possible focal/partial or non-convulsive status epilepticus

Posted by Leonard @jakedduck1, Oct 14 8:32pm

I have been having lightheadedness now for 2 1/2 hours. I’m wondering if I may be having a Focal Aware seizure. Previously known as a simple partial.
This type of seizure usually only last a couple minutes. If it is in fact a seizure I’m wondering if it’s nonconvulsive status epilepticus.
Has anybody ever had a Focal/partial or any other type of nonconvulsive status epilepticus? Any and all information appreciated.
Anyone have any other ideas?
Thank you for your help,
Jake

Ummm .. I hope you are feeling better Jake???? That is a yukky feeling. Pretty simple… But could you be dehydrated??? I know you will see the doc if you don't start feeling better??? Right??? Jake, please Keep us posted. Thank you Casey.

Liked by Leonard

REPLY

Jake do you need some help, ie.. 911?

Liked by Leonard

REPLY

@caseybach
Hello Casey,
No I’m not dehydrated because I donate platelets and plasma tomorrow so three days before that I have to drink a lot of fluids so I’ve been pushing fluids big time awful as they are. if I remember correctly this is similar to what I had a while back and I stop by the neurologist and he said it was focal seizures so I’m just curious if that’s what this is to however this is lasting a lot longer. I think it’s been about three hours now and that’s a very long time for I see you should’ve last. Normal seizures don’t last that long that’s why I’m wondering if it’s status. The scary part is that nonconvulsive status can last months. So I hope it’s not that.
Take care, I appreciate you writing.
Jake

REPLY
@jakedduck1

@caseybach
Hello Casey,
No I’m not dehydrated because I donate platelets and plasma tomorrow so three days before that I have to drink a lot of fluids so I’ve been pushing fluids big time awful as they are. if I remember correctly this is similar to what I had a while back and I stop by the neurologist and he said it was focal seizures so I’m just curious if that’s what this is to however this is lasting a lot longer. I think it’s been about three hours now and that’s a very long time for I see you should’ve last. Normal seizures don’t last that long that’s why I’m wondering if it’s status. The scary part is that nonconvulsive status can last months. So I hope it’s not that.
Take care, I appreciate you writing.
Jake

Jump to this post

I’m not quite sure what to do since I live alone and I have a history of convulsive status epilepticus I just hope this doesn’t turn in to that since it’s a dangerous medical emergency. I think I’ll call my brother and have him call me every so often just to make sure I am conscious.
Jake

REPLY
@jakedduck1

I’m not quite sure what to do since I live alone and I have a history of convulsive status epilepticus I just hope this doesn’t turn in to that since it’s a dangerous medical emergency. I think I’ll call my brother and have him call me every so often just to make sure I am conscious.
Jake

Jump to this post

Jake, I think calling you brother is a positive step but I think you should call 911 or have your brother drive you to the emergency room.

You are a describing a change in symptoms and this should be taken seriously.

Jake- Will you please let us know what you decide to do?

REPLY

So tough!!! But that's a good idea to make your.brother aware. Lifting you up tonight, again… Please keep us updated.

REPLY

@erikas
I’m taking it serious all right but I think it might be a little early to call 911. I called a friend of mine and she’s going to come and spend the night with me so that makes me feel a lot better. at least she can check on me every so often and make sure I didn’t go into convulsive status if this is indeed a seizure.
Thank you guys for being there that means a lot,
Jake

REPLY
@jakedduck1

@caseybach
Hello Casey,
No I’m not dehydrated because I donate platelets and plasma tomorrow so three days before that I have to drink a lot of fluids so I’ve been pushing fluids big time awful as they are. if I remember correctly this is similar to what I had a while back and I stop by the neurologist and he said it was focal seizures so I’m just curious if that’s what this is to however this is lasting a lot longer. I think it’s been about three hours now and that’s a very long time for I see you should’ve last. Normal seizures don’t last that long that’s why I’m wondering if it’s status. The scary part is that nonconvulsive status can last months. So I hope it’s not that.
Take care, I appreciate you writing.
Jake

Jump to this post

Jake, I just appreciate you, you are super knowledgeable & you have a huge heart. Would hate to see you get into trouble. Thank you Casey.

REPLY

@caseybach
Super knowledgeable? Thanks I needed a laugh.
My friend is here now and I told her to call 911 if I start to convulse just in case it’s Status.
It's been going on for almost 5 hours now.
Jake

REPLY

@caseybach
My blood pressure and heart rate have been up for quite a while which could indicate seizure activity but so could many other things. I guess I need to wise up and stop trying to diagnose myself.
Jake

REPLY
@jakedduck1

@caseybach
My blood pressure and heart rate have been up for quite a while which could indicate seizure activity but so could many other things. I guess I need to wise up and stop trying to diagnose myself.
Jake

Jump to this post

@jakedduck1 I'm happy to hear that you had a friend monitor you.

I see that your blood pressure is up.

What are you next steps?

Liked by Leonard

REPLY
@jakedduck1

@caseybach
My blood pressure and heart rate have been up for quite a while which could indicate seizure activity but so could many other things. I guess I need to wise up and stop trying to diagnose myself.
Jake

Jump to this post

I hope you got some sleep. It's a new day 😊. Please go see what the doc. has to say??? I know sometimes those visits are a waist of time & money. But….you really don't know what is going on & that is a scary position to be in & it does not seem like it is going away??? Mom 😉😉😉

REPLY
@erikas

@jakedduck1 I'm happy to hear that you had a friend monitor you.

I see that your blood pressure is up.

What are you next steps?

Jump to this post

@erikas
My night was uneventful other than some nausea and increased heart rate and blood pressure and this morning the light headedness seems to be better but can't walk without a walker and even then I occasionally take a tumble.
Now I am wondering if it may be an Ataxia of some sort. If so it's different from the Ataxia I was hospitalized for some years ago.
Jake

REPLY
@caseybach

I hope you got some sleep. It's a new day 😊. Please go see what the doc. has to say??? I know sometimes those visits are a waist of time & money. But….you really don't know what is going on & that is a scary position to be in & it does not seem like it is going away??? Mom 😉😉😉

Jump to this post

@caseybach
Oh good grief Mom. Ok I'll call her. It will probably be a waste of time though. She probably won’t know much more about it than I do, well she might know a little more, maybe.
Take care,
Jake

REPLY

Thank you 😊

Liked by Leonard

REPLY
Please login or register to post a reply.