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Post Hemorrhagic Stroke Recovery - need support of others like me

Posted by janie1gypsyy2001 @janie1gypsyy2001, Jun 26, 2024

I had a Hemorrhagic stroke in 2017, Went into kidney failure, was placed in a medical coma for over a month to allow for healing.
While in a coma and on a Ventilator, my family was informed by physicians, that very few recover from this situation. They were encouraged to remove all life sustaing measures and let me go. My family refused to give up on my chances to recover. I came out of the coma with Left Hemiplegia, and memory issues. I spent 7 months in institutionalized care. A stroke specialty facility, then to Rehab, all this from Jan to August before, being discharged to home. It has been difficult, but with Home Health Therapy, I have progressed to the point of walking w the use of a walker. I exercise every M,W& F. I use my recumbent exercise bike Monday- Friday, 5 days weekly x 30 minutes. There seems to be no support for a walking/talking stroke survivor in my area. Is anyone able to offer direction for resources? I am in Lakeland, FL.
I would like to talk w other stroke survivors!
I would like to continue to progress!

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Profile picture for Lisa Lucier, Moderator
Moderator
Lisa Lucier, Moderator | @lisalucier | Feb 3 5:15pm
In reply to @coffeeplease "Hello - you are doing amazing ! Very very impressive that you have recovered so much...." + (show)
Profile picture for coffeeplease @coffeeplease

Hello - you are doing amazing ! Very very impressive that you have recovered so much. And medical literature says that this fast and hard push to get better makes a HUGE difference.

I am a 20 year survivor of a massive brain infection that also caused a stroke.
Like you I found zilch long term available help from medical / insurance .
But this is what worked for me:
Senior Center - exercise programs . I just showed up w my cane and ' adapted' the exercise to my ability. You may find ' chair exercise' program works
Continuing Education classes - non credit. Usually through a community college but location of classes maybe at public library, senior center etc... Great way to get out there and be with people and have fun. Ceramics, music, cooking classes ....

Brain Injury/ stroke support groups - see what is available locally. Contact the Hospital Rehabilitation dept. And also the the Therapuetic Recreation Dept. : Ask for resources

The thing the has worked for me is do things in person . Yes you get worn out and yes you may need to figure things out : transportation, getting in and out of the bathroom etc...

Getting better is a full time job lol

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Hi @coffeeplease - just wanted to see how your health has been lately? You'd mentioned taking continuing education classes in the past as a suggestion for self-poststroke therapy. Are you still attending those? Do you go to a support group for patients who've had a stroke, as well?

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