PMR in cold weather

Posted by crhp194 @crhp194, Mar 2, 2020

Does any sufferer of PMR think that cold weather can kick off PMR? I have had giant cell arthritis in the chest for several years but PMR only once before. After being out in Florida cold (50-59 degrees) for about 4 hours and in 15mph wind on a boat for 1 hour I was extremely sore the next day but felt it was from walking on a beach and bending over. The pain and soreness continues and it makes sleeping difficult. Wondering if anyone has had this happen to them. Thank you to any who may respond.

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Hi @crhp194 that is a very interesting question. Fellow PMR patients @johnbishop @jules11 and @virginiaj may have opinions or experience to share on this topic.

Has you pain abated at all since you posted?

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Thanks for the invite @ethanmcconkey. @crhp194, my PMR is currently in remission but when it was active the cold seemed to make my PMR a little worse. In my 2 occurrences of PMR I don't believe either was triggered by the cold though.

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@johnbishop

Thanks for the invite @ethanmcconkey. @crhp194, my PMR is currently in remission but when it was active the cold seemed to make my PMR a little worse. In my 2 occurrences of PMR I don't believe either was triggered by the cold though.

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Thank you, John.

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@ethanmcconkey

Hi @crhp194 that is a very interesting question. Fellow PMR patients @johnbishop @jules11 and @virginiaj may have opinions or experience to share on this topic.

Has you pain abated at all since you posted?

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Yes it has abated some but for 3 days, it was bad. First day better today but still not gone but bearable.

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Does anyone else find that the cooler weather is making them more stiff and achy? My tolerance for the cold seems to be lowering.

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@floridabonnie

Does anyone else find that the cooler weather is making them more stiff and achy? My tolerance for the cold seems to be lowering.

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Hi @floridabonnie, You are not alone! You will notice that we merged your discussion with an existing discussion on PMR and cold weather. My PMR is in remission now but when it was active the winter months seemed a little more difficult. I think that may be because cooler temperatures may cause us to be less active and being less active can make the joint pain a little worse (just my thoughts).

Do you using heating pads or add a little extra warm clothing?

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I do. This may sound funny to those of you who live up north, but I live in Florida. I am used to temperatures in the 80's. When it gets to 60 or below, I feel very cold. We keep our house at 78 degrees most of the year, when winter sets in we let it go to 73 degrees. But then we need to wear long pants and sweatshirts. I guess it is time for the down comforter. Yesterday was the first day it went into the 50's and my house was 68 degrees inside. My whole body ached almost like it did before I started prednisone. Today only my shoulders and neck are hurting, so I will try moving around more.

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I know that feeling also, my body is a human barometer. Damp weather makes me feel stiff.

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