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PROMISE Study: Registry of PCa Genetics and Outcomes
Many of us on MCC have joined this important study (not the same as Decipher testing), and hope you will consider doing so.
PROMISE is a registry of prostate cancer patients participating in a research study to learn how genetic differences can affect patient outcomes. In the fight against prostate cancer, your DNA may be the most powerful tool. Participation is free, registration is done online and a saliva collection kit is sent to you. You enclose a sample, return it by mail. You’ll get information, tailored to your DNA, to better understand potential treatment options and genetic risk.
Here is a link to learn more about the study and why hereditary cancer gene testing is important to you individually, and to the future treatment of Prostate Cancer. https://www.prostatecancerpromise.org/
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Here is a link to the NIH page for the "Promise" clinical trial. It has both phone and email contact information and would likely be a good resource for answers to your questions. https://www.clinicaltrials.gov/study/NCT04995198
Bill
There is a check box that you checked to say you want your doctor involved. You must have checked it. Go back in fresh and do not check that box.
You did go to
Prostatecancerpromise.org
There is no such box to check or uncheck. I specified that I had had a tissue biopsy. Provider information is required. Maybe they have changed it?
Thanks. It says the same thing. "PROMISE Registry staff will request medical records from the participant's cancer care provider(s) for the purpose of obtaining clinical data."
That could be the case *hmmm. We did this test for my husband maybe 2 mos ago (?) , I forgot exact date and there was still an option of not involving a doctor.
Ok, so I think we have been conflating two different questions about medical providers and Promise. There is during registration the option not to share results with your provider. But there's no option not to provide medical providers' information during registration so that Promise can obtain the medical records it wants from that provider. "If you qualify for our study, we’ll need your provider’s information in order to request and receive your medical records as part of your participation in the Promise study."
You don’t want a tissue biopsy. You want the normal way they do it with a spit tube.
Jeff,
The tissue biopsy question is in response to how you confirmed prostate cancer in order to qualify for the study.
The spit tube is how the DNA would be collected.
Two different things.
I think you’ve answered the question finally. It’s been a long time since I used that promise study. You just want to make sure you don’t check the box to have your provider involved. Forgot about having to give the information at the end, makes sense.
That sounds like 23 and me not a cancer genetic test.