1. < Osteoporosis & Bone Health

Prolia treatment for osteoporosis: What is your experience?

Posted by Veruska @veriska, Mar 7, 2017

I received the results from my bone test and they have recommended I start Prolia. I have read the side effects and I am concerned. Has anyone use this drug and if so what side effects have you experienced. Thank you

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sue225 | @sue225 | Feb 10, 2020
In reply to @sue225 "@jmweissler eventhough I am seriously considering not having anymore Prolia injections due to side effects, I..." + (show)
@sue225

@jmweissler eventhough I am seriously considering not having anymore Prolia injections due to side effects, I do not regret giving it a go. My fear of fractures is still stronger than my fear of the drugs. I have a feeling Forteo will be the next one for me. I like the fact that its daily so if the side effects are intolerable you can just stop.

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@contentandwell I meant to reply to you!

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Oh My Aching Back & Neck | @jmweissler | Feb 10, 2020
In reply to @sue225 "@jmweissler eventhough I am seriously considering not having anymore Prolia injections due to side effects, I..." + (show)
@sue225

@jmweissler eventhough I am seriously considering not having anymore Prolia injections due to side effects, I do not regret giving it a go. My fear of fractures is still stronger than my fear of the drugs. I have a feeling Forteo will be the next one for me. I like the fact that its daily so if the side effects are intolerable you can just stop.

Jump to this post

My understanding is that Prolia is the “latest & greatest”. I have been on Forteo (daily injections into abdomen), Reclast (~1hr infusion once a year) & now Prolia (injection into abdomen 2x a year). It’s impossible for me to tell if I have pain side effects due to all my “normal” pain. I have NOT had any bone cancer related issues. BTW - since osteoporosis was discovered in 2008, my score has gone from -3.1 to -4.4. None of these treatments are a miracle drug but I will continue to try every Medically approved treatment available.

If anyone believes it is better to have a fracture then to take a medication that will hopefully keep you from fracturing a bone bc of a minimal risk of side effects, my opinion is that U really need to sit down and think about it. Fractures can lead to surgery, which may lead to infection & pain. That’s a certainty. Hope this helps in any way & that I did not offend anyone. 🙂

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3 replies
Oh My Aching Back & Neck | @jmweissler | Feb 10, 2020
In reply to @contentandwell "@jmweissler Sounds like you have been battling osteoporosis for quite a while now. What treatments have..." + (show)
@contentandwell

@jmweissler Sounds like you have been battling osteoporosis for quite a while now. What treatments have you been on prior to Prolia, and did you have any disagreeable side-effects? There are many here, myself included, who are struggling with the question of what to do. I am 95% certain that I will go one of these drugs but I need to do more research to decide which. My endo suggested Reclast. I won't do anything until after April because I have a couple of other things I want out of the way first.
I, and I am sure many others, would really love to hear side-effects and also what if any positive effects you got from the various treatments. Osteoporosis is so much more threatening than I ever realized before. ☹️
JK

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Hi JK. Please see my reply to @sue225 below. 🙂

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debbiem | @debbiem | Feb 10, 2020
In reply to @jmweissler "My understanding is that Prolia is the “latest & greatest”. I have been on Forteo (daily..." + (show)
@jmweissler

My understanding is that Prolia is the “latest & greatest”. I have been on Forteo (daily injections into abdomen), Reclast (~1hr infusion once a year) & now Prolia (injection into abdomen 2x a year). It’s impossible for me to tell if I have pain side effects due to all my “normal” pain. I have NOT had any bone cancer related issues. BTW - since osteoporosis was discovered in 2008, my score has gone from -3.1 to -4.4. None of these treatments are a miracle drug but I will continue to try every Medically approved treatment available.

If anyone believes it is better to have a fracture then to take a medication that will hopefully keep you from fracturing a bone bc of a minimal risk of side effects, my opinion is that U really need to sit down and think about it. Fractures can lead to surgery, which may lead to infection & pain. That’s a certainty. Hope this helps in any way & that I did not offend anyone. 🙂

Jump to this post

We’re the Forteo injections hard to give yourself? Just not sure I could do it every day. Painful?

REPLY
1 reply
JK | @contentandwell | Feb 10, 2020
In reply to @jmweissler "My understanding is that Prolia is the “latest & greatest”. I have been on Forteo (daily..." + (show)
@jmweissler

My understanding is that Prolia is the “latest & greatest”. I have been on Forteo (daily injections into abdomen), Reclast (~1hr infusion once a year) & now Prolia (injection into abdomen 2x a year). It’s impossible for me to tell if I have pain side effects due to all my “normal” pain. I have NOT had any bone cancer related issues. BTW - since osteoporosis was discovered in 2008, my score has gone from -3.1 to -4.4. None of these treatments are a miracle drug but I will continue to try every Medically approved treatment available.

If anyone believes it is better to have a fracture then to take a medication that will hopefully keep you from fracturing a bone bc of a minimal risk of side effects, my opinion is that U really need to sit down and think about it. Fractures can lead to surgery, which may lead to infection & pain. That’s a certainty. Hope this helps in any way & that I did not offend anyone. 🙂

Jump to this post

@sue225. Hip fractures can also lead to a loss of mobility which can start a downward spiral. That to me is very frightening.

