1. < Blood Cancers & Disorders

Please is there anyone diagnosed with chronic granulomatous disease?

Posted by samuedion @samuedion2665, Sep 25, 2023

Is there anyone diagnosed with chronic granulomatous disease? Associated with severe pain,. inflammation, and fistula in ano...

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

sherocko | @sherocko | Nov 25, 2023
In reply to @colleenyoung "Welcome, @sherocko. You may also be interested in this related discussion: - Chronic granulomatous disease (CGD):..." + (show)
@colleenyoung

Welcome, @sherocko. You may also be interested in this related discussion:
- Chronic granulomatous disease (CGD): How to build the immune system?
https://connect.mayoclinic.org/discussion/granulomatous-disease/

It sounds like you had a long road to getting a diagnosis. What suggestions or treatment has your medical team offered for infection management? What steps do you take to prevent bacterial and fungal infections before they start?

Jump to this post

Hi Colleen, thank you for checking in. I have no information, no plan, no idea what I am dealing with at this point. I have a specialist appointment in March. Kind of left to my own thoughts for the time being. I appreciate the article and I will look at that.
Thank you again for reaching out.
Gayle

REPLY
View MoreView Less
Please sign in or register to post a reply.