I had a left mastectomy 9/2020 due to a malignant phyllodes with sarcomatous features. 5 weeks radiation. I currently have a malignant phyllodes in my right breast and scheduled for mastectomy 9/2021. Anyone else out there with similar experiences?
@cheddar i am hoping some of the other folks who have or have had this rare type of breast cancer will chime in. From everything I can find out about this, what we know about it, really couldn’t fill a thimble. They know what it is, but not why. Are you scheduled for any other treatments?
I had a left mastectomy 9/2020 due to a malignant phyllodes with sarcomatous features. 5 weeks radiation. I currently have a malignant phyllodes in my right breast and scheduled for mastectomy 9/2021. Anyone else out there with similar experiences?
From what I have learned, it's a rare and unknown type of breast cancer and affects less than 1% of women. I have also learned that a neighbor I grew up with,lived next door to for 15 yrs. Just had double macestomy 1 month ago for the very same cancer I have and we are the same age. If anyone has any input, I would be helpful. Thank you I am 61
From what I have learned, it's a rare and unknown type of breast cancer and affects less than 1% of women. I have also learned that a neighbor I grew up with,lived next door to for 15 yrs. Just had double macestomy 1 month ago for the very same cancer I have and we are the same age. If anyone has any input, I would be helpful. Thank you I am 61
Hello @marvinjjc and welcome to Mayo Clinic Connect. I appreciate you sharing your experience with phyllodes tumor. As this is a rare type of tumor, I'm wondering if any others in your family have had this diagnosis as well. Did you learn any information about the source of these tumors?
Hi! I’m not 100% sure as I was adopted as a baby. That being said, I do know there is a history of breast cancer on my fathers side (2 of his sisters and his mother) and on my mother’s side (her sister). They are unsure of what types of BC it was. I was tested for the BRACA gene which came back negative, but I was also told that it would be more accurate if they were able to test a biological family member who had BC in order to get the correct gene variant.
I had a massive phyllodes tumor removed in the summer of 2018. And then a smaller one appeared during a second breast surgery in 2019. Thankful both were benign.
Hello @marvinjjc and welcome to Mayo Clinic Connect. I appreciate you sharing your experience with phyllodes tumor. As this is a rare type of tumor, I'm wondering if any others in your family have had this diagnosis as well. Did you learn any information about the source of these tumors?
I had a massive phyllodes tumor removed in the summer of 2018. And then a smaller one appeared during a second breast surgery in 2019. Thankful both were benign.
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@cheddar i am hoping some of the other folks who have or have had this rare type of breast cancer will chime in. From everything I can find out about this, what we know about it, really couldn’t fill a thimble. They know what it is, but not why. Are you scheduled for any other treatments?
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1 ReactionI had a left mastectomy 9/2020 due to a malignant phyllodes with sarcomatous features. 5 weeks radiation. I currently have a malignant phyllodes in my right breast and scheduled for mastectomy 9/2021. Anyone else out there with similar experiences?
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1 ReactionHi @mariewurch, do you know if your tumor is benign, borderline or malignant (cancerous)? Will you have surgery?
From what I have learned, it's a rare and unknown type of breast cancer and affects less than 1% of women. I have also learned that a neighbor I grew up with,lived next door to for 15 yrs. Just had double macestomy 1 month ago for the very same cancer I have and we are the same age. If anyone has any input, I would be helpful. Thank you I am 61
Hi! I’m not 100% sure as I was adopted as a baby. That being said, I do know there is a history of breast cancer on my fathers side (2 of his sisters and his mother) and on my mother’s side (her sister). They are unsure of what types of BC it was. I was tested for the BRACA gene which came back negative, but I was also told that it would be more accurate if they were able to test a biological family member who had BC in order to get the correct gene variant.
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1 ReactionHello @johnsoncs1
I was thinking about you and wondering if you had surgery yet. Will you post an update when you are able?
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1 ReactionHello @marvinjjc and welcome to Mayo Clinic Connect. I appreciate you sharing your experience with phyllodes tumor. As this is a rare type of tumor, I'm wondering if any others in your family have had this diagnosis as well. Did you learn any information about the source of these tumors?
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1 ReactionI had a massive phyllodes tumor removed in the summer of 2018. And then a smaller one appeared during a second breast surgery in 2019. Thankful both were benign.
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2 ReactionsAnybody else out there with current or previous diagnosis of any type of Phyllodes tumor?
Don't know if benign or malignant until after surgery.
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