1. < Polymyalgia Rheumatica (PMR)
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PMR in cold or inclement weather

Posted by crhp194 @crhp194, Mar 2, 2020

Does any sufferer of PMR think that cold weather can kick off PMR? I have had giant cell arthritis in the chest for several years but PMR only once before. After being out in Florida cold (50-59 degrees) for about 4 hours and in 15mph wind on a boat for 1 hour I was extremely sore the next day but felt it was from walking on a beach and bending over. The pain and soreness continues and it makes sleeping difficult. Wondering if anyone has had this happen to them. Thank you to any who may respond.

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kmb181 | @kmb181 | Feb 20 10:15am
In reply to @tyman23 "@kmb181 I was redirected to your post after my weather inquiry. I’m also in NC and..." + (show)
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@kmb181 I was redirected to your post after my weather inquiry. I’m also in NC and wondering if Duke has you on or recommended actemra injections? My rheumatologist asked me if I was interested since I’ve also got GCA but I declined for now. I’m only a year in currently and on a prednisone taper. It started in my hips and lower back approx five years ago but I thought it was pain associated with lower back injury from many years ago. When it hit me in my head, neck and shoulders last April I knew something was off. Anyway, I’m curious to know what Duke is doing now for PMR patients and if they have any promising trials going on. Thank you!

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@tyman23 hello!
I am no longer seeing a Rheumatologist at Duke. I am currently seeing a Rheumatologist in Winston Salem, that I really like.
Dukes fees were outrageous, and the drive for me was to far.
I will say I was never offered any trials at Duke.
My current Rheumatologist has offered me the Actemra injections, and I decided to hold off for now. My body needed a break from injections, and steroids. Unfortunately long term steroids caused some issues with my stomach, and bone density. The price you pay for pain relief.
I am currently doing some research on places I can move to, with a drier climate, and less humidity.
I wish you luck in your PMR journey. I am happy to answer any more questions you have.

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