Positive vibes ONLY thread

Posted by nannygoat5 @nannygoat5, Apr 27, 2025

POV: I’m often left stressed and scared after reading this forum. It occurred to me that most of the people posting here have had bad experiences and wonder if people who have good experiences aren’t on a forum? I was listening to a podcast and the person casually threw out that she had OP and had a year of a certain medication NBD all good. She’s not a spokesperson for drugs and it was good to hear. If 75% of women have osteoporosis/penia surely there are good results out there? My PT, Dr and my endo were all like why are you so upset? You’ll be fine! But after I spend time here I’m faced with gloom and doom and feel awful. Hit me with your good stuff!

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

awesomemomx2 | @awesomemomx2 | 4 days ago

In reply to @nannygoat5 "Just to update on my original thread- my numbers improved!!!! I insisted on a follow-up DEXA..." + (show)

@nannygoat5 That is marvelous.

gently | @gently | 4 days ago

In reply to @nannygoat5 "Just to update on my original thread- my numbers improved!!!! I insisted on a follow-up DEXA..." + (show)

@nannygoat5, Cheers to your success! Thanks for the good news.

nannygoat5 | @nannygoat5 | 4 days ago

In reply to @gently "@nannygoat5, Cheers to your success! Thanks for the good news." + (show)

@gently

Good things are possible and an osteoporosis diagnosis isn’t always the worst thing even if it’s scary!

leslieb52 | @leslieb52 | 4 days ago

Thanks for calling out the good things and Prolia has worked. My doctor put me on an internet fast because I was going down rabbit holes.
She gave me a mantra, that I am more afraid of fractures and broken bones then possible side effects of Prolia. My doctor and I have a rebound plan if anything develops.
Wish me luck and send me good vibes. I will send them back to you.
Bless you all.

niifty1 | @niifty1 | 4 days ago

I had two years of daily Tymlos injections--a little nausea the first few weeks.
Overall it was a good experience and resulted in density gains. A month after that regimen ended—I had my first Reclast infusion. Infusion was two months ago and so far the only side effect was a headache the next day. I did ask for a 30 minute infusion and my endocrinologist did recommend the Tylenol/antihistamine protocol I had seen mentioned on this blog. I just want to add a word of encouragement—that not everyone experiences severe side effects.

janism | @janism | 4 days ago

Good stuff--Age 68, single-mothering 2 kids, full time teaching, did a course of Tymlos and now on Evenity. No side effects, improved numbers. I just signed up at the local Y so that, having paid a bunch of money, I'll actually exercise. I always thought that if i needed to exercise I would be motivated enough to do it at home on my own. Wrong!

So far, everything working as it is supposed to. Just posting this to add to positive vibes.

ritcheyn | @ritcheyn | 4 days ago

Everyone's journey is different yet we all have the same goal of living our best life. There's a spectrum of reactions from total disbelief to complete fear - sometimes in the same hour ;). Disconnect from the group as needed, only read the relevant threads.
A positive, realistic, attitude goes a long way to improve our situation & allows us to find solutions that work for us.
I'm still looking for the regimen that works for me, that I'll enjoy enough to continue. This group gives me ideas to explore.
You've got this!!!!

sebutler | @sebutler | 4 days ago

Positive vibes: I have been on Tymlos for two years, with great results. At the start, my spine was -3.7, femur neck -3.7, hip -3.5. My latest DXA: spine -1.8 (!!!), femur neck -2.7, hip -2.5. I am thrilled with the results -- even the femur neck close to osteopenia instead of osteoporosis. I had chosen Tymlos over Forteo because I travel a lot and feared I wouldn't be able to keep Forteo refrigerated, as required. Still, I was really terrified of taking Tymlos because of reported side effects. But all went well. Minimal side effects (just brief increase in heart rate), no hassle with injections. I will now go on Fosamax for 1 year (I am hoping!) to ensure no new bone gets reabsorbed and hope to gain some new bone in my hip and femur neck. Tymlos is not supposed to work as well the second year (even the drug company's own website shows this), but that was not my experience. I had just as good results the second year. I have been exercising regularly (treadmill for the impact that is supposed to help bone grow plus weight lifting for strengthening) plus having lots of calcium (I am a milk drinker, so that is easy). Perhaps that helped improve my results. Anyway, just sharing the good news for those who are fearful, as I was, of all these OP drugs.

chrisdietrich | @chrisdietrich | 4 days ago

In reply to @sebutler "Positive vibes: I have been on Tymlos for two years, with great results. At the start,..." + (show)

@sebutler thanks for sharing, great results!!! I have been on Tymlos for 3 months now with very little to no side effects, still getting over a compression fracture that has limited my gym time but doing what I can to work through it.
I had -2.9 in Spine -1.8 in Femur. Being 66 and very avid bike racer and skier hoping i can get back to life in a few years.
Did your Doctor tell you 1 year of follow up Meds or is that your decsion, just would like to know since I am being told 3-5 years of follow up meds. I have no other health issues. The only Medication I take is the Tymlos!
Thanks again and Congrats!!!

sebutler | @sebutler | 4 days ago

In reply to @chrisdietrich "@sebutler thanks for sharing, great results!!! I have been on Tymlos for 3 months now with..." + (show)

@chrisdietrich That's my fervent hope, but my rheumatologist (before getting these latest results) said that one year indeed is possible with a bisphosonate -- she has seen that with other patients. So I'm still keeping my fingers crossed. I believe the standard protocol is 3 years, so that may be why your doc is quoting that number.