Post covid19 persistente

Posted by luisa22 @luisa22, Sep 28 5:39pm

Hola tengo un año tres meses y 20 días desde que di positivo al covid19. Mi condición siempre a sido la misma, no hay ni un día que yo pueda decir que me siento bien. Estoy con cuatro médicos me e realizado toda la cantidad de exámenes para conseguir algún diagnóstico que documenté lo que tengo. Todo los resultados salen bien pero yo me siento muy mal y cuando me esfuerzo es peor. Los médicos no tienen respuestas a mis preguntas, sólo que ellos se encuentran como yo. Mi grado de frustración está cada día en aumento, tenía un long desability en mi trabajo hasta el 2022, me pagaban el 60% de mi sueldo y hace una semana mi empleador me escribió que ya. No pueden seguir con mi long desability que yo estoy protegida por la ley Ada pero yo no puedo regresar al trabajo con ninguna acomodación yo me veo muy bien pero mis actividades de la vida diaria se ven afectadas ya no puedo ser como era antes e aprendido a vivir con esto conociendo mis limitaciones no puedo hacer dos actividades al mismo tiempo pensar hablar caminar manejar me agotan, todo lo hago con periodos prolongados de reposo es muy malo estar así y más cuando no sabes qué hacer y no tienes respuestas. Yo no pedí estar así pienso que ay patologías que no se pueden avalar simplemente están y no se pueden respaldar con un examen de sangre o un Rx. Cada paciente debe ser un solo enter y más cuando es una afección por pandemia, yo me siento desprotegida

@luisa22, welcome. Persistent post-COVID symptoms are baffling many health professionals and causing so many people to deal with multiple symptoms and a deteriorating quality of life, including loss of income and the ability to work.

I see that you have consulted with 4 doctors. Are you able to find a clinic specializing in post-COVID care?

Mayo Clinic has a Post COVID Care Clinic (PCCC). You can read more about it here: https://connect.mayoclinic.org/blog/post-covid-recovery/tab/next-steps/

Survivor Corps has a list of Post-Covid Care Centers available across the US, as well as in Canada, India, and the UK. here:
https://www.survivorcorps.com/pccc
Do you live in the US?

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Si vivo en Jacksonville florida

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I have remained, with the same symptoms since the covid19 gave me. A year ago, three months and twenty-four days ago. chronic fatigue, tachycardia, shortness of breath, difficulty sleeping, muscle and joint pain, loss of muscle strength, loss of smell and taste. (However, very strong odors cause me a lot of discomfort) I have a medical team of pulmonologist, cardiologist, neurologist and my family doctor. I have already changed specialists to seek other opinions, they all come to the same conclusion that my exams are fine. I look great but I don't feel the way I look. This is what I live every day if I try too hard, I spend my days in bed unable to move. the neurologist sent me to physical rehabilitation and the cardiologist to cardiac rehabilitation. the last one did not last four minutes when the tachycardia, chest pain and shortness of breath started, only then did my doctor realize that something was clearly going on in my body. I have learned to live with this which is not easy, knowing my limitations, and I have been listening when my body says to stop. Before I could do several activities at the same time, now I can only do one and in parts. (eg, washing, cooking, walking and talking on the phone) or I talk on the phone or walk but cannot do the same things at the same time. I am glad to know that I am not the only one, there are people like me who struggle daily to recover from post-COVID.

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@luisa22

Si vivo en Jacksonville florida

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Luisa, have you thought about requesting an appointment at Mayo Clinic in Jacksonville?

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@luisa22

I have remained, with the same symptoms since the covid19 gave me. A year ago, three months and twenty-four days ago. chronic fatigue, tachycardia, shortness of breath, difficulty sleeping, muscle and joint pain, loss of muscle strength, loss of smell and taste. (However, very strong odors cause me a lot of discomfort) I have a medical team of pulmonologist, cardiologist, neurologist and my family doctor. I have already changed specialists to seek other opinions, they all come to the same conclusion that my exams are fine. I look great but I don't feel the way I look. This is what I live every day if I try too hard, I spend my days in bed unable to move. the neurologist sent me to physical rehabilitation and the cardiologist to cardiac rehabilitation. the last one did not last four minutes when the tachycardia, chest pain and shortness of breath started, only then did my doctor realize that something was clearly going on in my body. I have learned to live with this which is not easy, knowing my limitations, and I have been listening when my body says to stop. Before I could do several activities at the same time, now I can only do one and in parts. (eg, washing, cooking, walking and talking on the phone) or I talk on the phone or walk but cannot do the same things at the same time. I am glad to know that I am not the only one, there are people like me who struggle daily to recover from post-COVID.

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Luisa, Thank you for posting again in English. As you may have noticed, there is automatic translation between Spanish and English on the site, so you can post in whichever language you prefer. And you'll be able to see the Spanish translation of posts made in English (like this one). 🙂

Let me connect you with fellow members like @ldropps @pitbulover @mark58 @cbscuba10 @otter2154 @debberanner @saraguev @tknipp @kcartier @lauriekh who are also experiencing persistent post-COVID symptoms, despite medical test showing normal results.

The Post-COVID Care Clinic advises exactly what you are doing – know your limits and listen to your body. I hope others will share the approaches they have learned (including patience) at the Post-COVID Recovery program at Mayo Clinic or other institutions.

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@luisa22

No sé como contactarlos

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Luisa: Here is more information about the Post-COVID Care at Mayo Clinic in Jacksonville and our programs. https://connect.mayoclinic.org/blog/post-covid-recovery/tab/next-steps/

Here is how you can request an appointment at Mayo Clinic Florida
http://mayocl.in/1mtmR63

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@luisa22

No sé como contactarlos

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@luisa22, I noticed that you wished to post a URL to the Arkansas research about the potential cause of long COVID with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe.

Mayo Clinic COVID experts wrote this blog post about this exciting research, its limitations and its hopes. See the article here:

– New Study on Possible Causes of Post-COVID Syndrome https://connect.mayoclinic.org/blog/post-covid-recovery/newsfeed-post/new-study-on-post-covid/

This study is the first step to finding why COVID has persistent complications. Top research institutions including Mayo Clinic continue to study COVID in hope of speeding up the recovery.

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