Anyone had colpocleisis surgery? I want to learn more

Posted by luftmensh1 @luftmensh1, Jul 3, 2021

What happened to the lady who was having significant bleeding problems 8 days after colpocleisis surgery?

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Even though I failed the urodynamics test, which is either you pass or fail, no range chart. I did my own research and found out that you can do the mid urethral sling later if you have incontinence after your copocleisis surgery. It's called the staged approach, you can look it up. My doctors did not tell me about it, I simply told them I wanted to do the staged approach after reading reputable medical websites. If sling is done later as a separate procedure it only takes about 10mins. I am SO glad I did not do it at the same time because I have not had any incontinence since my hysterectomy and colpocleisis surgery, and my surgeon said my prolapse was one of the worst she had seen. I am now almost 1 year post-op and can pee very normal without the mid urethral sling. Each decision is personal to each of us as patients, and there are no guarantees, so good luck on whatever you decide. I wish you well on your surgery.

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Thank you so much for your response. I am going to research the staged approach. So good to hear you are doing well.

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I found this group this morning and just spent the past hour reading through all the posts. I am 67 and scheduled for Le Fort colpocleisis on Nov. 5, 2026. I had a transvaginal uterine ultrasound that showed slight thickening of the uterus (I think that's how it was described), so they wanted to do a uterine biopsy prior to surgery. The surgeon said the ultrasound results were not really concerning, and that if they weren't about to make my uterus inaccessible they probably wouldn't even be doing a biopsy, so I'm really hopeful that everything is okay there! I had the biopsy yesterday at my pre-op appointment--uncomfortable, but not excruciating--along with the urodynamics test, which I failed (slight leak with a "medium" cough and gushing with a "big" cough), so the surgeon plans to insert a mesh sling to hold up my bladder at the same time of the colpocleisis surgery. I'm nervous about having the mesh in my body, but really do NOT want to deal with incontinence because I am very active, hiking 2-3 times a week, etc. My prolapse has been worsening over the past couple of years and is now causing significant discomfort. I chose colpocleisis over another type of surgery because of the lower risk of failure, shorter recovery (I hope!), and the ability to continue to do things like hike, shovel snow, etc. without causing recurrence of the prolapse (again, I hope!) and also because, although I am relatively young for the procedure, my husband is 12 years older and being treated for metastatic prostate cancer, so the loss of ability to have vaginal sex is not an issue for us anyway. After talking to my surgeon's NP at my appointment yesterday and having to hear her give all the possible risks, and reading about issues some others have had on this forum, I'm more nervous than I was, but still think it's the best/only option for me. I'd love to hear more about what the recovery is like, and I'll be checking back in often.

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Profile picture for luftmensh1 @luftmensh1

I have used a pessary for a number of years. The first one began coming out, so I went without it for a while, but my prolapse was bad enough that the bulging tissue stuck to my underwear and I would have to peel it away frequently to get up from sitting, and the tissue was irritated and looking red. My gynecologist referred me to the head of female pelvic medicine at a hospital, asking that I be seen right away. She was not available so quickly, so I got a next-day appointment with a doctor in the same group. He fitted me with a pessary two sizes larger, which I still use. There have been some downsides to the pessary: there is a discharge, which is somewhat messy and odor-producing, so I have to use a light liner pad and change it several times a day; it has also irritated tissue, sometimes causing a sore or bleeding. The bleeding had to be checked out via ultrasound and hysteroscopy. A polyp was removed, and no malignancy was found. I was told to take a vacation from the pessary to let the sore heal, and it didn't heal so quickly, so I was without it for some time. Without the pessary, I felt tremendous pressure, a sense of needing to urinate almost all the time, but not always being able to do so. This seemed to inflame the nerves in my pelvic area, my arms, hands, and legs, which was almost unbearable. Also, I wasn't always able to empty my bladder completely. And I could have episodes of incontinence a short time after being unable to urinate. Out of desperation, I went back to using the pesssary, but it kept coming out whenever I went for an exercise walk. It was okay around the house, going grocery shopping, to an appointment, but it kept coming out during sustained exercise walking. A larger pessary was tried twice, but was found to be too large. Maybe I had lost my skill in inserting the pessary during the long vacation from it, but I seem to have regained the ability. I push up the bulging tissue, which the doc claims is the vaginal wall, before I insert it, and now it stays in again for exercise walking. I also use gloves to remove it, and put a drop of KY Jelly on the two fingers I use. I notice at times in the shower that some of the prolapsed tissue bulges over the side of the pessary, and I push it back up. With the pessary in, I feel like a person, but it may not be a long-term solution. Also, I may not always have the dexterity to insert and remove it. I am 83, and I have arthritis in various body parts, including some of my fingers.

During the pandemic, I was afraid to go anywhere, including to the urogynecologist who was treating me, which involved a half-hour drive and going into an elevator building. When I learned that the same medical group was sending one of its doctors to the medical center in my retirement community once a month, I opted to see that doctor in the medical center across the street rather than risk greater exposure of myself and the two people I live with before any of us were vaccinated. This brought about some confusion over who was my doctor, but that is a separate story. (Both doctors are associate professors at a university hospital and are involved in research.) In April, my former next-door neighbor, who is perhaps 6 years younger than me, just had the surgery, which essentially shortens the vagina, bringing the walls together, along with a hysterectomy done vaginally. She is very happy with the results. Now she can comfortably travel to visit her daughter out of town. Of course, this surgery is an option only for women who are not sexually active. Colpocleisis is an obliterative, rather than a reconstructive surgery. I'm sure you've heard that some unlucky women who had reconstructive surgery with a certain type of mesh had problems, infections, and even died. Several years ago, I read about a doctor in Israel who was studying the use of stem cells to treat prolapse. The problem with surgery, he said, is that it often has to be repeated. I think this whole topic needs more open discussion. It's not something people are comfortable talking about. I also consulted a retired gynecologist who is a friend, and he is encouraging. I'm supposed to have a procedure called urodynamics, to gain more information for the surgeon, in a few days. That's about all I can write now.

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@luftmensh1
I had LeFort colpocleisis surgery about 5 years ago. It is a modified form of colpocleisis in which the vagina is made shorter and narrower, and it took care of the pelvic organ prolapse problems I was having. I came out of the surgery singing "Que Sera, Sera" (What will be, will be), which my mother used to like. Since then, other health issues have occurred or become more problematic: multiple problems with my spine, including scoliosis, spinal stenosis, osteoporosis, and osteoarthritis; osteoarthritis in my right shoulder; and kidney disease. Sometimes I wonder whether the surgery itself may have contributed in some way to my current issues. A CT scan almost a year-and-a-half ago showed a blockage in the left kidney. Since then, my kidney bloodwork has been abnormal but stable. The human body is complex, and medical knowledge is always evolving, so we try to do our best.

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