1. < Polymyalgia Rheumatica (PMR)

When in PMR remission: What's your experience with covid vaccine?

Posted by pacarolyn @pacarolyn, Oct 21, 2022

I have delayed getting any of the first Covid vaccines because I was waiting for the NOVAVAX vaccine that was more traditional in its development. It is now available and approved for use. Not many pharmacies have it but COSTCO does. Has anyone gotten this vaccine. What has been your experience so far. It requires two shots, no booster series mentioned but can be taken as a booster for other vax.
https://www.cdc.gov/vaccines/covid-19/info-by-product/novavax/index.html

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smj | @smj | Feb 19, 2023
In reply to @izzie1020 "I got my second Covid booster (4th shot in total) in May of 2022 - seven..." + (show)
@izzie1020

I got my second Covid booster (4th shot in total) in May of 2022 - seven days later I developed symptoms of PMR. Coincidence no one knows but I’m leery of getting anymore boosters. Just being careful of indoor crowds.

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I didn't get my second booster after experiencing PMR after my first one. I've just recovered from Covid (second time). Took Plaxovid for this one as it is being prescribed more often now. Felt like a cold and I was lacking energy but am doing fine now.

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bjeanthejellybean | @bjeanthejellybean | Feb 19, 2023
In reply to @izzie1020 "I got my second Covid booster (4th shot in total) in May of 2022 - seven..." + (show)
@izzie1020

I got my second Covid booster (4th shot in total) in May of 2022 - seven days later I developed symptoms of PMR. Coincidence no one knows but I’m leery of getting anymore boosters. Just being careful of indoor crowds.

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I haven't done much of anything since my relapse in August. I wear a N95 mask everywhere.
I don't believe your PMR is a coincidence at all.

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milld835 | @milld835 | Feb 20, 2023
In reply to @trietsch "I developed PMR over a year ago a week following my 1st covid booster vaccine. I..." + (show)
@trietsch

I developed PMR over a year ago a week following my 1st covid booster vaccine. I went from a healthy active person walking Approx 5 kilometres daily to not being able to stand up or take my weight on mu legs. Pain around my neck, shoulders pelvic girdle burning sensation in my feet, responded well to Prednisolone since Jan 2022. 3 attempts at tapering with relapses. I have found Chi Gong exercises helpful in easing the pain. Acupuncture and prescribed Chinese Medication of no help to me. I take Calcium and Vitamin D and had one course of Methotrexate x 4 weeks on advice of Rheumatologist . Diagnosis PMR directly related to the Covid vaccine. I declined 2 further vaccine boosters as I don’t know why my body reacted so bad to this vaccine and i hope further research will reveal why some people develop PMR after The Pfizer vaccination. I will never accept another Covid vaccine and prepared to accept the consequences. The vaccine did so much harm to me and many others but yet saved millions of lives. The vaccine companies now have a duty to invest heavily from their enormous profits to investigate/ research independently why some people are impacted negatively and not others.

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Same. Onset after first Covid vax May 2021 (although went undiagnosed at that time), escalated 10 days after second Covid vax August 2021 with same symptoms as you describe. This went on until December 2021 when I insisted upon blood work for RA. Inflammation markers were through the roof. Now-retired GP urgently referred me to a Neurologist here in Halifax. I was immediately put on 20 mg. Prednisone and still working through the PMR, now morphed to GCA and at 60 mg. These were Pfizer vaccines. Will never take another. Have never had a flu shot, or shingles. Previously completely well and on the move. Not so much at this time.

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