Post Interferon Syndrome

Posted by jerbobs @jerbobs, Jan 31, 2018

What is known?

Liked by bt56

@marleneruth

Yep. I worked all the critical care departments, also OR and GI Lab. Lost my career, self identity, health, and my mind. I am not nuts but the depression and anxiety has reduced my coping mechanisms for sure. I hate self pity, but who else is gonna care, right? Nobody wants to hear it. Glad I found a place to vent.

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I can't agree more. The treatment ended my nursing career too and was struck off the register for fatigue !

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@marleneruth

I just found this site. I took interferon injections for 6 months, relapsed hep c, then one year of injections 3 mil units, 3 times a week. That was 1994-1996. Horrible suffering, for what? For years they denied long term effects. I could never return to nursing or any substantial work, I blamed myself and wihdrew from life. I knew it was the treatment, but who would listen. I suffer from most of the symptoms that I see others are suffering from. Neurologic peripheral and central, cardiac, muscle weakness, fatigue, sleep disorders, pain, psychiatric, vision. Not wanting to be the complainer, I withdraw. I want answers now. Thanks everyone for sharing. Things make sense now.

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Like you and so so many more of us post treatment. I went back to my GP several times each year since 2006 and never got anywhere. I had a brain tumour removed in 2000 and after therapy etc regained my driving licence and back to work for a few years before the treatment. So obviously over the years I pinned all my symptoms etc onto that operation pre treatment. It's only since I found this site that everything makes sense. We must all be strong and hope an investigation will begin like the infected Blood one starting April 2019

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@elgosta

Its good to talk about it and would like to talk more about it
Steven

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Welcome to this site. It's great to be able to share our stories and bring some comfort to each other knowing that we are not insane and this post treatment syndrome really is happening x

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@jenglereckedbin

Like you and so so many more of us post treatment. I went back to my GP several times each year since 2006 and never got anywhere. I had a brain tumour removed in 2000 and after therapy etc regained my driving licence and back to work for a few years before the treatment. So obviously over the years I pinned all my symptoms etc onto that operation pre treatment. It's only since I found this site that everything makes sense. We must all be strong and hope an investigation will begin like the infected Blood one starting April 2019

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Hello, I often sit n think how one person could feel this darn bad all of the time. the pain in my bones is overwhelming, fatigue that gives me no choice but to lie down several times a day, muscle spasms contort my body, my memory is really really bad…i don't see me being able to function at all in the next few yrs and there is no way out. my daughter is also a RN n i don't even think that she takes me seriously…no one does but uall on this site. i just started my my 37th antibiotic in just two yrs thanks to CVID with predominant B cell damage thanks to interferon/ribaviron. i am gonna start on CBD oil soon due to all of the great work that it has proven on the human body…this is scientific proof. has anyone ever hear of LDN therapy??? I have heard great things about this but doesn't seem to be available anywhere near me. God bless all of u going this hell.

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@marleneruth

Yep. I worked all the critical care departments, also OR and GI Lab. Lost my career, self identity, health, and my mind. I am not nuts but the depression and anxiety has reduced my coping mechanisms for sure. I hate self pity, but who else is gonna care, right? Nobody wants to hear it. Glad I found a place to vent.

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absolutely vent…we r the only one's who understand, i am here for ya!!

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@ldestella

Hello, I often sit n think how one person could feel this darn bad all of the time. the pain in my bones is overwhelming, fatigue that gives me no choice but to lie down several times a day, muscle spasms contort my body, my memory is really really bad…i don't see me being able to function at all in the next few yrs and there is no way out. my daughter is also a RN n i don't even think that she takes me seriously…no one does but uall on this site. i just started my my 37th antibiotic in just two yrs thanks to CVID with predominant B cell damage thanks to interferon/ribaviron. i am gonna start on CBD oil soon due to all of the great work that it has proven on the human body…this is scientific proof. has anyone ever hear of LDN therapy??? I have heard great things about this but doesn't seem to be available anywhere near me. God bless all of u going this hell.

Jump to this post

I started the cbd oil 3 weeks ago after 10 years of suffering and I have noticed a massive difference I feel a better sense of life but I could be having a placebo effect will let you no in a few months

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@ldestella

Hello, I often sit n think how one person could feel this darn bad all of the time. the pain in my bones is overwhelming, fatigue that gives me no choice but to lie down several times a day, muscle spasms contort my body, my memory is really really bad…i don't see me being able to function at all in the next few yrs and there is no way out. my daughter is also a RN n i don't even think that she takes me seriously…no one does but uall on this site. i just started my my 37th antibiotic in just two yrs thanks to CVID with predominant B cell damage thanks to interferon/ribaviron. i am gonna start on CBD oil soon due to all of the great work that it has proven on the human body…this is scientific proof. has anyone ever hear of LDN therapy??? I have heard great things about this but doesn't seem to be available anywhere near me. God bless all of u going this hell.

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I feel for u my factor 2 mutation with protien s clotting disorder. Is horrible and on top of that I have Lyme and Nash nonaloholic so I feel you

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@elgosta

I started the cbd oil 3 weeks ago after 10 years of suffering and I have noticed a massive difference I feel a better sense of life but I could be having a placebo effect will let you no in a few months

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pls do!!! do u have a recommendation for what kind to use lol i know nothing about it n thank u!!

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@sharonryanbless

I feel for u my factor 2 mutation with protien s clotting disorder. Is horrible and on top of that I have Lyme and Nash nonaloholic so I feel you

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im so sorry

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@jenglereckedbin

I can't agree more. The treatment ended my nursing career too and was struck off the register for fatigue !

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https://aidsinfo.nih.gov/drugs/34/interferon-alfa-2/0/professional oh my goodness pls read the pharmacology portion actually all of this is blowing my mind…notice ribaviron is described as: mutagenic, toxogenic, and carcinogenic …who allowed these drugs to be approved

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@sharonryanbless

I feel for u my factor 2 mutation with protien s clotting disorder. Is horrible and on top of that I have Lyme and Nash nonaloholic so I feel you

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wow..ck this out, hope it might help https://www.ncbi.nlm.nih.gov/pubmed/15644045

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@ldestella

https://aidsinfo.nih.gov/drugs/34/interferon-alfa-2/0/professional oh my goodness pls read the pharmacology portion actually all of this is blowing my mind…notice ribaviron is described as: mutagenic, toxogenic, and carcinogenic …who allowed these drugs to be approved

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Wow that's a lot of info about interferon and I notice its mostly from 2007. As I ha e access to part of my medical notes there was a comment made by a Doctor that my symptoms may be related to post Interferon treatment. I am still searching for an up to date review on this terrible drug

Liked by ldestella

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@jenglereckedbin

Wow that's a lot of info about interferon and I notice its mostly from 2007. As I ha e access to part of my medical notes there was a comment made by a Doctor that my symptoms may be related to post Interferon treatment. I am still searching for an up to date review on this terrible drug

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morning, i just got off of the phone with Merck…who bought out Schering-Plough whom MADE THE INTERFERON N RIBAVIRON. I reported the drug to them n when n where. also told them i am seeking a lawyer…they asked me questions for 30 min. Anyone interested in going this route pls PM me. i also turned this in to FDA

Liked by growly, mbntn1965

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Hello are you in the USA ? I live in UK

Liked by jenglereckedbin

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@jenglereckedbin

Hello are you in the USA ? I live in UK

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yes ma'me I do, lexington Kentucky

Liked by jenglereckedbin

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