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lilacs1978
@lilacs1978

Posts: 5
Joined: Jul 09, 2018

Possible vascular Dementia

Posted by @lilacs1978, Mon, Jul 9 1:52pm

Hello, my name is Jenessa and I recently turned 40. On Feb. 1st 2017 I had a stroke. That was scary enough, at that time I was 38 and in relatively good health. Non smoker. Long story short I had a clot that caused a stroke. I am on blood pressure meds ( never had high bp before), cholesterol medication, baby aspirin and now a migraine med. Around five weeks ago I was sitting in my car and my head felt as if (pardon my comparison) someone had held a vibrator to my head and turned it on for 20 seconds. This had happened a year prior to my stroke and I just thought it was a strange moment. Since then my daily life is migraines, off balance, extreme tiredness, forgetfulness and sometime I just blank off into space. I feel like I am looking at life through a dream state. I have had a ct scan and an MRI in the last four weeks non of which found another stroke nor further damage from what I already have in my brain from my first stroke. It has been a year and 4 months since my first stroke and now I feel as if I am living a totally new life. I repeat myself and often feel out of it. I am seeing my neurologist next Monday for a follow up, I have been logging my blood pressure (which on medication seems to still average 130/95, sometimes higher sometimes a tad lower) I log when I forget things, when I am told I am repeating myself and when I am very drained. I am worried that this turn of events is leading to vascular dementia even at my young age. The daily events are adding up and concerning enough. Anyone have any feedback I would appreciate it. Thank you~

REPLY

Hi Jenessa @lilacs1978, welcome to Connect.
I'd like to invite @soloact @aphasia @kristibrennan @mlmcg and @kdawn32 to join this discussion.

Jenessa, I can imagine that you are concerned. It sounds like you are doing a lot of things to help with your upcoming conversation with your neurologist. Keeping track of your blood pressure and memory issues is a great start. Are you also logging your migraines, their severity, fatigue or energy levels, etc.?
Did you do rehab after your stroke?

@colleenyoung

Hi Jenessa @lilacs1978, welcome to Connect.
I'd like to invite @soloact @aphasia @kristibrennan @mlmcg and @kdawn32 to join this discussion.

Jenessa, I can imagine that you are concerned. It sounds like you are doing a lot of things to help with your upcoming conversation with your neurologist. Keeping track of your blood pressure and memory issues is a great start. Are you also logging your migraines, their severity, fatigue or energy levels, etc.?
Did you do rehab after your stroke?

Jump to this post

Thank you so much for the kind words. Yes I am Tracking my bp it’s still running around 145-165/85-95 on meds. I do my best to track migrains and things I forget. I’m writing lists everyday so I dont “Forget” basic things. It’s a hard pill to swallow at 40….but I do Have a great support system ~

@lilacs1978 Hello Jenessa

I would like to join Colleen @colleenyoung in applauding you for all of your efforts to track your symptoms and problems. You are doing a great job keeping track of what is happening to you. Being prepared in this way gives your medical team a lot of information to work with and helps them to do their job better.

As Colleen asked, I would also be interested in knowing what type of stroke rehab you had. Was there some physical, occupational and cognitive therapy? These are all important in stroke recovery. What about your speech – any slurred speech, difficulty with word-finding, etc.?

I can appreciate your comment that this is "a hard pill to swallow at 40" but I am glad that you added that you have a great support system – how important!

I look forward to hearing from you again, Jenessa. I appreciate your efforts to be conscientious and diligent to care for yourself.

Teresa

Liked by lilacs1978

@hopeful33250

@lilacs1978 Hello Jenessa

I would like to join Colleen @colleenyoung in applauding you for all of your efforts to track your symptoms and problems. You are doing a great job keeping track of what is happening to you. Being prepared in this way gives your medical team a lot of information to work with and helps them to do their job better.

As Colleen asked, I would also be interested in knowing what type of stroke rehab you had. Was there some physical, occupational and cognitive therapy? These are all important in stroke recovery. What about your speech – any slurred speech, difficulty with word-finding, etc.?

I can appreciate your comment that this is "a hard pill to swallow at 40" but I am glad that you added that you have a great support system – how important!

I look forward to hearing from you again, Jenessa. I appreciate your efforts to be conscientious and diligent to care for yourself.

