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Positive vibes ONLY thread

Posted by nannygoat5 @nannygoat5, Apr 27, 2025

POV: I’m often left stressed and scared after reading this forum. It occurred to me that most of the people posting here have had bad experiences and wonder if people who have good experiences aren’t on a forum? I was listening to a podcast and the person casually threw out that she had OP and had a year of a certain medication NBD all good. She’s not a spokesperson for drugs and it was good to hear. If 75% of women have osteoporosis/penia surely there are good results out there? My PT, Dr and my endo were all like why are you so upset? You’ll be fine! But after I spend time here I’m faced with gloom and doom and feel awful. Hit me with your good stuff!

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gravity3 | @gravity3 | 4 days ago
In reply to @sebutler "@chrisdietrich That's my fervent hope, but my rheumatologist (before getting these latest results) said that one..." + (show)
Profile picture for sebutler @sebutler

@chrisdietrich That's my fervent hope, but my rheumatologist (before getting these latest results) said that one year indeed is possible with a bisphosonate -- she has seen that with other patients. So I'm still keeping my fingers crossed. I believe the standard protocol is 3 years, so that may be why your doc is quoting that number.

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@sebutler

3 years for what?

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sebutler | @sebutler | 4 days ago

My rheumatologist told me that she generally recommends three years on Reclast after two years on Tymlos.

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kplex | @kplex | 3 days ago
In reply to @sebutler "Positive vibes: I have been on Tymlos for two years, with great results. At the start,..." + (show)
Profile picture for sebutler @sebutler

Positive vibes: I have been on Tymlos for two years, with great results. At the start, my spine was -3.7, femur neck -3.7, hip -3.5. My latest DXA: spine -1.8 (!!!), femur neck -2.7, hip -2.5. I am thrilled with the results -- even the femur neck close to osteopenia instead of osteoporosis. I had chosen Tymlos over Forteo because I travel a lot and feared I wouldn't be able to keep Forteo refrigerated, as required. Still, I was really terrified of taking Tymlos because of reported side effects. But all went well. Minimal side effects (just brief increase in heart rate), no hassle with injections. I will now go on Fosamax for 1 year (I am hoping!) to ensure no new bone gets reabsorbed and hope to gain some new bone in my hip and femur neck. Tymlos is not supposed to work as well the second year (even the drug company's own website shows this), but that was not my experience. I had just as good results the second year. I have been exercising regularly (treadmill for the impact that is supposed to help bone grow plus weight lifting for strengthening) plus having lots of calcium (I am a milk drinker, so that is easy). Perhaps that helped improve my results. Anyway, just sharing the good news for those who are fearful, as I was, of all these OP drugs.

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@sebutler what kind of weight lifting did you do? I have been walking and some light weights and hoping for gains showing in my first DEXA soon

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nannygoat5 | @nannygoat5 | 3 days ago
In reply to @kplex "@sebutler what kind of weight lifting did you do? I have been walking and some light..." + (show)
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@sebutler what kind of weight lifting did you do? I have been walking and some light weights and hoping for gains showing in my first DEXA soon

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@kplex I work with a personal trainer and do lots over head presses, triceps weights and back strengthening free weights. Lunges etc. crunches and forward falls are bad as are chest flies (so I’ve been told)

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sebutler | @sebutler | 3 days ago
In reply to @kplex "@sebutler what kind of weight lifting did you do? I have been walking and some light..." + (show)
Profile picture for kplex @kplex

@sebutler what kind of weight lifting did you do? I have been walking and some light weights and hoping for gains showing in my first DEXA soon

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@kplex Nothing special. Recently, I've been doing free weights with overhead presses, split lunges, and dead lifts. Before, I was doing rows -- on weight machines -- and doing planks and side planks. When the spirit moves me, I do glute bridges, bird dog, and dead bug. In general, a variety of stuff because I get bored! While I am waiting for my morning coffee to heat up, I jump up and down or do heel drops -- somewhere I read these could help strengthen the femoral neck, which is my weakest spot, and the moves don't take much effort.

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kplex | @kplex | 2 days ago

I will share my results…first dexa is coming up after a year of Tymlos. Fingers crossed

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sequoia | @sequoia | 2 days ago
In reply to @nannygoat5 "Well there are plenty of negative posts on here so that’s obviously available. I’d like to..." + (show)
Profile picture for nannygoat5 @nannygoat5

Well there are plenty of negative posts on here so that’s obviously available. I’d like to hear from people with good results and experiences. If there aren’t positive outcomes what is the point?Thanks!

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@nannygoat5 The comments are not necessarily negative, as you learn (knowledge) what works and doesn’t work for some. Everyone (body) is different, so even if a poster writes a positive comment - it doesn’t mean it will work for you. It is All information to use as knowledge.

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leslieb52 | @leslieb52 | 2 days ago
In reply to @kplex "I will share my results…first dexa is coming up after a year of Tymlos. Fingers crossed" + (show)
Profile picture for kplex @kplex

I will share my results…first dexa is coming up after a year of Tymlos. Fingers crossed

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@kplex legs, arms, fingers and eyes crossed for yiu.

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nannygoat5 | @nannygoat5 | 2 days ago
In reply to @sequoia "@nannygoat5 The comments are not necessarily negative, as you learn (knowledge) what works and doesn’t work..." + (show)
Profile picture for sequoia @sequoia

@nannygoat5 The comments are not necessarily negative, as you learn (knowledge) what works and doesn’t work for some. Everyone (body) is different, so even if a poster writes a positive comment - it doesn’t mean it will work for you. It is All information to use as knowledge.

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@sequoia right. And lots of other places in this forum to post things of that nature. I think a post of what IS working is a worthy post as well. Especially for people recently diagnosed this forum can be scary because people tend to only post when things are not working. When things are working people move on from posting

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