Post liver transplant booklet

Posted by webiondev @webiondev, Apr 14, 2019

Hello

How can I get access to mayoclinic post liver transplant guide book given to every patient? I would love to have a copy for my self. Unfortunately i wasn't given any book from my transplant hospital.

Thanks

I have my copy of the one from both my second liver transplant in 2007 and my kidney transplant in 2012. What part of the book are you looking for? The medication/weight/blood pressure/lab record keeping part or the part that talks about the transplant and the aftercare? I don't know if it has been updated since 2007, but I would be more than happy to make a copy for you and mail it to you. I am also on Facebook and you can send me a private message there if you are unable to get access any other way. (Charice Lind Mehring)

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@webiondev I would check with your transplant center to see if they have one but somehow missed giving it to you. I would have thought every transplant center would supply post-transplant care and instructions in some format. My transplant center gave me a looseleaf book with sections that cover everything, including OTC drugs that you should avoid and those that you can use.
JK

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@webiondev – Take a look at this information from UNOS – United Network for Organ Sharing. Here is a link to the After Transplant Information.
https://transplantliving.org/after-the-transplant/

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@charicen

I have my copy of the one from both my second liver transplant in 2007 and my kidney transplant in 2012. What part of the book are you looking for? The medication/weight/blood pressure/lab record keeping part or the part that talks about the transplant and the aftercare? I don't know if it has been updated since 2007, but I would be more than happy to make a copy for you and mail it to you. I am also on Facebook and you can send me a private message there if you are unable to get access any other way. (Charice Lind Mehring)

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Dear @charicen Thats a great news. Thank you very much. medication/weight/blood pressure/lab would be very helpful. If you are able you can send me a private message to share emails scanned copy or even picture.

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@contentandwell

@webiondev I would check with your transplant center to see if they have one but somehow missed giving it to you. I would have thought every transplant center would supply post-transplant care and instructions in some format. My transplant center gave me a looseleaf book with sections that cover everything, including OTC drugs that you should avoid and those that you can use.
JK

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Unfortunately mine didn't. I was only given surgery report and prescription. @contentandwell

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@webiondev

Dear @charicen Thats a great news. Thank you very much. medication/weight/blood pressure/lab would be very helpful. If you are able you can send me a private message to share emails scanned copy or even picture.

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@webiondev, If you want to share your personal contact information, we ask you to do it by way of a private message (PM) Just click on the envelope icon at top of this page.
This is to protect you from spam and unwelcomed messages in your personal account. I will ask one of our moderators to remove it for you.
Living Life after your Transplant is a discussion where others transplant recipients have shared how they are adjusting to their new life after transppant. They have shared many helpful tips. You are welcome to add any tips or questiont that you have.
https://connect.mayoclinic.org/discussion/living-life-after-your-transplant/

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@webiondev

Unfortunately mine didn't. I was only given surgery report and prescription. @contentandwell

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@webiondev That is really surprising. I would think every transplant center would to make sure that the post-transplant patient would comply with any restrictions that are necessary. I presume you did check with them to make sure that someone didn't just forget to give it to you. How do they expect their patients to take the best possible care of themselves after transplant? You can't just leave patients in the dark!
JK

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