prostate cancer treatment choices

Posted by Ronoir @ronoir, Jul 29, 2016

Hello everyone, new member looking for some experiences/advise on post radical prostatectomy treatment. my stats: Gleason 9, lymph nodes, seminal vesicle, margins, fat tissue cap all positive for cancer. 5 of 41 lymph nodes removed were positive also seminal vesicle was removed. p.s.a. 3 mos. post op .08, .10 .12 @.15 presently. Prostatectomy was part of protocol for immunotherapy vaccine clinical trial. Would appreciate any input you may have on radiation and/or hormone therapies. Thanks

This is Dglass reporting from Fla mayo country
I had proton beam therapy in Jax after I had a liver transplant . Liver transplant 2011 , proton beam summer
2013 . Subsequently my PSA shot up January 2016
Then I had cryo surgery in summer of 2016 a salvage
Job at mayo Rochester ……. subsequently my PSA
Went down and now has gone back up to 6.8 although
Down from 7.7 in February of 2017 .
My opinion is that radiation / radical surgery / hormone
Therapy …… all leaves you with a ratio of 75 to 98%
Of no cancer … but… it still leaves a very large percentage of us with additional surgery ,radiation,chemo
Or hormone therapy !!!! Best of luck keep plugging away at it

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@dglass4040

This is Dglass reporting from Fla mayo country
I had proton beam therapy in Jax after I had a liver transplant . Liver transplant 2011 , proton beam summer
2013 . Subsequently my PSA shot up January 2016
Then I had cryo surgery in summer of 2016 a salvage
Job at mayo Rochester ……. subsequently my PSA
Went down and now has gone back up to 6.8 although
Down from 7.7 in February of 2017 .
My opinion is that radiation / radical surgery / hormone
Therapy …… all leaves you with a ratio of 75 to 98%
Of no cancer … but… it still leaves a very large percentage of us with additional surgery ,radiation,chemo
Or hormone therapy !!!! Best of luck keep plugging away at it

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You have been through a lot after your transplant although you sound like you will keep on fighting to eradicate all of the cancer. Great attitude! I came off double bypass open heart surgery 2 years ago and recovered. I am now faced with the challenge of prostate cancer. My Gleason score is 7 and the Urologist gave me a choice of surgery or radiation. I recently met with a Radiologist/Oncologist and he mapped out the treatment options to me. He knows I ruled out surgery so he advised to take hormone therapy coupled with radiation. The hormone shot was to last 6 months and within that time I would under go radiation treatment. The side effect could range from no Libido and no testosterone with the hormone shot. I opted for straight radiation which will consist of 28 treatments over 5.3 weeks. I start June 26th.

All the Best to you!

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Would like to talk with santi in regards to his treatment as I have been through the same.I am experiencing other symtoms from radiation treatment and they want me to go to other treatment but refused. can he email me please. Thanks gord

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I just completed 28 rounds of radiation therapy on 8/21. I have my PSA test sceduled for 9/26. My radiation/onclologist is shooting for a .5 – I was diagnosed last March with a Gleason score of 7 and the cancer is localized to the prostate gland. Previously my PSA was 4.7 …. I am hoping for the best. As a side note I would insist to your treating oncologist to have the SPaceOAR inserted prior to radiation as a added barrier of protection to your rectum. Good Luck!

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Thanks. Your answer is very helpful.
Ray

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It seems most people are opting for radiation therapy. I have recently been diagnosed with Prostate Cancer. Gleason Score 7. After reading a 600 page book on the subject by Dr. Patrick Walsh, I decided I just wanted my prostate removed. I am 63 years old and not overweight. I was fortunate to have a friend who had a similar experience and he put me in touch with Dr. Ferrigni at Mayo Phoenix. I am scheduled to have a robotic surgery procedure on November 22. So many choices and options. I hope I’ve made the right choice.

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Hello @markbenson, and welcome to Connect. I’m sorry to hear about your diagnosis. I encourage you to watch the live Video Q&A with Dr. Mitchell Humphreys about prostate cancer, which will take place tomorrow, Monday Sept. 25th at 5pm. You can participate in the Video Q&A right here on Connect; feel free to post your question before or during the presentation. You can view details and sign-up here:
https://connect.mayoclinic.org/webinar/video-qa-about-prostate-cancer/.
I’d also like to introduce you to some members talking about prostate cancer on Connect. Please meet @donnelson @flor @BuckyFestoon @giddyup1 @morris @rinron @BuckyFestoon @ronoir.
And, you may wish to read this past discussion, https://connect.mayoclinic.org/discussion/prostate-cancer/, where members have also shared their experiences with prostate cancer and removal of prostate.

