Pre-Kidney Referral to In Person Evaluation

Posted by tag482 @tag482, Nov 5 4:16pm

I just found out that the pre-kidney referral team are so backed up in AZ that they are currently processing people who sent in their medical records in May. I just sent mine in so I likely won't hear from them until March. I am so very excited at the chance to list with them, but wow! I was hoping to get my in person evaluation done before I start dialysis at the end of December. I am learning that you can't "plan" anything with kidney failure. Did others here have the same wait? I guess I'll be flying to AZ from NY with my PD bags in tow. Best of luck to us all!

Interested in more discussions like this? Go to the Transplants Support Group.

craigcraig | @craigcraig | Nov 8 9:06am

Had a liver transplant in AZ last year. Sorry your wait may (or may not ?) be that long but Mayo is so very good. Though difficult worth the wait. Hope & predict things will turn out well in the long run. An old sports adage you must "Play the long game." (---:

Colleen Young, Connect Director | @colleenyoung | Nov 18 9:26pm

@tag482, I hope you saw the reply from @craigcraig. I'm also tagging a few additional members like @mrsjenko @kayb @gratefulbob @alicat60 @benedict66066 @kimkidney, who have experience with Mayo Clinic in Arizona and kidney transplant.

Here are few other discussions you might be interested in:
- Kidney transplant: Just finished evaluation at Mayo AZ https://connect.mayoclinic.org/discussion/kidney-transplant-11/
- Looking for what to expect as I consider Kidney Transplant https://connect.mayoclinic.org/discussion/kidney-transplant-1/
- At-home peritoneal dialysis: Things to consider https://connect.mayoclinic.org/discussion/at-home-dialysis-peritoneal/

kimkidney | @kimkidney | Nov 18 11:34pm

I found out that my blood has high sensitivity antigens in the 90. My son s my same blood type and is currently being tested as a possible donor. I now understand that even a live donor will be hard to match and I might have to do a share program. Has anyone else gone through this?

tag482 | @tag482 | Nov 25 12:59pm

In reply to @colleenyoung "@tag482, I hope you saw the reply from @craigcraig. I'm also tagging a few additional members..." + (show)

@colleenyoung I am really looking forward to working with the Mayo Clinic and understand the wait is long because it is SUCH a great organization. I was shocked, that's all. I'll eventually get the call. I have been listed with Weill Cornell for 19 months. I just started registering with NYU Langone, Hartford CT, Hackensack NJ and Univ PA. Serious Multi-Listing. Thank you!