PMR and exercise: What helps you?

Posted by jcaffrey47 @jcaffrey47, Jul 17, 2021

We are told that we have to stay active but what does that mean? This issue became very real for me when I attempted to swim the crawl stroke in the swimming pool. I was feeling pretty good at the time. The prednisone had kicked in and I swam the equivalent of two laps. The next day my shoulders were on fire and I was suffering a full flare; my first. Maybe everyone reading this will say that I was foolish to do any exercise that involve my shoulders and that I should limit my exercise to other parts of the body like walking or maybe biking. Let’s start a dialogue and find out what exercises work for all of us.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@scpartain

My first bout of PMR occurred fourteen years ago at age 62. At the time, I had decided to intensify my exercise program from a simple walk in the evening to a more vigorous regimen of power walking and stair climbing at the local high school track and football stadium. Not very long after I began this program I was struck by incapacitating pain in my neck, shoulders, hips and legs, which I believed was brought on by the increased exercise. After various doctor visits and months of prednisone treatment, the PMR resolved and I was able to resume a milder exercise program. I remained in remission until 2021, when, after my first Covid vaccination, I experienced a second debilitating flare of PMR and was treated again with prednisone. After months of treatment, I finally achieved remission again and was able to discontinue the prednisone. The rheumatologist's parting advice to me was to avoid intense exercise, especially stair climbing. I am now 76 and have remained in remission from my latest flare for one year. My exercise regime consists of thirty minutes of daily walking at a moderate pace.

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Thanks for sharing this. I am just beginning this PMR journey and this is one of my many challenges to work out. I am (was) an avid golfer …walking our very hilly course at a fast pace. Since developing PMR I have been very limited re playing golf and have to ride the cart. I have been wondering about how much walking i should be doing to replace this. I will see how I do with half hour a day.

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@elizabethjoan

Thanks for sharing this. I am just beginning this PMR journey and this is one of my many challenges to work out. I am (was) an avid golfer …walking our very hilly course at a fast pace. Since developing PMR I have been very limited re playing golf and have to ride the cart. I have been wondering about how much walking i should be doing to replace this. I will see how I do with half hour a day.

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With PMR it's a balancing act. Movement is helpful for pain and stiffness but too much exercise can exacerbate the symptoms. When my PMR was active I was able to stroll about thirty minutes most days, but I had to avoid strenuous activity. Best of luck with your journey and I hope you are able to achieve remission soon.

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@scpartain

My first bout of PMR occurred fourteen years ago at age 62. At the time, I had decided to intensify my exercise program from a simple walk in the evening to a more vigorous regimen of power walking and stair climbing at the local high school track and football stadium. Not very long after I began this program I was struck by incapacitating pain in my neck, shoulders, hips and legs, which I believed was brought on by the increased exercise. After various doctor visits and months of prednisone treatment, the PMR resolved and I was able to resume a milder exercise program. I remained in remission until 2021, when, after my first Covid vaccination, I experienced a second debilitating flare of PMR and was treated again with prednisone. After months of treatment, I finally achieved remission again and was able to discontinue the prednisone. The rheumatologist's parting advice to me was to avoid intense exercise, especially stair climbing. I am now 76 and have remained in remission from my latest flare for one year. My exercise regime consists of thirty minutes of daily walking at a moderate pace.

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I contracted PMR after my second COVID vaccination in March 2021 (? coincidence?) I have been taking 1 mg. prednisone for several months now and tried stopping twice, but did experience the pain moving from my shoulders to my back and neck, so I am once again taking 1 mg. I've also wondered if the reason I still have some deltoid pain at night was because I lifted too many heavy things during the day. (BTW, I only experienced pain while lying down and rarely felt anything when upright!) I walk 4 to 5 miles per day in my plant nursery business and attend a senior swim class twice a week and also use a stationary bike every other day (this is because of my hip pain, which they say is my osteoarthritis). I'm still in denial about that and keep wishing that this pain will dissipate once I'm in remission from the PMR. My thigh pain went away after my first dose of prednisone and has never returned, even when I tapered off. My pain is confined to my deltoides now and it is very mild, when I do feel it at night. Hope this helps you.

