Pituitary tumor symptoms: joint, muscle and body aches

Posted by khauert @khauert, Jan 12, 2020

Hi. I am new to this. And not sure I’m in the right category. I was diagnosed with a pituitary tumor in November. However, I have been experiencing terrible joint, muscle and body aches for a year now. No doctor knows why and nobody can confirm its from the tumor. I’m frustrated and becoming very hopeless and depressed. Can anyone with a pituitary tumor relate to body pain?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) group.

My Pituitary tumor was pushing upward on the pituitary gland (according to the surgeon) my hips, knees and lower back were incredibly painful, zero energy, dizzy but vision was good, Soreness, dizzyness and fatigue ended immediately with surgery on 11/16/21.
Fluid oozing has stopped nose healing, sinus headache that Advil takes care of, Happy Camper!

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@captain1950

My Pituitary tumor was pushing upward on the pituitary gland (according to the surgeon) my hips, knees and lower back were incredibly painful, zero energy, dizzy but vision was good, Soreness, dizzyness and fatigue ended immediately with surgery on 11/16/21.
Fluid oozing has stopped nose healing, sinus headache that Advil takes care of, Happy Camper!

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Welcome, Captain. I'm sure others like @skhollandmt @astaingegerdm @kapple @cheryl1 will join me in welcoming you.

Wow, surgery is recently fresh for you and sounds like it was successful and provided immediate relief. How is your recovery from surgery going?

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@colleenyoung

Welcome, Captain. I'm sure others like @skhollandmt @astaingegerdm @kapple @cheryl1 will join me in welcoming you.

Wow, surgery is recently fresh for you and sounds like it was successful and provided immediate relief. How is your recovery from surgery going?

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I'm on the mend, I take an afternoon nap. Nose is healing, blood and fluid leakages stopped at about five days. My mind has to remind me not to lift or strain, off to see ear nose throat Doctor tomorrow, will drive myself. I was lucky no vision loss, dizziness and joint soreness gone, energy is slowly returning to this 71 year old.
The technical innovations, like "Stealth MRI" really reduce the risk and help get ALL of the Tumor, I would do it again, with way less concern about the "what ifs", based on this experience.

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@captain1950

I'm on the mend, I take an afternoon nap. Nose is healing, blood and fluid leakages stopped at about five days. My mind has to remind me not to lift or strain, off to see ear nose throat Doctor tomorrow, will drive myself. I was lucky no vision loss, dizziness and joint soreness gone, energy is slowly returning to this 71 year old.
The technical innovations, like "Stealth MRI" really reduce the risk and help get ALL of the Tumor, I would do it again, with way less concern about the "what ifs", based on this experience.

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Thank You Colleen!

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@captain1950

I'm on the mend, I take an afternoon nap. Nose is healing, blood and fluid leakages stopped at about five days. My mind has to remind me not to lift or strain, off to see ear nose throat Doctor tomorrow, will drive myself. I was lucky no vision loss, dizziness and joint soreness gone, energy is slowly returning to this 71 year old.
The technical innovations, like "Stealth MRI" really reduce the risk and help get ALL of the Tumor, I would do it again, with way less concern about the "what ifs", based on this experience.

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What is the stealth MRI? Are you referring to Tesla 3?

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@cheryl1

What is the stealth MRI? Are you referring to Tesla 3?

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The Stealth MRI creates a 3d image of your skull and tumor so they can avoid Carotid arteries and optic nerves, the
Surgeon used 3d googles to assist.

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@captain1950 – it sounds like your recovery is going well- very difficult surgery. My daughter had a cortisol producing pituitary adenoma removed 11 years ago. May I ask what type of pituitary tumor you had?

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@astaingegerdm

@captain1950 – it sounds like your recovery is going well- very difficult surgery. My daughter had a cortisol producing pituitary adenoma removed 11 years ago. May I ask what type of pituitary tumor you had?

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they said it was nonproducing, but since its removal my body feels much better and my energy is slowly returning, after a prolonged absence. The surgeon said it was crushing my pituitary upward!

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@captain1950

they said it was nonproducing, but since its removal my body feels much better and my energy is slowly returning, after a prolonged absence. The surgeon said it was crushing my pituitary upward!

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Such good news! I assume it could have caused more damage if left alone.
Enjoy your recovery! How often do you have to follow up with MRIs?

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@astaingegerdm

Such good news! I assume it could have caused more damage if left alone.
Enjoy your recovery! How often do you have to follow up with MRIs?

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It was wrapped around carotid artery, and I was dizzy so?
Annuanl MRI check up, there is a small mengioma to watch!

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@captain1950

It was wrapped around carotid artery, and I was dizzy so?
Annuanl MRI check up, there is a small mengioma to watch!

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What a relief to remove the tumor from such a dangerous location.
My daughter’s adenoma also involved the carotid artery. The surgeon was 95% sure he got it all. Annual MRIs stayed normal and no symptoms since.

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@astaingegerdm

What a relief to remove the tumor from such a dangerous location.
My daughter’s adenoma also involved the carotid artery. The surgeon was 95% sure he got it all. Annual MRIs stayed normal and no symptoms since.

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The Surgeons have come a long way, I wish Her well!

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