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johnsoncs1 (@johnsoncs1)

Anyone diagnosed with Phyllodes tumor?

Cancer | Last Active: Sep 24 6:27pm | Replies (41)

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@cheddar

I had a left mastectomy 9/2020 due to a malignant phyllodes with sarcomatous features. 5 weeks radiation. I currently have a malignant phyllodes in my right breast and scheduled for mastectomy 9/2021. Anyone else out there with similar experiences?

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Replies to "I had a left mastectomy 9/2020 due to a malignant phyllodes with sarcomatous features. 5 weeks..."

@cheddar i am hoping some of the other folks who have or have had this rare type of breast cancer will chime in. From everything I can find out about this, what we know about it, really couldn’t fill a thimble. They know what it is, but not why. Are you scheduled for any other treatments?

Hi Cheddar (fun Username), I add my welcome and invite @mariewurch @johnsoncs1 @knutter1 @marvinjjc to rejoin this discussion as they have experience with malignant phyllodes.

I wish you the best with your upcoming surgery.