Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

Interested in more discussions like this? Go to the Neuropathy Support Group.

@3740

Anyone ever heard of or used WALKASINS? @3740

Jump to this post

You might find these discussions helpful:
-- Anyone tried Accelera SR 100 device? Or Walkasins?
https://connect.mayoclinic.org/discussion/anyone-tried-accelera-sr-100-device-or-walkasins/
-- Peripheral sensory neuropathy - Anyone tried Walkasins?
https://connect.mayoclinic.org/discussion/peripheral-sensory-neuropathy-device/

REPLY
@ksm1007

Has anyone tried Gabapentin extended release and had success with relief from numbness in lower extremities?

Jump to this post

My neurologist, Medical Univ So Carolina....said gabapentin is only for pain and will not treat numbness.I took for 3 years and it never did a thing. I don't have pain, only numbness.

REPLY
@moorethrpy

My neurologist, Medical Univ So Carolina....said gabapentin is only for pain and will not treat numbness.I took for 3 years and it never did a thing. I don't have pain, only numbness.

Jump to this post

I beg to differ with you guys. As a nurse, when i have a patient who says he's in pain, one of our descriptors is listed as numbness. So to a degree, numbness can be painful. I only have numbness and it was preventing me from being able to fall asleep at night. Just as an experiment, i tried taking gabapentin along with my dinner to give it time to kick in prior to going to bed. I promise you it works every time. It calms my feet enough so that I can easily fall asleep and that has been such a blessing. You could say the gabapentin just "puts" me out but that's not true. I've taken plenty other sleeping pills and the numbness keeps me awake. Needless to say the numbness reappears the next morning but I'm in the process of getting my doctor to write me a prescription for gabapentin ER so that it doesn't interfere with my daily activities but stays in my system. It might not work for you but it's been a blessing for me. I'll let you know how the extended release works.

REPLY

BTW...it doesn't get rid of it, it calms my numbness to a tolerable level.

REPLY
@ksm1007

I beg to differ with you guys. As a nurse, when i have a patient who says he's in pain, one of our descriptors is listed as numbness. So to a degree, numbness can be painful. I only have numbness and it was preventing me from being able to fall asleep at night. Just as an experiment, i tried taking gabapentin along with my dinner to give it time to kick in prior to going to bed. I promise you it works every time. It calms my feet enough so that I can easily fall asleep and that has been such a blessing. You could say the gabapentin just "puts" me out but that's not true. I've taken plenty other sleeping pills and the numbness keeps me awake. Needless to say the numbness reappears the next morning but I'm in the process of getting my doctor to write me a prescription for gabapentin ER so that it doesn't interfere with my daily activities but stays in my system. It might not work for you but it's been a blessing for me. I'll let you know how the extended release works.

Jump to this post

I also still take one at night. During the day I notice no difference since I stopped the GP and in fact I have less fatigue since GP can cause sleepiness. I say whatever works...we are all struggling with ways to cope and function. Thanks for your reply.

REPLY

Yes. I am not diabetic. Would like to connect with people who have neuropathy combined with dizziness. Thanks.

REPLY

I am not diabetic told by doctor - idiopathic neuropathy. how do I get a better diagnois of what is actually damaged and the best course of action

REPLY
@ksm1007

I beg to differ with you guys. As a nurse, when i have a patient who says he's in pain, one of our descriptors is listed as numbness. So to a degree, numbness can be painful. I only have numbness and it was preventing me from being able to fall asleep at night. Just as an experiment, i tried taking gabapentin along with my dinner to give it time to kick in prior to going to bed. I promise you it works every time. It calms my feet enough so that I can easily fall asleep and that has been such a blessing. You could say the gabapentin just "puts" me out but that's not true. I've taken plenty other sleeping pills and the numbness keeps me awake. Needless to say the numbness reappears the next morning but I'm in the process of getting my doctor to write me a prescription for gabapentin ER so that it doesn't interfere with my daily activities but stays in my system. It might not work for you but it's been a blessing for me. I'll let you know how the extended release works.

Jump to this post

gabapentin made me loose balance and fall down alot

REPLY
@agiordano

I am not diabetic told by doctor - idiopathic neuropathy. how do I get a better diagnois of what is actually damaged and the best course of action

Jump to this post

I have idiopathic axonal neuropathy myself, saw my neurologist several times for tests, and unfortunately, based on my experience, you won’t be able to find out more. Idiopathic means that the cause is unknown. And from what I have learned so far, all you can do is manage the symptoms. I try to stay active, eat healthy, avoid alcohol, and get enough sleep.

REPLY
Please sign in or register to post a reply.