Teresa

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I’m sorry I didnt Address this in my haccount beginning. I had no rehab after….only because I only has weakness on my left side and over time my speech was all right. They attribute that to my age at the time (38) however all this newness has started in the last 5 weeks causing me deep concern ~ I want The best life I can…

@lilacs1978

I can understand that you want the best life possible, Janessa! You are probably already getting a list of questions ready for your next appointment and I would add the topic of stroke rehab in addition to the new symptoms you are experiencing.

I hope that your appointment goes well. I look forward to hearing from you again.

Best wishes,

Teresa

Liked by lilacs1978

My first question is "Are you still driving?" The next one is "Will someone take you to your appointment?" Having a good support system/team can be one of the best things we can have. Yes, you have every right to be scared, strokes are not something I would want my worst enemy to have, well……maybe. I had two strokes the first one in November of 2014, the second in December of 2014. When I was discharged from the hospital in January of 2015 the doctors didn't know if I needed Hospice or Palliative Care. I spent two months in rehab came home to live by myself and I'm still living by myself.

Have you noticed your blood pressure higher in the early morning? I understand that is normal. When you take your BP do you sit for about 5 minutes, take it, wait a minute or two, take it again, then do it a third time. Look at the 3 readings, throw out the high and low, keeping the one in the middle. This gives a more accurate reading. My highest BP was when I was having a migraine, so I wouldn't suggest taking your BP when you are having a migraine.

Keep as accurate records as you can. If someone is with you have them add to your records. If you feel comfortable having someone with you when you see the doctor you may want them to be with you. If you do not want someone with you, you may want to ask your doctor for a copy of your record. I'm always given a copy of my record when I leave.

I have never had some of the symptoms you have shared and I hope that your doctor can wave that magic wand and make everything better. If you feel your questions are not answered see if you can have a second opinion. Good luck.

mlmcg

@mlmcg

My first question is "Are you still driving?" The next one is "Will someone take you to your appointment?" Having a good support system/team can be one of the best things we can have. Yes, you have every right to be scared, strokes are not something I would want my worst enemy to have, well……maybe. I had two strokes the first one in November of 2014, the second in December of 2014. When I was discharged from the hospital in January of 2015 the doctors didn't know if I needed Hospice or Palliative Care. I spent two months in rehab came home to live by myself and I'm still living by myself.

Have you noticed your blood pressure higher in the early morning? I understand that is normal. When you take your BP do you sit for about 5 minutes, take it, wait a minute or two, take it again, then do it a third time. Look at the 3 readings, throw out the high and low, keeping the one in the middle. This gives a more accurate reading. My highest BP was when I was having a migraine, so I wouldn't suggest taking your BP when you are having a migraine.

Keep as accurate records as you can. If someone is with you have them add to your records. If you feel comfortable having someone with you when you see the doctor you may want them to be with you. If you do not want someone with you, you may want to ask your doctor for a copy of your record. I'm always given a copy of my record when I leave.

I have never had some of the symptoms you have shared and I hope that your doctor can wave that magic wand and make everything better. If you feel your questions are not answered see if you can have a second opinion. Good luck.

mlmcg

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Thank you for responding. I went to my Dr. Apt yesterday and he stated that first and foremost we need to get my migraines under control. He upped my dosage for my migraine medication and my anti depressant. He states I do not have the vascular Dementia but my severe and constant migraines are giving me the symptoms. This will be a process. I don't want another stroke so getting my migraines and blood pressure under control is key. I take my blood pressure usually a half hour after I have been up in the morning and in the evening before and after dinner or when and if I feel my bp needs to be checked if I feel off. I am very lucky for my support system, my best friend is an Operating room RN and my boyfriend is very supportive and loving. I am trying to stay positive and find things that make me relax and happy, it is hard at times though because each day I find it difficult to live with these migraines and it feels like more is going on than the Dr. Understands. I know my body and something is really off. I will do as he says and take my meds/water/relax etc. Thank you again~!

@hopeful33250

@lilacs1978

I can understand that you want the best life possible, Janessa! You are probably already getting a list of questions ready for your next appointment and I would add the topic of stroke rehab in addition to the new symptoms you are experiencing.

I hope that your appointment goes well. I look forward to hearing from you again.

Best wishes,

Teresa

Jump to this post

Thank you for your kind words! I have a follow up response from my dr visit yesterday under @mlmcg below~ hugs!

