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Primary Myelofibrosis: Continue watch & wait? 2nd opinion?
Does anyone have PMF? I was diagnosed in July and still need to learn more about what is best for me. I'm a 67 yo female and at last visit 2 mos ago I was not experiencing major symptoms. Occasional night sweats, slightly enlarged spleen, constant fatigue. Should I go to get advice from Mayo Clinic or keep doing the watch and wait? No meds right now.. Thanks
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How are you tolerating Ojjaara now that you’ve been on it a few months? When you say 1/2 dose, is that 10 mg? Any other unusual side effects? Someone on this site mentioned having neuropathy that had increased after being on Ojjaara.
Are you positive for JK2? I have PV with A positive JAK2 on hydrox for 2 years it can easily move to mylofibrosis...I personally would get a second opinion at a large academic center. what you have is serious and deserves a second look. I wish you all good things