@markbenson, may I ask if you would share why you chose to have your prostate removed rather than undergo radiation therapy?

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@kanaazpereira

Hello @markbenson, and welcome to Connect. I’m sorry to hear about your diagnosis. I encourage you to watch the live Video Q&A with Dr. Mitchell Humphreys about prostate cancer, which will take place tomorrow, Monday Sept. 25th at 5pm. You can participate in the Video Q&A right here on Connect; feel free to post your question before or during the presentation. You can view details and sign-up here:
https://connect.mayoclinic.org/webinar/video-qa-about-prostate-cancer/.
I’d also like to introduce you to some members talking about prostate cancer on Connect. Please meet @donnelson @flor @BuckyFestoon @giddyup1 @morris @rinron @BuckyFestoon @ronoir.
And, you may wish to read this past discussion, https://connect.mayoclinic.org/discussion/prostate-cancer/, where members have also shared their experiences with prostate cancer and removal of prostate.

@markbenson, may I ask if you would share why you chose to have your prostate removed rather than undergo radiation therapy?

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I decided on surgery because I have seen so many friends and family suffer from radiation therapy and it often was not effective. I would rather have surgery than deal with chemo

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Does anyone know of someone that has had prostrate cancer aggressive one at gleason score 9 that was confined to prostrate that has taken both brachytherapy the seed implants as well as external beam radiation about 6 weeks. I can not find anyone to talk to about this as I can not find anyone that went through both. Does anyone no of someone that I can connect with? Thanks Gordon

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Anybody having anything good to say about the options

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@krv123

Anybody having anything good to say about the options

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Hi @krv123, welcome to Connect.
I moved your message to an existing discussion about prostate cancer treatment options. Click VIEW & REPLY in the email notice to read through the discussion and meet members and the choices they made. You may also be interested in reviewing and joining in these discussions
– Prostate cancer treated with Leuprolide https://connect.mayoclinic.org/discussion/prostate-ancer-treated-with-leuprolide/
– Why did you choose brachytherapy for prostate cancer https://connect.mayoclinic.org/discussion/why-did-you-choose-brachytherapy-for-prostate-cancer/
– Video Q&A about Prostate Cancer https://connect.mayoclinic.org/webinar/video-qa-about-prostate-cancer/
– Prostate cancer treatment: stereotactic body radiation therapy https://connect.mayoclinic.org/discussion/prostate-cancer-treatment/

Krv123, what treatment options are you considering?

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@kanaazpereira

Hello @markbenson, and welcome to Connect. I’m sorry to hear about your diagnosis. I encourage you to watch the live Video Q&A with Dr. Mitchell Humphreys about prostate cancer, which will take place tomorrow, Monday Sept. 25th at 5pm. You can participate in the Video Q&A right here on Connect; feel free to post your question before or during the presentation. You can view details and sign-up here:
https://connect.mayoclinic.org/webinar/video-qa-about-prostate-cancer/.
I’d also like to introduce you to some members talking about prostate cancer on Connect. Please meet @donnelson @flor @BuckyFestoon @giddyup1 @morris @rinron @BuckyFestoon @ronoir.
And, you may wish to read this past discussion, https://connect.mayoclinic.org/discussion/prostate-cancer/, where members have also shared their experiences with prostate cancer and removal of prostate.

@markbenson, may I ask if you would share why you chose to have your prostate removed rather than undergo radiation therapy?

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Hi @markbenson
It’s been a while since we heard from you. How are you?

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Looking for anyone who has or has information regarding small cell prostate cancer as I do. Thanks

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Hello @dlc2cg5. Welcome to the group. You will notice that I moved your search on prostate cancer to a group discussion already taking place. I think you will find helpful information within this thread. Please feel free to ask questions to members by using the reply button. Directly above your post is a post from our community director, Colleen. You may be interested in viewing the Video Q&A.

How long has it been since you were diagnosed?

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@jamienolson

Hello @dlc2cg5. Welcome to the group. You will notice that I moved your search on prostate cancer to a group discussion already taking place. I think you will find helpful information within this thread. Please feel free to ask questions to members by using the reply button. Directly above your post is a post from our community director, Colleen. You may be interested in viewing the Video Q&A.

How long has it been since you were diagnosed?

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I got the good news about 6 weeks ago and two go rounds of chemo now.

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