Prednisone withdrawal

Posted by graysea @graysea, Jul 7, 2022

I have had crushing anxiety and depression from prednisone withdrawal. Does anyone have suggestions? I was placed on 40 mg to rule out poly rheumatatica. I do not have PR. The doctor began taporing after 4 months. It's been close to a year and Im on 6 mg. SSRIs caused tachycardia. Any suggestions?

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Hello @graysea, Welcome to Connect. I'm sorry to hear that prednisone has caused such awful side effects for you. I guess the silver lining if you can call it that is that you don't have polymyalgia rheumatica (PMR). There is another discussion on tapering that you might find helpful but it's about tapering when you have PMR pain which I'm assuming you don't have if you do not have PMR.

-- Tapering off of Prednisone: https://connect.mayoclinic.org/discussion/prednisone/

You also might find the following article helpful
-- How to Reduce Prednisone Withdrawal Symptoms - Determining the Appropriate Tapering Strategy:
https://www.verywellhealth.com/does-prednisone-tapering-minimize-withdrawal-190242

It took me 3-1/2 years to taper off of predninsone the first time I had PMR and started treatment at 20mg prednisone. My rheumatologist had me keep a daily pain/symptoms log along with the dosage I was taking.
Have you discussed the tapering plan and your symptoms with your doctor?

REPLY
@johnbishop

Hello @graysea, Welcome to Connect. I'm sorry to hear that prednisone has caused such awful side effects for you. I guess the silver lining if you can call it that is that you don't have polymyalgia rheumatica (PMR). There is another discussion on tapering that you might find helpful but it's about tapering when you have PMR pain which I'm assuming you don't have if you do not have PMR.

-- Tapering off of Prednisone: https://connect.mayoclinic.org/discussion/prednisone/

You also might find the following article helpful
-- How to Reduce Prednisone Withdrawal Symptoms - Determining the Appropriate Tapering Strategy:
https://www.verywellhealth.com/does-prednisone-tapering-minimize-withdrawal-190242

It took me 3-1/2 years to taper off of predninsone the first time I had PMR and started treatment at 20mg prednisone. My rheumatologist had me keep a daily pain/symptoms log along with the dosage I was taking.
Have you discussed the tapering plan and your symptoms with your doctor?

Jump to this post

The physician who prescribed 40 mg prednisone, was uncomfortable with the taporing. I found an interist that has tapored me from 40 to 6 mg. Currently, I suffer from severe dizziness, nausea, insomnia, and anxiety. She has referred me to endocrinology . It is especially sad because I was prescribed this medication for a condition that was ruled out. I currently tapor 1 mg monthly. Is there any diet suggestions for prednisone withdrawal. There is no medications that help with this process.

REPLY
@graysea

The physician who prescribed 40 mg prednisone, was uncomfortable with the taporing. I found an interist that has tapored me from 40 to 6 mg. Currently, I suffer from severe dizziness, nausea, insomnia, and anxiety. She has referred me to endocrinology . It is especially sad because I was prescribed this medication for a condition that was ruled out. I currently tapor 1 mg monthly. Is there any diet suggestions for prednisone withdrawal. There is no medications that help with this process.

Jump to this post

I don't think there are any set rules when it comes to tapering off of prednisone but it's good that you are working with your doctor/internist.

"Prednisone is similar to cortisol, a hormone naturally made by your adrenal glands. If you take prednisone for more than a few weeks, your adrenal glands decrease cortisol production. A gradual reduction in prednisone dosage gives your adrenal glands time to resume their normal function." --- https://aiunited.org/wp-content/uploads/STEROIDS-ASTHMA.pdf

I also saw this information that I think explains what is happening and might be helpful to discuss at your upcoming appointment with endocrinology on what would be helpful for lifestyle changes.
-- Glucocorticoid tapering and adrenal suppression testing guide:
https://aiunited.org/glucocorticoid-tapering-and-adrenal-suppression-testing-guide/

REPLY
@johnbishop

I don't think there are any set rules when it comes to tapering off of prednisone but it's good that you are working with your doctor/internist.

"Prednisone is similar to cortisol, a hormone naturally made by your adrenal glands. If you take prednisone for more than a few weeks, your adrenal glands decrease cortisol production. A gradual reduction in prednisone dosage gives your adrenal glands time to resume their normal function." --- https://aiunited.org/wp-content/uploads/STEROIDS-ASTHMA.pdf

I also saw this information that I think explains what is happening and might be helpful to discuss at your upcoming appointment with endocrinology on what would be helpful for lifestyle changes.
-- Glucocorticoid tapering and adrenal suppression testing guide:
https://aiunited.org/glucocorticoid-tapering-and-adrenal-suppression-testing-guide/

Jump to this post

Thank you. I dont feel so bad if I know what is going on with my body.

REPLY
@johnbishop

I don't think there are any set rules when it comes to tapering off of prednisone but it's good that you are working with your doctor/internist.

"Prednisone is similar to cortisol, a hormone naturally made by your adrenal glands. If you take prednisone for more than a few weeks, your adrenal glands decrease cortisol production. A gradual reduction in prednisone dosage gives your adrenal glands time to resume their normal function." --- https://aiunited.org/wp-content/uploads/STEROIDS-ASTHMA.pdf

I also saw this information that I think explains what is happening and might be helpful to discuss at your upcoming appointment with endocrinology on what would be helpful for lifestyle changes.
-- Glucocorticoid tapering and adrenal suppression testing guide:
https://aiunited.org/glucocorticoid-tapering-and-adrenal-suppression-testing-guide/

Jump to this post

Also, I cant take an SSRI because if tachycardia. SSRIs have been my "go
to" when I have anxiety. Now within hours I have a resting heart rate of
95 to 102. I dc the ssri and the heart rate goes back to the 70s resting. I
have to wait till after the tapor. Anxiety is very uncomfortable. Has
anyone had a similar situation?

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