Pillcam is stuck... and still stuck

Posted by dablues @dablues, May 4 9:40pm

I had a pillcam done and it never came out. What next. You would think the doctor would have called me by now. Had an Xray on the 15th of April, then again on the 30th of April and it is still there. Now what?

@dablues never heard of pillcam new to me what is it?

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@dablues – That happened to me at Mayo. They reassured me that it was ok and it will get out. I have sluggish transit.

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Hi @dablues I have attached a link from Mayo Clinic's website regarding a capsule endoscopy (Pill Cam). https://www.mayoclinic.org/tests-procedures/capsule-endoscopy/about/pac-20393366 If you scroll down to the risks section it does help you through the two possibilities. It says if it isn't causing pain or discomfort, your doctor might decide to give the capsule some time to make its way out naturally. What did you have the procedure for?

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@dablues That must be unnerving to have the pillcam not come out. I presume this is recent technology. I was in a test group at Mass General two or three years ago where I had the pillcam shortly after an endoscopy so they could determine if the results were in line with the usual method. My pillcam came out easily though.
JK

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@astaingegerdm

@dablues – That happened to me at Mayo. They reassured me that it was ok and it will get out. I have sluggish transit.

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I have a sluggish transit too! I hope it does come out. I'm sick of being X-Rayed. Have had too many since November and will be getting more when I visit my urologist.

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@lioness

@dablues never heard of pillcam new to me what is it?

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It is a capsule that is a camera and you swallow it and you have a machine attached to you for the day, and at the end of the day you bring the machine back to the doctor. It is supposed to take thousands of images. So it went through my intestines and colon and is lodged in the pelvis area. They were looking to see where the bleeding was coming from but from what they said they couldn't find anything.

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@dablues Thanks I never heard of it before Sounds simple except when it's lodged somewhere lol

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@dablues

Well I had my third Xray and the pillcam is still in my stomach. I can't have any more Xrays. I've been Xrayed to death since last November and will need to have one when I visit my urologist, so I don't know what my gastro will do. Study Result

Impression

Interval passage of pill endoscopy camera.

Approved By: Mark Twedt 5/7/2020 9:10 AM CXRRM08R

Narrative

XR ABDOMEN AP

History:Foreign body of alimentary tract, part unspecified, initial
encounter

Comparison:4/30/2020

Technique:2 views of the abdomen

Findings:
Interval passage of the pill endoscopy camera previously seen in the
pelvis. Bowel gas pattern nonobstructive. No evidence for pneumatosis or
pneumoperitoneum. No suspicious air-fluid levels or mucosal fold
thickening. Right upper quadrant surgical clips. Scattered vascular
calcification. Similar degenerative changes and levocurvature.

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@dablues Oh my gosh still stuck. Sorry for this its been awhile now thought it would have passed ,so sorry What are they going to do? Wont just eating bread make it move? Keep us posted .

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@dablues

Well I had my third Xray and the pillcam is still in my stomach. I can't have any more Xrays. I've been Xrayed to death since last November and will need to have one when I visit my urologist, so I don't know what my gastro will do. Study Result

Impression

Interval passage of pill endoscopy camera.

Approved By: Mark Twedt 5/7/2020 9:10 AM CXRRM08R

Narrative

XR ABDOMEN AP

History:Foreign body of alimentary tract, part unspecified, initial
encounter

Comparison:4/30/2020

Technique:2 views of the abdomen

Findings:
Interval passage of the pill endoscopy camera previously seen in the
pelvis. Bowel gas pattern nonobstructive. No evidence for pneumatosis or
pneumoperitoneum. No suspicious air-fluid levels or mucosal fold
thickening. Right upper quadrant surgical clips. Scattered vascular
calcification. Similar degenerative changes and levocurvature.

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I have no idea what they will do, but it's unacceptable that I can never talk to my doctor and his nurse is a pain. She doesn't like duplicate calls but if you don't make them she doesn't call you back. I called her 10:30AM and said what time it is and waiting to see if she calls me back. Her voice mail states if you call after 3PM we won't call you back until the next day, so will see what she does. I eat bread all the time so don't think that will help. Sick of it. I've been xrayed to death this past 4 months with cat scans, chest xrays, abdomen xrays, spine xrays and I got a urologist exam coming up which they will xray me as they do once a year as my kidney is enlarged.

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Well I had my third Xray and the pillcam is still in my stomach. I can't have any more Xrays. I've been Xrayed to death since last November and will need to have one when I visit my urologist, so I don't know what my gastro will do. Study Result

Impression

Interval passage of pill endoscopy camera.

Approved By: Mark Twedt 5/7/2020 9:10 AM CXRRM08R

Narrative

XR ABDOMEN AP

History:Foreign body of alimentary tract, part unspecified, initial
encounter

Comparison:4/30/2020

Technique:2 views of the abdomen

Findings:
Interval passage of the pill endoscopy camera previously seen in the
pelvis. Bowel gas pattern nonobstructive. No evidence for pneumatosis or
pneumoperitoneum. No suspicious air-fluid levels or mucosal fold
thickening. Right upper quadrant surgical clips. Scattered vascular
calcification. Similar degenerative changes and levocurvature.

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@dablues, I'm sorry to hear that 6 days later, the Pillcam has still not made an appearance. I moved your new message to the previous discussion about the Pillcam being stuck in the hopes that @astaingegerdm might have some ideas to share.

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@dablues

I have no idea what they will do, but it's unacceptable that I can never talk to my doctor and his nurse is a pain. She doesn't like duplicate calls but if you don't make them she doesn't call you back. I called her 10:30AM and said what time it is and waiting to see if she calls me back. Her voice mail states if you call after 3PM we won't call you back until the next day, so will see what she does. I eat bread all the time so don't think that will help. Sick of it. I've been xrayed to death this past 4 months with cat scans, chest xrays, abdomen xrays, spine xrays and I got a urologist exam coming up which they will xray me as they do once a year as my kidney is enlarged.

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@dablues Im sorry you havent heard anything . I would just keep calling till you get the Dr. Do you have a patient portal? If so you could contact him this way . Call your insurance also they maybe able to help you sometime you may have to resort to threating them . Then there is always the Medical Board .

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@colleenyoung

@dablues, I'm sorry to hear that 6 days later, the Pillcam has still not made an appearance. I moved your new message to the previous discussion about the Pillcam being stuck in the hopes that @astaingegerdm might have some ideas to share.

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@dablues @colleenyoung – I read the report and in the latest X-ray it is not mentioned that it is seen, right? The previous X-ray reported the pill cam in the pelvis = on the way out.
My impression is that it is not there and also no signs of damage to the intestine. Obviously, it has to be confirmed by the doctor.
I have no idea when mine passed. It was still there on follow up before I left Mayo. I was reassured that I did not have to worry. The only thing I had to do is stay hydrated.

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