Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

Interested in more discussions like this? Go to the Neuropathy Support Group.

@patrickm1

Would appreciate any suggestions. Am on Gabapentin

Jump to this post

First of all, I am so sorry that you had to search for relief. Of course, that means you are suffering. I just want you to be very aware of the side effects of Gabapentin. It is now used for many, many aliments not ever meant to be treated by this very toxic Pharmaceutical!
Just like we are not all helped by the same thing, we are not all allergic to the same drugs.
BUT, PLEASE be cautious! I was OK on Gabapentin for the first week! Then, my throat completely closed! If I had not had someone there with me, I would have died right then and there. There would have NOT been any time to go to the Hospital. Be careful!

REPLY
@cb3

About two years ago I started having tingling and other sensations in my right foot, so I went to a podiatrist. He said I had radiculopathy, referred pain from my back to my feet. It affected the metatarsals which felt spongy or full. I have never had an official diagnosis of peripheral neuropathy to date. Yet my situation has escalated to mirror the symptoms I read about so much here at this group. I've had numerous xrays all over my lower extremities and I honestly can't remember all the findings. I know I have spotty areas of arthritis but you wouldn't know it to look at me. So when members of the group mention the type of neuropathy they have, I'm lost. I mean pain is pain, right? And everything I read about neuropathy points out that it just gets worse. And doctors can't figure it out. For once I'm at a lost for words because I really don't know what I'm talking about other than I have received a diagnosis of lumbar radiculopathy. So I guess the nerves in my damaged spine are the culprit. That's where it began. So what would you call that?

Jump to this post

I was diagnosed with radiculopathy when I had the neuropathy in a single toe (the very tip). It started with a sharp jolting attack in my groin/leg while walking at the store, and I fell to the floor in pain.
The doctor suspected a nerve, and prescribed gabapentin.
I have not had a groin event since then, but the toe issue started some time after, and continues a year or two now assumed as the lumbar radiculopathy .
Sometimes the gabapentin + naproxen is not enough, so I apply campho phenique with a cotton q-tip as a temporary numbing.

REPLY
Please sign in or register to post a reply.