1. < Gynecologic Cancers

Post-treatment follow up for clear cell endometrial cancer

Posted by ffr @ffr, Mar 16 12:44pm

Just wondering how your oncologists are monitoring you for recurrence of an aggressive cancer . I am two+ years post treatment with surgery, chemo, radiation & brachytherapy. I had metastasis to local & distant lymph nodes during chemo so I’m deemed chemo resistant.
-How often do you see your oncologist?
-Do you get CT scans & if so how often?
Is there concern for radiation overload?
-Is anybody using liquid biopsies? A blood test seems like a great way to monitor for cancer cells but my oncologist is not a fan.
I’m always worried about recurrence, so your experiences might be helpful.

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Denise | @denisestlouie | 4 hours ago
In reply to @ffr "Hi Helen. I appreciate your information. I have been getting bloodwork, CT scans, and internal exams..." + (show)
@ffr

Hi Helen. I appreciate your information.

I have been getting bloodwork, CT scans, and internal exams every 3 months. My doctor wanted me to go to 6 months and I agreed to 4 months. However, at my recent appointment I agreed to 6 months moving forward because of concerns for the repeated radiation exposure.

The reason I asked about liquid biopsies is because I thought that looking for tumor markers between scans - or instead of scans - might be a reasonable and healthier way of monitoring. Thus far, my oncologist has not been on board and I wanted to glean some more information before approaching the topic with him again.

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My oncologist feels the same way. Until there is more evidence that the blood test really work and there is a protocol to treat cancer that is not detectable he feels the risk of false positives is to great and worrisome.

Denise

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