Polymyalgia rheumatica

Posted by barbararene @barbararene, Feb 13, 2017

I have been diagnosed w poly myalgia rheumatica (pmr). Am taking 5 mg of predisone, was taking 10mg.
Every time I go on a low dose, symptoms come back. I can’t take pain meds, but do drink wine to ease pain, although I’m told no alcohol w prednisone. Anything you can share as far as info

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I am on 60 mg of predizone and bacterium 3 days a week. I have calcium,b12,b3,and magnesium to take I feel that I am not catching my breath back on some days but some days I can stand up and breath. I don't like that they gave me a low score from the government due to my information and that the government decides for mayo clinic.that is what blew me away and now I want a second opinion

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Hi John — yes to PMR diagnosis. Started 20 mg twice/day prednisone on 9/6. CRP was 30; now 1. Doc wants me to stay on dosage level for additional 2 wks to see a drop in Sed rate.

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@igolf

Hi John — yes to PMR diagnosis. Started 20 mg twice/day prednisone on 9/6. CRP was 30; now 1. Doc wants me to stay on dosage level for additional 2 wks to see a drop in Sed rate.

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Hi @igolf, Hopefully the SED rate drops when you have the next test done!

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@kp5450121

I am on 60 mg of predizone and bacterium 3 days a week. I have calcium,b12,b3,and magnesium to take I feel that I am not catching my breath back on some days but some days I can stand up and breath. I don't like that they gave me a low score from the government due to my information and that the government decides for mayo clinic.that is what blew me away and now I want a second opinion

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@kp5450121 Can you tell me some more about your lung disease? How long have you had it? Who suggested a lung transplant?

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@charlena

My husband is still on prednisone, it’s been nearly 2 years. He has tried several times to decrease, but has always had to go back to initial doseage.
He is again trying a reduced doseage. Do you mind telling us what your symptoms are?
At his last doctor visit as the doctor was going over his symptoms, etc. he made the statement, “….. polymylagia rheumatica, if that is what you have, . .. .” Needless to say, we weren’t happy with that statement. Another of his doctors advises that my husband’s symptoms are not like any symptoms of patients he sees that have polymyalgia rheumatica. I research daily on my husband’s symptoms and when I mention to his rheumatologist he doesn’t seem interested in other possibilities. Probably time for a new doctor.

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If you go to the Heathunlocked.com and type in PMR/GCA you will find.
A Wealth of information about these issues

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Agreed. They are bossy and forthright, but you will learn so much.

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