How long does post concussion head pain and cognitive fatigue last?

@jenniferctbisurvivor

I have sometimes felt suicidal beause of this very thing. I am holding on. So tough to deal with. If a person has not exeriened this that person cannot understand.
Dolly

Just feeling down….has anyone been told that someone couldn’t believe that you are still not recovered yet, by a doctor and coworker in that demeaning tone that makes you feel like it’s your fault?

I have never had such a hard time returning to work everyday with all these symptoms and just functioning everyday. Sometimes it’s all I can do to just survive the severe cognitive impairments and fatigue during the workday, make it home and just cry.

Thanks for listening and letting me vent everyone, I am so much better than before and I know I have a long way to go and I won’t give up but it is definitely hard to hear statements like that and deal with people who have no compassion towards our TBI difficulties and recovering as much as possible. I will never fully recover but I am working so hard to learn all of the tools and tricks to function at the highest level possible!

Have a blessed day

I would like to know how long Post Concussion Syndrome lasts too. 19 months here.

And @johannawest Thank you for your post. Your multitasking and math issues caught my attention.

I'm 19 months with PCS. I'm just now able to do some basic math without having to write it down like in elementary school or use a calculator for super simple add and subtract. I was a passenger in a car accident. I still have facial pain, regular headaches, wrong words coming out, spacing out or going completely blank when asked a question, needing to write things down, constant ringing that makes it difficult to sleep, have issues working computers/phones, lose track of time, and have trouble taking the stairs (walking down is more painful than walking up them). It took a year before I got my balance back and I credit neuro-feedback and infrared therapies. A lady told me about it and said insurance covered it (she had Cigna). An email would take me 3-5 days, if not a whole week - because if I didn't finish it, I'd have to start all over again. My train of thought was just gone - like POOF! then deer in headlights look. Then on the 20th or 30th attempt, I'd finally get it written and sent.

I don't have insurance and I don't know what happened, but the auto insurance closed the medical claim and ignored me. So I didn't get the medical attention I should have had, just thank God he was with me, because I barely remember the first 2-3 weeks. Was barely awake the first week, then forced myself to stay awake and moving around 2-4-6-8-10+ hours. The seat belt injuries were brutal. I used infrared therapy 5 hours a day and it still took 10 weeks for the deep bruises to dissipate, then months for the deep tissue pads to break up and go away. I never thought the cracked ribs were ever going to heal (4 months) and I still have a sore spot when the Doctor checks it.

Experts tell me I likely have facial fractures and 99+% just take time to heal. That like 1/10th of 1% require surgery.

My left eye socket/cheek area still hurt (a constant ache, headaches, and pressure like pushing a bean bag on your face & eye).

I was really worried I'm still having headaches, forgetfulness, pain in my face. So I saw an opthomologist. Good news is that he said all the testing looked good and that my vision was still 20/15. And he, like the other DRs, said to see a Neurologist. With no insurance or referral, doesn't seem likely I will see one.

My biggest frustration is how long it is taking and how slow (& small) the improvements are. I've given up everything I use to do, because I'm barely making it through the day. House and yard and behind and showing it.

I joke that I feel like I'm in a Gunsmoke episode, using old remedies. But I'm finding out many people are reverting to the tried & true home remedies for most things due to the high cost of healthcare. Even with insurance, they opt for alternative treatments over the expensive options with insurance.

If anything, do to my situation - I have a whole new respect for alternative therapies and homeopathic. I realize it is all based on thousands of years of Chinese medicine, just never needed it until now.

Never in my wildest dreams did I think this would be so devastating and life altering. And there are days where I get down and wonder if I'll be like this forever. Forgetting where I put things or key points makes it very difficult to socialize. Days of staring at the computer or phone, trying to remember what to click on.

