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Pituitary tumor symptoms: joint, muscle and body aches
Neuroendocrine Tumors (NETs) | Last Active: Mar 26 5:03pm | Replies (144)Comment receiving replies
I'm hopeful that it is the cause but it seems like that totally depends on whichever doctor you are talking to! We had discussed having it removed in November of last year but covid delayed everything. I reached out to Mayo at that time and have multiple consultations upcoming. I love living in Montana but definitely feel like I need a tertiary center to help find a solution. I've become so depressed over this it is hard to function. So I will wait to see if the Mayo team agrees this is myasthenia, the pituitary tumor, or something completely different.
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@skhollandmt - it is very encouraging to hear you have appointments at Mayo! You are correct- for complicated problems you need a tertiary care facility.
If/ when the macroadenoma will be removed it is also extremely important to have it done where there is a dedicated pituitary team- such as Mayo.
My daughter had a microadenoma removed at UVA, another superb institution.