Periodic paralysis

Posted by pmross @pmross, 2 days ago

My daughter has become paralyzed from her torso to knee cap in both legs since 2024. Could she have some form of Periodic paralysis? The teaching hospital in California wanted to do a genetic test but insurance denied it.

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@pmross - I'm not a doctor but I think you may be onto something. From what I've read Lyme disease can cause a condition called Transverse Myelitis - https://newsnetwork.mayoclinic.org/discussion/transverse-myelitis-know-the-signs-and-symptoms/. Here's more information on Lyme disease from Mayo Clinic - https://www.mayoclinic.org/diseases-conditions/lyme-disease/symptoms-causes/syc-20374651.

@cmmichaela may has posted about Lyme disease and paralysis in other discussions and may have some thoughts or information to share with you.

Is the teaching hospital still trying work with you on diagnosing your daughter to figure out a treatment?

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@johnbishop

She had meningococcemia at 2 yrs. The only side effect was in her ear. Fast forward 37 yrs she is numb from her lower abdomen to her knee caps. Onset was to her toes. When the left the hospital to her knee caps.

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