So you had no problems with Reclast? I know we are all different but it is reassuring to know people who have not had problems. Why did you stop Reclast and Prolia if you don’t mind sharing.
Thank you,
JK

REPLY
sue225 | @sue225 | Feb 10, 2020
In reply to @jmweissler "My understanding is that Prolia is the “latest & greatest”. I have been on Forteo (daily..." + (show)
@jmweissler

My understanding is that Prolia is the “latest & greatest”. I have been on Forteo (daily injections into abdomen), Reclast (~1hr infusion once a year) & now Prolia (injection into abdomen 2x a year). It’s impossible for me to tell if I have pain side effects due to all my “normal” pain. I have NOT had any bone cancer related issues. BTW - since osteoporosis was discovered in 2008, my score has gone from -3.1 to -4.4. None of these treatments are a miracle drug but I will continue to try every Medically approved treatment available.

If anyone believes it is better to have a fracture then to take a medication that will hopefully keep you from fracturing a bone bc of a minimal risk of side effects, my opinion is that U really need to sit down and think about it. Fractures can lead to surgery, which may lead to infection & pain. That’s a certainty. Hope this helps in any way & that I did not offend anyone. 🙂

Jump to this post

@jmweissler You most definitely did not offend. Your comment about fractures needs to be out there. It is my biggest fear to fracture a hip and lose my independence. Prolia has been around since 2010 and Forteo since 2009.
Since being on Prolia, my bone density has improved significantly in a short period of time. What I find weird about this drug is the fact that should you stop using it , you lose everything you gain quickly and unless you replace with another med you risk having those rebound fractures.
If I didn't have the side effects I'd still stay on it. Forteo has that 18month limit, but who knows maybe there will be something else in the pipeline soon.

REPLY
1 reply
Oh My Aching Back & Neck | @jmweissler | Feb 10, 2020
In reply to @debbiem "We’re the Forteo injections hard to give yourself? Just not sure I could do it every..." + (show)
@debbiem

We’re the Forteo injections hard to give yourself? Just not sure I could do it every day. Painful?

Jump to this post

The first few r a bit frightening but there is really no pain. U get used to it. It’s well worth it. The pens need to b refrigerated so if U travel it’s a pain. U get a travel case w ice to keep it cool.

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Oh My Aching Back & Neck | @jmweissler | Feb 10, 2020
In reply to @sue225 "@jmweissler You most definitely did not offend. Your comment about fractures needs to be out there...." + (show)
@sue225

@jmweissler You most definitely did not offend. Your comment about fractures needs to be out there. It is my biggest fear to fracture a hip and lose my independence. Prolia has been around since 2010 and Forteo since 2009.
Since being on Prolia, my bone density has improved significantly in a short period of time. What I find weird about this drug is the fact that should you stop using it , you lose everything you gain quickly and unless you replace with another med you risk having those rebound fractures.
If I didn't have the side effects I'd still stay on it. Forteo has that 18month limit, but who knows maybe there will be something else in the pipeline soon.

Jump to this post

As long as U r doing something:)

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sewcouture | @sewcouture | Feb 11, 2020

Hi,
Do NOT start this drug! Do lots of research before you start any of the osteoporosis drugs. In differing amounts, they all contain the same chemicals as used in chemotherapy. I have had severe pain in my leg bones, my finger joints have all swelled permanently and I have lost about 1/4 - 1/3 of my hair. I have had 2 shots and will never take another one. I will use calcium and ergocalciferol (Vitamin D). Be sure that you do the research - my doctor told me that there were no side effects and yet there are many in addition to what I have. K

REPLY
allegro | @allegro | Feb 11, 2020
In reply to @contentandwell "@jmweissler Sounds like you have been battling osteoporosis for quite a while now. What treatments have..." + (show)
@contentandwell

@jmweissler Sounds like you have been battling osteoporosis for quite a while now. What treatments have you been on prior to Prolia, and did you have any disagreeable side-effects? There are many here, myself included, who are struggling with the question of what to do. I am 95% certain that I will go one of these drugs but I need to do more research to decide which. My endo suggested Reclast. I won't do anything until after April because I have a couple of other things I want out of the way first.
I, and I am sure many others, would really love to hear side-effects and also what if any positive effects you got from the various treatments. Osteoporosis is so much more threatening than I ever realized before. ☹️
JK

Jump to this post

I HAVE HAD THREESHOTS OF PROLIA SO FAR WITH NOTHING BUT GREAT EFFECTS. I NO LONGER SUFFER FROM FREQUENT FRACTURES WHICH I DID BEFORE AND THE CONVENIENCE OF ONLY NEEDED TWO SHOTS A YEAR IS A BONUS FOR ME. BUT I'M SURE IT WORKS DIFFERENTLY FOR MANY OTHERS. MY PROBLEMS STARTED TEN YRS AGO WHEN I WAS GIVEN TWO DOSES OF LEVAQUIN, THE KILLER DRUG......

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