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Post Liver Transplant Recovery: Recipient just doesn't feel well
Hi All,
My husband is coming up on his one year "Liverversary". His surgery went very smooth, no complications. He has labs every other week and they are perfect. Ever since the surgery, he just doesn't feel "well". He's tired all the time, he doesn't feel well after he eats, food is not the same. Nothing tastes right, except ice cream. He could sleep all day. He has no interest in going out and doing things. The only anti rejection he takes is Envarsus. I don't know if this is normal, if it will correct itself, or something is wrong? Has anyone else had anything like this?
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@aroyred, Congratulations on the liver transplant anniversary, and belated happy birthday!
You certainly have a lot going on. I am sorry for my delayed response, but I am currently recovering from a hip replacement, and didn't expect that it would take so much of my energy. - So let's catch up, Did you feel well enough to celebrate your transplant anniversary and birthday this year? Where are you with your chemo treatments, and how are you feeling?
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1 ReactionHow long after her surgery could she be left alone? I'm talking to my family and current relationship person and my family is scattered in different states and the relationship I'm in says he has to be ack at work in 4 weeks . So now I have that to worry about that I won't have anyone around during my recovery after ,4 weeks . I'm so scared and lost I don't know what to do. Thank you for replying to me.
@nancyraine, I has a simultaneous liver and kidney transplant in 2009 at Mayo Clinic in Rochester. Prior to my transplant I had difficulty walking and needed to use a walker. After my successful transplant, I spent 7 days in the hospital. During that time I had physical therapy, and with the new organs, had lost most of the body swelling due to fluids, and was in a much improved condition. At Mayo, (I don't now how other facilities do it) the nurses taught me (and my husband) everything that we needed to know before I was discharged form hospital. This included satisfactory blood labs, and the protocol scans/tests of the new organs as well as sufficient information and directions about my medications, -and using the bathroom, showering, getting around, etc.
My 'dream' during the following 2 weeks that my husband and I spent in Rochester (Gift of Life Tarnsplant House) was to walk, unassisted, the 7 blocks to my final appointment. As luck might have it, it rained that day! However, I was ready/able to do it!
My 4th week post transplant was spent at our home in KY. I remember being weak, and tired. I needed frequent naps, My appetite was crazy and my previously favorite foods did not appeal to me. My husband was retired and easily available - if needed. After that, I became more independent while spending time at home resting and healing and being thankful. Remember this is a major surgery, so don't rush return to your normal activities.
By 4 weeks, the caregiver role becomes less demanding and is mostly needed to get you to/from any doctor appointments blood labs. Of course, anyone can transport you.
I realize that everyone's experince can be different, but I hope that my experince will give you a little bit less stress.
If you were to ask for my advice, here it is: * Take your medicines. *Have your transplant nurse's contact on speed dial. *Do what your doctors tell you to do! They know you and your condition. They will be your most energetic cheering team!
Be on the alert for an incoming virtual hug❤️