1. < Ear, Nose & Throat (ENT)

Primary localized arthritis and Dystonia are wreaking havoc on me.

Posted by Bobbi Dawn Semore @mizbbd, Mar 7 8:57pm

Swimming pool accident; dove into 3 ft. shallow water, upon impact/hitting head hard, slamming mouth shut, rupturing TMJ disk, & an electric current surged down spine from top of head, all the way down tailbone, leaving me paralyzed for a few seconds. Surgery was recommended but it was left untreated. It’s been 40 years, the primary localized arthritis & Dystonia are wreaking havoc on my body and mind. My face is beginning to deform and other symptoms, as well. Can anyone relate? I need an advocate. I should go in “TedTalk”
The photos I added of myself show how uneven my ears/eyes are. My glasses aren’t crooked, that’s my uneven ears. For years, I thought my glasses were crooked. My chin is pulling top left. My ears are constantly ringing, pinging, & static. I’m dizzy, and I catch myself biting my tongue at times, as if I’m trying to bite it off. My jaw, teeth, and sinuses ache. Can someone point me to a road to wellness?

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Bobbi Dawn Semore | @mizbbd | Mar 9 6:20pm
In reply to @armel174 "What kind of test do they do to determine if you have dystonia? I have severe..." + (show)
@armel174

What kind of test do they do to determine if you have dystonia? I have severe muscle spasms in my legs feet and hands, but not all the time. My PCP doesn't seem concerned about it. I've done some researching about spondylosis and scoliosis which I have both to see if this might be my problem. I've been to my Ortho doctor but he doesn't specialize in these conditions so I'm looking for one that does. Can anyone advise me?

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@armel174
I believe my Orofacial pain specialist diagnosed me after panoramic x-ray of my face. Nobody informed me. I've learned to follow medical info on my chart. I'm my own advocate, I do my own research, I request to see specialists, ask for referrals, and now when I'm treated poorly, which has happened for years, I find a new PCP. I interview them, as well. I ask if they are willing to go the extra mile for their patients, among other questions. By the way, a chiropractor planted the seed for me. Best wishes to you.

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celia16 | @celia16 | Mar 9 6:23pm
In reply to @mizbbd "What's talk therapy? I could google it, of course. However, I'm enjoying a more personal experience..." + (show)
@mizbbd

What's talk therapy? I could google it, of course. However, I'm enjoying a more personal experience of information. Thank you, Mayo & celia16

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It’s also referred to as psychotherapy or counseling.

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