@mlmcg

My first question is "Are you still driving?" The next one is "Will someone take you to your appointment?" Having a good support system/team can be one of the best things we can have. Yes, you have every right to be scared, strokes are not something I would want my worst enemy to have, well……maybe. I had two strokes the first one in November of 2014, the second in December of 2014. When I was discharged from the hospital in January of 2015 the doctors didn't know if I needed Hospice or Palliative Care. I spent two months in rehab came home to live by myself and I'm still living by myself.

Have you noticed your blood pressure higher in the early morning? I understand that is normal. When you take your BP do you sit for about 5 minutes, take it, wait a minute or two, take it again, then do it a third time. Look at the 3 readings, throw out the high and low, keeping the one in the middle. This gives a more accurate reading. My highest BP was when I was having a migraine, so I wouldn't suggest taking your BP when you are having a migraine.

Keep as accurate records as you can. If someone is with you have them add to your records. If you feel comfortable having someone with you when you see the doctor you may want them to be with you. If you do not want someone with you, you may want to ask your doctor for a copy of your record. I'm always given a copy of my record when I leave.

I have never had some of the symptoms you have shared and I hope that your doctor can wave that magic wand and make everything better. If you feel your questions are not answered see if you can have a second opinion. Good luck.

mlmcg

Jump to this post

Hello @lilacs1978

I do so appreciate the update! It sounds like you received some helpful ideas from your doctor! That is good.

I can imagine how difficult it must be to deal with migraines, etc. Have you ever visited the American Migraine Foundation?
Here is a link to their website. https://americanmigrainefoundation.org/ You might find some helpful information there.

Have you ever tried walking in water? It is a very gentle exercise and very relaxing. There are many Members on Connect (including myself) who are big proponents of water walking. I'm going to invite @contentandwell to discuss this as well. Please check with your doctor before starting this or another exercise program.

By the way, are there any stroke support groups in your area? Often they are part of senior centers. While I realize you are still younger than most stroke survivors you might find their information helpful as well.

I look forward to hearing from you again. I hope you begin to improve.

Teresa

@mlmcg

My first question is "Are you still driving?" The next one is "Will someone take you to your appointment?" Having a good support system/team can be one of the best things we can have. Yes, you have every right to be scared, strokes are not something I would want my worst enemy to have, well……maybe. I had two strokes the first one in November of 2014, the second in December of 2014. When I was discharged from the hospital in January of 2015 the doctors didn't know if I needed Hospice or Palliative Care. I spent two months in rehab came home to live by myself and I'm still living by myself.

Have you noticed your blood pressure higher in the early morning? I understand that is normal. When you take your BP do you sit for about 5 minutes, take it, wait a minute or two, take it again, then do it a third time. Look at the 3 readings, throw out the high and low, keeping the one in the middle. This gives a more accurate reading. My highest BP was when I was having a migraine, so I wouldn't suggest taking your BP when you are having a migraine.

Keep as accurate records as you can. If someone is with you have them add to your records. If you feel comfortable having someone with you when you see the doctor you may want them to be with you. If you do not want someone with you, you may want to ask your doctor for a copy of your record. I'm always given a copy of my record when I leave.

I have never had some of the symptoms you have shared and I hope that your doctor can wave that magic wand and make everything better. If you feel your questions are not answered see if you can have a second opinion. Good luck.

mlmcg

Jump to this post

@hopeful33250 @lilacs1978 I too was a horrible migraine sufferer, and my daughter is now. My mother was also. I never heard of water walking to help but it does not surprise me. if we up at the lake when I got one I found floating on my back tremendously soothing. Unfortunately, the relief did not last for long after getting out of the water, but for those moments it was bliss. Not only was it relaxing but the cool water just felt so good.

How frequently do you get your migraines? Mine were definitely hormone related, and they are the most difficult to get relief from because there is a real chemical/hormonal cause. I also found that eating certain things would either guarantee a migraine or make one worse — chocolate, onions, pickles, and I forget what else. It took me a long time to finally admit that chocolate was a problem, but I could eat white chocolate – even the real white chocolate, not just the white confection that has no actual cocoa butter in it. Now that I can eat regular chocolate I love it and have a bit daily — sometimes more than a bit. ;-(

I do a lot of pool walking now, this morning I did a water aerobics class for an hour, and then did my own water walking for another half hour. I am pretty vigorous so it probably would not be as good for migraine but I definitely imagine doing it at a slower pace would help. Thankfully there seem to medications these days that do provide relief although I know from my daughter that they do not always. It is better though than when I had migraines that lasted three days, occasionally four.
JK

@mlmcg

My first question is "Are you still driving?" The next one is "Will someone take you to your appointment?" Having a good support system/team can be one of the best things we can have. Yes, you have every right to be scared, strokes are not something I would want my worst enemy to have, well……maybe. I had two strokes the first one in November of 2014, the second in December of 2014. When I was discharged from the hospital in January of 2015 the doctors didn't know if I needed Hospice or Palliative Care. I spent two months in rehab came home to live by myself and I'm still living by myself.

