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Please is there anyone diagnosed with chronic granulomatous disease?

Posted by samuedion @samuedion2665, Sep 25, 2023

Is there anyone diagnosed with chronic granulomatous disease? Associated with severe pain,. inflammation, and fistula in ano...

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sherocko | @sherocko | Nov 25, 2023
In reply to @colleenyoung "Welcome, @sherocko. You may also be interested in this related discussion: - Chronic granulomatous disease (CGD):..." + (show)
@colleenyoung

Welcome, @sherocko. You may also be interested in this related discussion:
- Chronic granulomatous disease (CGD): How to build the immune system?
https://connect.mayoclinic.org/discussion/granulomatous-disease/
It sounds like you had a long road to getting a diagnosis. What suggestions or treatment has your medical team offered for infection management? What steps do you take to prevent bacterial and fungal infections before they start?

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Hi Colleen, thank you for checking in. I have no information, no plan, no idea what I am dealing with at this point. I have a specialist appointment in March. Kind of left to my own thoughts for the time being. I appreciate the article and I will look at that.
Thank you again for reaching out.
Gayle

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