My mom is typing this for me because I have POTS and I am in bed half the day dizzy, nauseous and very tired. I also have trouble communicating because of my PDD-NOS, ADHD, Expressive/Receptive language disorders, dyslexia, anxiety, and more.
I would like to figure out how to get to the Mayo Clinic in Rochester so that my insurance would cover. My doctor in Wisconsin referred me there for my POTS and they turned me down. I've been to Madison as a second choice.
I really want this POTS to get better so that I can work and get out and do things.
I applied for disability once I turned 18 and am in the appeal process again. I've been on disability since I was 12 because of my other issues besides POTs.
I've always been dizzy and nauseous when I get up each day and my mom thought I didn't want to go to school. We found out in 2007 that I had POTS all of my life and my head injuries caused post concussive syndrome, which made my POTS worse. I've been suffering ever since.