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johnsoncs1 (@johnsoncs1)

Anyone diagnosed with Phyllodes tumor?

Cancer | Last Active: Sep 24 6:27pm | Replies (41)

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@mariewurch

From what I have learned, it's a rare and unknown type of breast cancer and affects less than 1% of women. I have also learned that a neighbor I grew up with,lived next door to for 15 yrs. Just had double macestomy 1 month ago for the very same cancer I have and we are the same age. If anyone has any input, I would be helpful. Thank you I am 61

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Replies to "From what I have learned, it's a rare and unknown type of breast cancer and affects..."

Hi @mariewurch, welcome. I moved your post to this existing discussion about Phyllodes Tumors so that you can connect with fellow members @johnsoncs1 @knutter1 @marvinjjc and others who also have experience with this type of tumor.

Marie, do you know if your tumor is benign, borderline or malignant (cancerous)? Will you have surgery?