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Thanks for sharing your PMR experiences. I hope you achieve remission soon. No one wants to be on prednisone.

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@scpartain

My first bout of PMR occurred fourteen years ago at age 62. At the time, I had decided to intensify my exercise program from a simple walk in the evening to a more vigorous regimen of power walking and stair climbing at the local high school track and football stadium. Not very long after I began this program I was struck by incapacitating pain in my neck, shoulders, hips and legs, which I believed was brought on by the increased exercise. After various doctor visits and months of prednisone treatment, the PMR resolved and I was able to resume a milder exercise program. I remained in remission until 2021, when, after my first Covid vaccination, I experienced a second debilitating flare of PMR and was treated again with prednisone. After months of treatment, I finally achieved remission again and was able to discontinue the prednisone. The rheumatologist's parting advice to me was to avoid intense exercise, especially stair climbing. I am now 76 and have remained in remission from my latest flare for one year. My exercise regime consists of thirty minutes of daily walking at a moderate pace.

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I find that exercise exasperates my inflammation.

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@paelwell

I find that exercise exasperates my inflammation.

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I am encouraged by so many of you that have been able to exercise without pain. Unfortunately, exercise even mildly, seems to increase my pain for the moment. I am working very hard to taper my prednisone but just had to increase back up to 20 mg following a few days of mild exercise. My pain is primarily in my hips and low back. This disease hits us all somewhat differently so I am very thankful for all of your shared experiences. It is very helpful to hear what has worked for you. Praying that remission is in our future!

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@sandiw77

I am encouraged by so many of you that have been able to exercise without pain. Unfortunately, exercise even mildly, seems to increase my pain for the moment. I am working very hard to taper my prednisone but just had to increase back up to 20 mg following a few days of mild exercise. My pain is primarily in my hips and low back. This disease hits us all somewhat differently so I am very thankful for all of your shared experiences. It is very helpful to hear what has worked for you. Praying that remission is in our future!

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Thanks, I have the same experience with exercise.

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@janiceem

I contracted PMR after my second COVID vaccination in March 2021 (? coincidence?) I have been taking 1 mg. prednisone for several months now and tried stopping twice, but did experience the pain moving from my shoulders to my back and neck, so I am once again taking 1 mg. I've also wondered if the reason I still have some deltoid pain at night was because I lifted too many heavy things during the day. (BTW, I only experienced pain while lying down and rarely felt anything when upright!) I walk 4 to 5 miles per day in my plant nursery business and attend a senior swim class twice a week and also use a stationary bike every other day (this is because of my hip pain, which they say is my osteoarthritis). I'm still in denial about that and keep wishing that this pain will dissipate once I'm in remission from the PMR. My thigh pain went away after my first dose of prednisone and has never returned, even when I tapered off. My pain is confined to my deltoides now and it is very mild, when I do feel it at night. Hope this helps you.

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Hi @janiceem, This may help you. I am down to 1 mg of prdnisone, which my rheumatologist told me to take for a month. He told me to go down to .5 mg for the following month.

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@tsc

Hi @janiceem, This may help you. I am down to 1 mg of prdnisone, which my rheumatologist told me to take for a month. He told me to go down to .5 mg for the following month.

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Thanks for the feedback. I've tried tapering off twice, but didn't do it just this way, so I'll give it a try with a lower dose and longer.

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I have managed to keep with my pre-PMR exercise routine and usually feel better after working out. I, too, swim, and some days I could tell I had really lost strength and stamina, but I keep at it, doing as much as I can, because I do not want to lose what I have been working so hard to accomplish for years. Everything I've read says exercise is one of the best coping mechanisms so I encourage you to keep at it. If swimming is too hard, try some water aerobic exercises. I also use an elliptical machine and do weight training. Good luck!

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