Thank you

@valka

Hi,

I appreciate you sharing so much, my symptoms are very similar and my digestive system is horrible too, terrible nausea, stomach pain with any food and most fluids, thank goodness for the Zofram dissolvable medications. A couple times I even thought I was going to throw up after eating with my mouth watering and all the symptoms but it improved enough to hold down the food. I even just started having trouble with the skin behind my knees bruising after a hot bath, just great!

Please be careful and report your symptoms to your endocrinologist so they can review your stomach troubles. My thoughts and prayers are with you. 🕊️🙏🕊️

@valka

Hi,

I appreciate you sharing so much, my symptoms are very similar and my digestive system is horrible too, terrible nausea, stomach pain with any food and most fluids, thank goodness for the Zofram dissolvable medications. A couple times I even thought I was going to throw up after eating with my mouth watering and all the symptoms but it improved enough to hold down the food. I even just started having trouble with the skin behind my knees bruising after a hot bath, just great!

Please be careful and report your symptoms to your endocrinologist so they can review your stomach troubles. My thoughts and prayers are with you. 🕊️🙏🕊️

Mine has been a year. I have seen a million drs with mormal results. I google to find answers. I fell out of my mothers attic to concrete. I didn't feel anything for four months Then severe dizziness. Broke my leg initially but it healed and I got dizzy from head blow.

I would like to know how long Post Concussion Syndrome lasts too. 19 months here.

And @johannawest Thank you for your post. Your multitasking and math issues caught my attention.

I'm 19 months with PCS. I'm just now able to do some basic math without having to write it down like in elementary school or use a calculator for super simple add and subtract. I was a passenger in a car accident. I still have facial pain, regular headaches, wrong words coming out, spacing out or going completely blank when asked a question, needing to write things down, constant ringing that makes it difficult to sleep, have issues working computers/phones, lose track of time, and have trouble taking the stairs (walking down is more painful than walking up them). It took a year before I got my balance back and I credit neuro-feedback and infrared therapies. A lady told me about it and said insurance covered it (she had Cigna). An email would take me 3-5 days, if not a whole week - because if I didn't finish it, I'd have to start all over again. My train of thought was just gone - like POOF! then deer in headlights look. Then on the 20th or 30th attempt, I'd finally get it written and sent.

I don't have insurance and I don't know what happened, but the auto insurance closed the medical claim and ignored me. So I didn't get the medical attention I should have had, just thank God he was with me, because I barely remember the first 2-3 weeks. Was barely awake the first week, then forced myself to stay awake and moving around 2-4-6-8-10+ hours. The seat belt injuries were brutal. I used infrared therapy 5 hours a day and it still took 10 weeks for the deep bruises to dissipate, then months for the deep tissue pads to break up and go away. I never thought the cracked ribs were ever going to heal (4 months) and I still have a sore spot when the Doctor checks it.

Experts tell me I likely have facial fractures and 99+% just take time to heal. That like 1/10th of 1% require surgery.

My left eye socket/cheek area still hurt (a constant ache, headaches, and pressure like pushing a bean bag on your face & eye).

I was really worried I'm still having headaches, forgetfulness, pain in my face. So I saw an opthomologist. Good news is that he said all the testing looked good and that my vision was still 20/15. And he, like the other DRs, said to see a Neurologist. With no insurance or referral, doesn't seem likely I will see one.

My biggest frustration is how long it is taking and how slow (& small) the improvements are. I've given up everything I use to do, because I'm barely making it through the day. House and yard and behind and showing it.

I joke that I feel like I'm in a Gunsmoke episode, using old remedies. But I'm finding out many people are reverting to the tried & true home remedies for most things due to the high cost of healthcare. Even with insurance, they opt for alternative treatments over the expensive options with insurance.

If anything, do to my situation - I have a whole new respect for alternative therapies and homeopathic. I realize it is all based on thousands of years of Chinese medicine, just never needed it until now.

Never in my wildest dreams did I think this would be so devastating and life altering. And there are days where I get down and wonder if I'll be like this forever. Forgetting where I put things or key points makes it very difficult to socialize. Days of staring at the computer or phone, trying to remember what to click on.

Thank you