Dealing with Post Concussion Symptoms One Year Later. Suggestions?

Posted by fightingfibro0505 @fightingfibro0505, Jun 11, 2023

Hey everyone! I suffered an injury one year ago and I am still having concussion-like symptoms; migraines, slight vertigo, light sensitivity, eye pain, dizziness, lack of coordination, and severe fatigue. I have no clue what is going on.. it’s different than chronic fatigue or anything like that. Does anyone have a good suggestion or idea???

All my scans are clear too!

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Profile picture for Lisa Lucier, Moderator @lisalucier

@juliannm79 - how are you doing? Were you able to get any answers about PCS?

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@lisalucier Not really. I did find help with my doctor- after reaching out to Mayo who sent me back to my local doctor, who prescribed a low dose tricyclic. which helped the headaches. I'm still struggling with fatigue.
Thanks for checking back.

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Maybe loss see a neurologist. That's the direction I was pointed to with my post cs. I went to rehab. It helped a lot. They were really patient and worked with what I needed

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I encourage you to listen to the Podcast-
The COUNTERSTRAIN Movement.
After 30 yrs of seeking help with a TBI ,
that’s what has saved me when nothing else did.

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Profile picture for holinka2 @holinka2

I have had 4 major accidents that were major head injuries plus a few other things and never went to a doctor. At age 68 ( all this while in my early 20’s.)
My problem has not been diagnosed yet but have had depression for over 30 years and I’m not good at making decisions that are essential and important. Seems like I lack the cognitive part of that. Is it too late diagnosis?

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@holinka2

Never too late.
I had one or more TBI’s in Jan of 2024.
I am still struggling with headaches, confusion, pain.
Go see that doctor.

Dolly Prenzel

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Profile picture for whiteseld @whiteseld

Hey All:I have post concussive syndrome after an injury in November. Does this group have zoom mtgs?Thanks in advance!

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my son has been dealing with PCS for a little over two years, we are just trying to have some clarity of what is typical and things we can watch for as we navigate this. I has been a rollercoaster and just trying to navigate in an area with little research for his age group.

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Profile picture for swimman1 @swimman1

Our 15-year-old son suffered multiple concussions last fall from high school football. It has now been nearly a year, and we believe he is suffering from post-concussion syndrome. His primary symptoms include headaches, social anxiety, occasional fogginess, discomfort around loud noises, and tired eyes. Our next step is to see a neurologist. We welcome any comments, feedback, or next steps on how our son can best cope with these symptoms as he begins the new school year.

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@swimman1 How is he doing? I don't have any insurance and neurologists don't respond when I message for information. 19 months with Post Concussion Syndrome here. I've found a lot of help reading descriptive posts. Like one lady had no insurance but had a retired DR at her church that was giving her suggestions - playing games on the internet. He said any game, because they all have a goal that you have to process out. So I do Words with Friends, Solitaire, Word Blitz, etc. Social anxiety is more of a problem now. It's the little setbacks that - whether a common slip or your braining having a small slip - feels like someone pulled the chair from out underneath you. I come down harder on myself. Recently, I had some people that knew I had a TBI intentionally give me the wrong information. They were joking, they said. They claim, they thought I was ok. I asked them - why would you give people false information when you know they were going to repeat it, if not to make them make a fool out of themselves in front of others? How is that a joke?

The headaches, eye pain/tired eyes, constant ringing is very draining. I feel like I haven't had a restful sleep in forever. My body feels on edge 100% of the time. I just can't relax. The loud noises are amplified and I sometimes I go into a small room for less distractions. Even the bathroom has become a peaceful place where I can shut out light contrasts, movement, noise, all the things in the house.

I hope you post replies on how your son is doing and what Neurologists have suggested. God bless.

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Profile picture for whiteseld @whiteseld

Hey All:I have post concussive syndrome after an injury in November. Does this group have zoom mtgs?Thanks in advance!

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Car accident August 2024. Symptoms resolved I think. Medicated improperly and not managed properly.

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Profile picture for vv91 @vv91

Car accident August 2024. Symptoms resolved I think. Medicated improperly and not managed properly.

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@vv91 - so, if I understand you correctly, you feel that despite improper medication and management, your symptoms following your car accident have now resolved?

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