometimes pseudomonas was medium & sometimes heavy - but always treated with levaquin. Change in..." + (show)
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@sharonednaramsey
Sometimes pseudomonas was medium & sometimes heavy - but always treated with levaquin. Change in mucus viscosity must have to do with brinsupri. As long as i use nebulizer sodium chloride & albuterol followed by aerobika using the monometer to watch the force of blowing out - i’m pretty sure my lungs get cleared each time. But, of course, bronchiectasis just fills them up again in 24 hrs & i repeat the process.

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@robot I have an aerobika but am not familiar with a monometer

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robot | @robot | Jan 25 11:35am
In reply to @sharonednaramsey "@robot I use the aerobika but what’s the manometer" + (show)
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@robot I use the aerobika but what’s the manometer

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@sharonednaramsey its a small measuring device that fits on the aerobika to help visual how strong to blow into it. I learned about it from respiratory therapist at National Jewish Health. I had been blowing way too hard & using neck & throat muscles that were unnecessary to clear my lungs. Google aerobika with manometer to get a picture & description of it.

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notnancy88 | @notnancy88 | Jan 26 12:15pm

I am colonized with both that andStenotrophomonas maltophilia. SXT (trimethoprim-sulfamethoxazole) worked for me. I have only been treated when it has been on the upward side of moderate into heavy and I have symptoms. I have also been treated for pseudomonas AERUGINOSA. LEVOFLOXACIN has worked for me. Again I am only treated if I have symptoms and the sputum samples are moderate into heavy. I am colonized with both. They both like living in warm moist lungs. I send a sputum sample monthly to my doctors UT East Texas Tyler.

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