I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you
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I HAVE BEEN HAVING PROLIA INJECTIONS FOR 2&1/2 YEARS WITH NO SIDE EFFECTS & ITS WORKING FOR ME.
@quiteachiver75 oh, you are so lucky to be side-effect free. If I could/can figure out a way to stay on Prolia I would. It definitely has given me very good results.
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Is Prolia the same as prolozone? I have done some research and found prolozone to work but have not tried it or discussed it with my doctor. firstname.lastname@example.org
No. Seems to be used for arthritis. Not related to Prolia also called denosumab. It is a biologic or monoclonal antibody.
I am currently on my 3rd year of Prolia. I have NO side effects. I ended up switching doctors after approximately 15 years because of insurance problems/non reimbursements. I was ‘freaked’ out of my comfort zone and in the middle of treatment. I saw a new endocrinologist who agreed with the treatment as I have Systemic Mastocytosis and have had multiple fractures as well. I will continue on Prolia this year (June/May injections). See the endocrinologist and have my 1st DEXA scan after the start of Prolia. We may return to the 2 year Forteo as I had incredible results from that several years ago. I would highly recommend Prolia if needed.
Thank you for your posts. I am about to get my first Prolia shot and after reading some of the comments from others I was getting more and more afraid. Your posts have helped me decide its worth a try. I am almost 70 years old, have fibromyalgia and am on synthroid because I had Graves Disease but other than that I feel great :-).
Hello @proloaconcern, welcome to Connect. It is good to hear that reading others' experience here on Connect has helped alleviate some of your fears and helped you decide to try the treatment. As which each medication, everyone experiences them a bit differently.
@proloaconcern, is that photo your current view? If so, count me as jealous as I look outside to below zero windchills here in Minnesota.
Hi Justin: I'm really glad I found this group.
I have had 2 shots of Prolia and will NEVER take another. It is a terrible drug! I have pain in my legs, feel generally crummy and old, my finger joints are now permanently swollen, it has raised my blood pressure and I have lost about 1/4 to 1/3 of my hair! Prior to starting this drug, I was statistically in the top 5% of healthy Americans! Do lots of research yourself on the drug – do NOT believe what the doctors tell you. Check out all of the osteoporosis sites for information. I will take only calcium and ergocalciferol and exercise. Have your doctor calculate your risks of breaking a hip or bones in the next 10 years. My T score is -4.7 and the risks are like 28% and 38% of a broken bone in the next 10 years. I will take that risk rather than live with the results of these drugs. As you probably know, they all contain chemotherapy drugs and Prolia has a lot so consequently the results I got. It is used to treat bone cancer.
Good luck and be your own advocate – do not trust and doctors! K
So sorry you've had severe reaction to Prolia shots. Researching and reading reviews from those who are presently or previously taken osteoporosis drugs I highly recommend for anyone considering taking them. One of the major issues I've had with the shots is that it is a long-lasting drug in your system, so if you do have concerning side-effects, it is going to take awhile before it is out of your system again. Good luck to you and hope things will get better for you soon.
@cherriann That is exactly why I am hesitant to have a Reclast infusion – it lasts so long. It is what has been recommended but I told my endo that I need to make a decision on which drug I am comfortable taking.
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