Prolia and Cirrhosis

Posted by cmurray6 @cmurray6, Mon, Aug 12 1:23pm

I found out last October I have Cirrhosis but not sick enough for a transplant. (Thank God). I also have Osteopenia and Osteoarthritis. Would Prolia be safe for me?

Liked by jmanj

Hi @cmurray6 and welcome to Connect. There are a few discussions on prolia and other bone saving pharmaceuticals here on Connect. Here is one but if you put prolia in the little magnifying glass you can find others that mention prolia.
https://connect.mayoclinic.org/discussion/prolix-treatment-for-osteoporosis/?pg=30#comment-321806
We are simply patients helping others by sharing our own experiences and as such not qualified to answer your question. Are you being treated by a hepatologist for your cirrhosis? If so that would be who I would ask about this.

I also had cirrhosis and I did have a transplant. If yours does ever progress far enough to need one, don't be afraid. I was very apprehensive for a long time and even thought I would turn down a transplant but I am so happy that I stayed on the waiting list. By the time I got my call things had progressed to the point where I was extremely thankful for it. Recovery was smooth and all is great now.

Sorry that I cannot be more helpful for you.
JK

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@contentandwell

Hi @cmurray6 and welcome to Connect. There are a few discussions on prolia and other bone saving pharmaceuticals here on Connect. Here is one but if you put prolia in the little magnifying glass you can find others that mention prolia.
https://connect.mayoclinic.org/discussion/prolix-treatment-for-osteoporosis/?pg=30#comment-321806
We are simply patients helping others by sharing our own experiences and as such not qualified to answer your question. Are you being treated by a hepatologist for your cirrhosis? If so that would be who I would ask about this.

I also had cirrhosis and I did have a transplant. If yours does ever progress far enough to need one, don't be afraid. I was very apprehensive for a long time and even thought I would turn down a transplant but I am so happy that I stayed on the waiting list. By the time I got my call things had progressed to the point where I was extremely thankful for it. Recovery was smooth and all is great now.

Sorry that I cannot be more helpful for you.
JK

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Thank you so much for the information. I'm so happy it worked out well for you. I will search for prolia and check with my Heptologist when I go back to Mayo in October. 😃

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Hi @cmurray6 and @contentandwell — I have osteopenia but I'm not yet taking anything for it. I did see this article from 2017 from the National Women's Health Network which may provide some information on Prolia that is helpful.

Is Prolia a Safe Treatment Option for Osteoporosis
https://nwhn.org/prolia-safe-treatment-option-osteoporosis/

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@johnbishop

Hi @cmurray6 and @contentandwell — I have osteopenia but I'm not yet taking anything for it. I did see this article from 2017 from the National Women's Health Network which may provide some information on Prolia that is helpful.

Is Prolia a Safe Treatment Option for Osteoporosis
https://nwhn.org/prolia-safe-treatment-option-osteoporosis/

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@johnbishop Thanks, John. I will keep that to review if it works out that I need to do something, which I fear I will. I have a PCP appointment in October and I suspect he is going to want to put me on BP meds, cholesterol meds, and bone density meds! I really hate having to add drugs to the arsenal I have now.
JK

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@johnbishop

Hi @cmurray6 and @contentandwell — I have osteopenia but I'm not yet taking anything for it. I did see this article from 2017 from the National Women's Health Network which may provide some information on Prolia that is helpful.

Is Prolia a Safe Treatment Option for Osteoporosis
https://nwhn.org/prolia-safe-treatment-option-osteoporosis/

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Thank you so much….I will check this out.

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@contentandwell

@johnbishop Thanks, John. I will keep that to review if it works out that I need to do something, which I fear I will. I have a PCP appointment in October and I suspect he is going to want to put me on BP meds, cholesterol meds, and bone density meds! I really hate having to add drugs to the arsenal I have now.
JK

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@contentandwell, @johnbishop, Just an FYI for you two. Today's Mayo newsletter feature is entitled 'Mayo Clinic Osteoporosis Insight' <mayoclinicosteoporosis@everydayhealth.com>. It is probably the best discussion I have read so far on this subject. I have just been 'round robin's barn on this subject. I am highly allergic to the ingredients in the Boniva like products. And….I have very unsightly low scores on the DEXA scan report. And……..my mother died after her broken hip at 83. She spent the rest of her life in a wheelchair and never smiled again. So…mine boils down to the quality of life and appropriate self-care. Hope you find the right answer for yourself. You are always helping others…now it is time for self-care and self-compassion. Chris

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Thank you so much for the heads up. My Mom died the same way…. broke her hip. Never recovered till she died 7 months later. My Grandmother did the same thing. They both had osteoporosis…….I just have Osteoporosis but I want to stop it before it gets worse. It's always something…..lol

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Thanks for the heads up Chris @artscaping. Osteoporosis Insight is a FREE e-newsletter from Mayo Clinic. Here is the website where you can sign up for the newsletter: https://newslettersignup.mayoclinic.com/osteoporosis

I also found an interesting Mayo Clinic Q and A: Understanding — and preventing — osteoporosis page:
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-understanding-and-preventing-osteoporosis/

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@artscaping

@contentandwell, @johnbishop, Just an FYI for you two. Today's Mayo newsletter feature is entitled 'Mayo Clinic Osteoporosis Insight' <mayoclinicosteoporosis@everydayhealth.com>. It is probably the best discussion I have read so far on this subject. I have just been 'round robin's barn on this subject. I am highly allergic to the ingredients in the Boniva like products. And….I have very unsightly low scores on the DEXA scan report. And……..my mother died after her broken hip at 83. She spent the rest of her life in a wheelchair and never smiled again. So…mine boils down to the quality of life and appropriate self-care. Hope you find the right answer for yourself. You are always helping others…now it is time for self-care and self-compassion. Chris

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Thanks @artscaping. I will definitely check on that. I am really leery about these drugs but it sounds as if they are a necessary evil, much better than a serious fracture. This fracture that I have right now is bad enough. I surely do not want a more serious one.

@johnbishop thanks for the links. I will sign up right now.
JK

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Perhaps not.

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