Prolia treatment for osteoporosis

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

Good evening. I wanted to make sure that you all had this information. Connect has a new group: COVID-19. The information is timely and reputable. There are some amazing exchanges of things to do to fill the hours, and the medical issues are well covered. Here is the link.
https://connect.mayoclinic.org/group/covid-19/
May you be safe and protected from inner and outer harm.
Chris

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@jaleen

I appreciate your response and that of others in the group about the efficacy of Forteo and Prolia, but I am disappointed that no one mention how much improvement (% according to a dexa-scan) they have made. I have 3 friends who had the 2-year treatment with Forteo. Results were 0%, 2% and 5% improvement. I don't happen to think that small amount of improvement is worth the risks involved with Forteo and the user reviews I've read are not at all reassuring as some reported horrendous pain and disability after starting the treatment. About Prolia, same thing – small improvement (2 %) that hardly compensates for the risks involved. A doctor in Canada even told a traveling companion of mine  - "Don't you DARE go on Prolia – it's very hard on the system."

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@jaleen I had 6% improvement in my hip and 11% in my spine with Prolia after a little over one year. Apparently reason for big difference is one type of bone is trabecular and other is cortical. According to the endocrinologist, that was an excellent result.

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@sue225

@jaleen I had 6% improvement in my hip and 11% in my spine with Prolia after a little over one year. Apparently reason for big difference is one type of bone is trabecular and other is cortical. According to the endocrinologist, that was an excellent result.

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Wonderful news. Was that after 2 injections for the 1 year ? What else were you doing along with the Prolia….type of supplements. Please advise what your endocrinologist directed you to do. I'm about to get my 3rd prolia in April 2020.

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@susan30

Wonderful news. Was that after 2 injections for the 1 year ? What else were you doing along with the Prolia….type of supplements. Please advise what your endocrinologist directed you to do. I'm about to get my 3rd prolia in April 2020.

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@jaleen My endocrinologist told me to take 2000i.u. of Vitamin D per day and to try to get my daily calcium requirements from food (I know I don't so have started to take small amounts of calcium supplements). She also recommended exercise ( failing in that regard). I should point out that I am now 65, and had not had any fractures prior to starting medication and I believe my numbers were a little worse than yours. And, yes, that improvement was after two injections.

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@sue225 , good morning and thank you for sharing your report and recommendations. Keep them coming. We are amassing valuable personal information.
May you have joy today.
Chris

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@artscaping I wish you the same (challenging under the present circumstances). Will do. In June/July, I return for another follow up bone density (if the world has gone back to normal). At that time, I need to make a decision about a 4th injection or whether to stop and get an infusion of Reclast or stop and do nothing. I like the ease of the Prolia injection and clearly it is effective in my case but I have had gastrointestinal side effects that I am fairly certain are related to Prolia. I do know that discontinuing Prolia without a backup drug puts you at risk for rebound fractures.
I dont want to discourage others from trying the drug because we are all different and there are many people who have no problems with Prolia. I did write in another post that my endocrinologist told me there are 650 patients on Prolia that are part of this large (urban) osteoporosis clinic.
Stay healthy. #StayHome

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@lexusgs300

Mabel343… I so agree with you not to cave in to the pressure and start the shots & drugs…Yes do your research!!! Just visit Osteostrong
and see the scientific research done!. Also you can find locations nearest to you.

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I felt that my doc was really pushing Prolia. I politely said, "No thank you." I think some docs use scare tactics with their osteo patients. Just my 2 cents.

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I feel the same way. The scare tactics bother me. The dr I saw this week seemed very surprised that I haven't had any broken bones except for a thumb back in the 60's! And….I took 2 really bad falls in the past 5 years that only gave me some bad bruises but no broken bones, If I didn't need neck surgery, I wouldn't even bother going to the doctor for my osteoporosis….

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@billie3

I felt that my doc was really pushing Prolia. I politely said, "No thank you." I think some docs use scare tactics with their osteo patients. Just my 2 cents.

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@lexusgs300 my endocrinologist did use scare tactics. She told me about a patient (a high-powered executive, she said) who broke her hip and whose life changed dramatically and was still in a wheel chair a year later. She also said, "she was getting very worried about me". But, to be perfectly honest, I was getting very worried about me too when I saw a further 13%! drop in bone density over an 18 mo. period. (on top of what was already gone). What's needed are better medications with fewer serious adverse reactions/side effects.

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When my endocrinologist asked about my past meds/drugs….she was actually surprised that my numbers weren't worse than they are, although she said I'm 'severe osteoporatic' already. I wish doctors were more cautious and careful about dispensing drugs that they KNOW will cause serious bone issues later in life!!! But they only seem to care about treating symptoms at the time and no worries about what problems lay down the road. That's unethical to me!
Looking back now does no good, but it sure will make me ask questions going forward….and do more research for natural ways to deal with issues.

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@sue225

@lexusgs300 my endocrinologist did use scare tactics. She told me about a patient (a high-powered executive, she said) who broke her hip and whose life changed dramatically and was still in a wheel chair a year later. She also said, "she was getting very worried about me". But, to be perfectly honest, I was getting very worried about me too when I saw a further 13%! drop in bone density over an 18 mo. period. (on top of what was already gone). What's needed are better medications with fewer serious adverse reactions/side effects.

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@lexusgs300 Maybe I am naive, but I think if you have a good doctor who is part of a reputable hospital's staff, they are not making money by prescribing more drugs, they actually do have your best interest at heart.
The endocrinologist I saw for my osteoporosis wants me to get on something but I told her I would not until after April. She is the director of the bone density department of Mass General Hospital and is quite sure the cause of my osteoporosis is prednisone which is part of my immunotherapy, I am a liver transplant recipient.
I did have a minimally displaced hip fracture in the summer which is what led me to ask my PCP if I should have a DEXA scan. I am due for an MRI in April to make sure the liver cancer I had did no metastasize. Until I get the results of that I will not start a drug for osteoporosis.
I have another endocrinologist also who I see for hypothyroidism and diabetes so I intend to get his opinion also.
JK

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@ritafarmer

I have been taking Prolia for two years, and i have not had anh side effects. Much better than the IV Reclast that i was taking before.

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@ritafarmer Rita, are you able to share what side effects you had with Reclast? I am seriously considering discontinuing Prolia, and if I do, my doctor wants me to have a Reclast infusion. I am unhappy on Prolia but the potential lengthy list of side effects from Reclast scare me. Would be really interested to hear about your experience (realizing that every body reacts differently).

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