Polycythemia Vera and Nutritional Ketosis

Posted by chadknudson @chadknudson, Mar 26, 2018

I was diagnosed with Polycythemia Vera several years ago and my treatment regiment has been regular phlebotomies (generally about every four weeks.) I needed to drop some weight so I started a diet plan that would put me in nutritional ketosis. I do not know if the two are related, but I was able to go five months without a phlebotomy. It may just be a coincidence, where I might be stabilizing after the first few years, but I just wanted to pass this along in case it sparked any thoughts from others.

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sunshine2344 | @sunshine2344 | Feb 11 5:22pm

Hi. I also was diagnosed with polycythemia Vera JAK2. 2 years ago. I have never done nor plan to go on medication etc. I have been trying to keep my levels down. HCT. I have to have therapeutic phlebotomy also monthly. But I eat a Mediterranean diet and take a regimen of whole food supplements (. BY chiropractor)
A year ago I was doing a detox and for 21 days I guess I was doing keto (lots of veggies, fish. Salmon etc) low carb
My levels were fabulous
I also have hepatitis C which was from a transfusion long time ago. Never had any problems till recently it is now showing but when I did ketosis it went way down
Bottom Line I am going to try again to see if that may work in my favor as well.
Have your iron been low with all the phlebotomy? Mine has been but my last draw was normal. Yea.
Hope you respond and keep me up to date. Thank you for information that seems to be working for you