Have you noticed your blood pressure higher in the early morning? I understand that is normal. When you take your BP do you sit for about 5 minutes, take it, wait a minute or two, take it again, then do it a third time. Look at the 3 readings, throw out the high and low, keeping the one in the middle. This gives a more accurate reading. My highest BP was when I was having a migraine, so I wouldn't suggest taking your BP when you are having a migraine.

Keep as accurate records as you can. If someone is with you have them add to your records. If you feel comfortable having someone with you when you see the doctor you may want them to be with you. If you do not want someone with you, you may want to ask your doctor for a copy of your record. I'm always given a copy of my record when I leave.

I have never had some of the symptoms you have shared and I hope that your doctor can wave that magic wand and make everything better. If you feel your questions are not answered see if you can have a second opinion. Good luck.

mlmcg

Jump to this post

Thanks, @contentandwell, I was actually thinking about the water-walking as a way to exercise for the blood pressure problems not actually the migraines. It is interesting to know that floating on your back did offer you some relief though.

@kathyec and @sandytoes have also mentioned migraines. Perhaps they will join in this conversation as well.

Teresa

@mlmcg

My first question is "Are you still driving?" The next one is "Will someone take you to your appointment?" Having a good support system/team can be one of the best things we can have. Yes, you have every right to be scared, strokes are not something I would want my worst enemy to have, well……maybe. I had two strokes the first one in November of 2014, the second in December of 2014. When I was discharged from the hospital in January of 2015 the doctors didn't know if I needed Hospice or Palliative Care. I spent two months in rehab came home to live by myself and I'm still living by myself.

Have you noticed your blood pressure higher in the early morning? I understand that is normal. When you take your BP do you sit for about 5 minutes, take it, wait a minute or two, take it again, then do it a third time. Look at the 3 readings, throw out the high and low, keeping the one in the middle. This gives a more accurate reading. My highest BP was when I was having a migraine, so I wouldn't suggest taking your BP when you are having a migraine.

Keep as accurate records as you can. If someone is with you have them add to your records. If you feel comfortable having someone with you when you see the doctor you may want them to be with you. If you do not want someone with you, you may want to ask your doctor for a copy of your record. I'm always given a copy of my record when I leave.

I have never had some of the symptoms you have shared and I hope that your doctor can wave that magic wand and make everything better. If you feel your questions are not answered see if you can have a second opinion. Good luck.

mlmcg

Jump to this post

@hopeful33250 BP problems are something I have not had, yet. I’m sort of border now though.
When I had cirrhosis I felt positively smug because my BP was great, and then I found out after transplant that cirrhosis tends to make your BP lower.
JK

Finding out that what you thought was dementia but migraines could help relieve the pressure you were under, thinking you were loosing your mind, but not the pain of a migraine. Migraines can run in the family, my mother had them. I began having what I knew were not regular headaches so I had them checked out and I was having migraines, not the miserable kind, I call them baby migraines. I found heat helped me. They would start around my right eye and work their way to the back of my head and that was it. When I went to the migraine clinic I found Bengay really helped by putting it on my forehead, today I might wake up with the back of head/neck hurting. I turn the heating pad on low then after a few minutes I turn the pad off wait until it is cool and then it is time to get up. No pain.

Not many people have an OR RN as their best friend, you are very fortunate. Then having a compassionate male in your life means someone is watching over you. Relax…..relax…..and relax. The more you can relax and take your meds on schedule every day the better the chance of your BP can be under control…..low…..and lower.

I have found music is the best way to relax. If there are words I'll want to sing along or listen to the words. Quiet, soothing music, I do not know, in a darken room, in a comfortable chair works for me every time. I may fall asleep or just relax and not worry about anything. It may take a day or two before you really know if the new meds work. Continue to keep track of your BP. If you can take your BP before you relax for an hour, then take it again. Standing or sitting may make a difference. Good luck!

mlmcg

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