Pseudoexfoliation syndrome: Any experiences with treating it?

Posted by spinedisaster @spinedisaster, Feb 19, 2020

Looking for information from anyone who has this and is being/has been treated for it

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I was diagnosed maybe 20 years ago. Until 6 months ago I was fine snd being monitored. Last year a cataract started in my right eye and it's pressure peaked to 34 with 14 in the left. I took drops which worked but at 6 months I was at 22 on my right. We decided to do SLT laser surgery. Painless, took 15 minutes and can be repeated. 6 months later my right eye was at 16. Success of a cataract surgery depend on the strength of the zonules in my eye. There are new devices, lenses and techniques to help in a successful outcome. My ophthalmologist has done an untold number of pseudoexfoliation cataracts and claims he's had no unrecoverable outcomes...yet.

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I was diagnosed with this disorder in 2012 (left eye significant, right eye better), had 3 SLTs, cataract surgery both eyes, years of drops, a trabeculectomy in 2022. Since having the trab, I do not take drops, and iop has remained stable! Sought a second opinion at Johns Hopkins-Wilmer and surgery was recommended (by doc who had done the cataracts, known and respected by the Hopkins expert). Glad I had the trab but surgery was a bit more complicated than the cataract surgery.
There are two glaucoma research/support groups that I follow:
Glaucoma Foundation
Glaucoma Research Foundation
Happy to respond to any questions. Sally

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