Post Interferon Syndrome

Posted by jerbobs @jerbobs, Jan 31, 2018

What is known?

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@sharonryanbless

I feel for u my factor 2 mutation with protien s clotting disorder. Is horrible and on top of that I have Lyme and Nash nonaloholic so I feel you

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wow..ck this out, hope it might help https://www.ncbi.nlm.nih.gov/pubmed/15644045

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@ldestella

https://aidsinfo.nih.gov/drugs/34/interferon-alfa-2/0/professional oh my goodness pls read the pharmacology portion actually all of this is blowing my mind...notice ribaviron is described as: mutagenic, toxogenic, and carcinogenic ...who allowed these drugs to be approved

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Wow that's a lot of info about interferon and I notice its mostly from 2007. As I ha e access to part of my medical notes there was a comment made by a Doctor that my symptoms may be related to post Interferon treatment. I am still searching for an up to date review on this terrible drug

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@jenglereckedbin

Wow that's a lot of info about interferon and I notice its mostly from 2007. As I ha e access to part of my medical notes there was a comment made by a Doctor that my symptoms may be related to post Interferon treatment. I am still searching for an up to date review on this terrible drug

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morning, i just got off of the phone with Merck...who bought out Schering-Plough whom MADE THE INTERFERON N RIBAVIRON. I reported the drug to them n when n where. also told them i am seeking a lawyer...they asked me questions for 30 min. Anyone interested in going this route pls PM me. i also turned this in to FDA

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Hello are you in the USA ? I live in UK

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@jenglereckedbin

Hello are you in the USA ? I live in UK

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yes ma'me I do, lexington Kentucky

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@ldestella

yes ma'me I do, lexington Kentucky

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I thought so otherwise I
would have got involved. There is no investigations in the UK as far as I know x

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Hi, there are none here either...im making noise right now...we will be noticed...if anyone wants to connect via ph or email pls let me know. i have found peer reviewed journal articles n other things...u need to start some noise there!!! together, we can do this!!!! i would be happy to share with u!! xo

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@jwbeenie

I went thru treatment with intron A in 95 and then again with ribavirin and peg interferon in 2010. I'm SVR now and clear but this year is the first year I've felt some (but not much) improvement of my brain fog, malaise, bone aches, joint aches, and everything else. I was tested for everything under the sun and was finally diagnosed with fibromyalgia and myofacial pain syndrome. I spoke with my gastroenterologist doc and my family doc about long term side effects. They said there was no evidence of any documented. I showed my gastro doc forum after forum of people who had my symptoms and said I'm not going crazy and how do I get someone to study this? I still dont feel like i did prior to treatment and have widespread pain. I often wonder if my symptoms are from fibromyalgia or from the interferon? There are so many hep forums where 50% of the people complain of long term problems that are all similar. Oh ya.. my eyesight is also shot now too. Happened rapidly the first 3 years after treatment. Just sayin. I hope we make enough noise to make a difference and get someone to HEAR us. Thanks!

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1995 Intron A for 6 mos. Relapsed then Intron A for one year. Long term symptoms of weakness, muscle atrophy, fatigue, hypoxia, and down the road finally of heart block and pacemaker (how long was that going on?). Not sure if psychiatric is a treatment symptom (probably), or loss of health, income, personal independence and identity. How about Hep C symptoms (severe) were caused by something other than that virus?

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@marleneruth

1995 Intron A for 6 mos. Relapsed then Intron A for one year. Long term symptoms of weakness, muscle atrophy, fatigue, hypoxia, and down the road finally of heart block and pacemaker (how long was that going on?). Not sure if psychiatric is a treatment symptom (probably), or loss of health, income, personal independence and identity. How about Hep C symptoms (severe) were caused by something other than that virus?

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