Palmitoylethanolamide (PEA) SUCCESS?

Posted by wisfloj @wisfloj, Jan 26 12:11pm

Palmitoylethanolamide (PEA) user for at least 6 months. Seemed to work after several weeks, then not, then somewhat, now not at all and the burning pain is spreading to most of my body. Anybody find success? Is this how it works for you as well? Just hate to throw away money and continue unnecessary/ ineffective supplements. I use the Ergomax brand. Thank you fellow sufferers! Appreciate this forum and people willing to share, advise and encourage!

Hey Joanne, nice to hear from you. I never tried PEA because it seemed liked most other products…worked, then it didn't. I'm sorry you did not find success. ☹

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Please try the cold laser therapy, for a few days and if it doesn't help send it back. Amazon has one for $129 and has a great guarantee. I am having great success. My sister in law is buying one to try and see if she gets the same results that I have been getting. I wish you well, because, I do know the pain is at sometimes unbearable.

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Do you have peripheral neuropathy or small fiber neuropathy? What part of your body are you finding relief? I have pain all over. Has anyone found relief from bodywide pain?

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@wisfloj . I used PEA cream for 3 months with no positive outcome

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PI PRICK like pain to now attacks in my left Fingertip. Fingers ring, then the pinky and middle now as well, now down through my hand, wrist , weakness in my arm. Major pains now in my shoulder. 🙁

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Just started on Gabapentin @ night for leg cramps. DOES NOT HELP…..will see a NEUROLOGIST on Tuesday. Diabetes since May 1995, on insulin ..Pain in left leg that moves around, lack of sleep, sugar jumping up for no reason on no food. Need to knock it down @ 2 a.m. fierce pain.

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Good evening @margaretob Here is a big Connect welcome from an active group of patients, caregivers and folks with memories and experiences that may help others improve their quality of life. '

It looks like you are making a step towards a diagnosis. You are clear about the symptom and appear to hope to tie some things together on Tuesday during your appointment with a neurologist.

I am sorry Gabapentin doesn't work for your night time cramps. If I could whisper anything in your ear it would be to initiate a genuine patient-centered relationship with your clinician. Where will you be? It would be helpful if you checked in with me after your appointment. I will put that possibility on my memory list.

If you could find out one piece of helpful information what would it be? Be safe and protected. Chris

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@margaretob

Just started on Gabapentin @ night for leg cramps. DOES NOT HELP…..will see a NEUROLOGIST on Tuesday. Diabetes since May 1995, on insulin ..Pain in left leg that moves around, lack of sleep, sugar jumping up for no reason on no food. Need to knock it down @ 2 a.m. fierce pain.

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I take 250 mg. magnesium 2xday which has greatly reduced my nightly leg and foot cramps, I also do calf stretches before retiring. Hope this helps. Helen

Liked by rwinney

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My PN symptoms come and go. Yesterday was a good day. Then last evening I ate a normal size serving of tomato meat sauce (no added sugar) over broccoli. I felt some tingling coming back into my feet and legs, but was able to fall asleep around 10:00. I woke up at 1:00 with my feet and legs burning. Finally got back to sleep but woke up again at 3:30 with pain so bad I couldn’t go back to sleep so I’m up trying tapping which isn’t helping. I don’t know if the tomato sauce causes the problem because it is highly glycemic or because it is a nightshade plant, or both. I’ve had this happen before, so I guess I’m a slow learner. Has anyone else experienced this type response to tomato sauce?

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@catro

My PN symptoms come and go. Yesterday was a good day. Then last evening I ate a normal size serving of tomato meat sauce (no added sugar) over broccoli. I felt some tingling coming back into my feet and legs, but was able to fall asleep around 10:00. I woke up at 1:00 with my feet and legs burning. Finally got back to sleep but woke up again at 3:30 with pain so bad I couldn’t go back to sleep so I’m up trying tapping which isn’t helping. I don’t know if the tomato sauce causes the problem because it is highly glycemic or because it is a nightshade plant, or both. I’ve had this happen before, so I guess I’m a slow learner. Has anyone else experienced this type response to tomato sauce?

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Wow! I never even considered that the horrible burning in my legs could be influenced by what I eat. I always feel confused when the burning is bad one night, but I have no burning other nights. I need to keep a journal that contains what I ate that day. Tomato meat sauce gives me diarrhea, so I try to avoid that, but I do love nightshade vegetables. Hmmmm. Thanks for your post.

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Sugar is highly antagonistic for me.

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Block her. or him. Sounds like you got a troll on your back. Only a creep would do that.

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@helennicola

I take 250 mg. magnesium 2xday which has greatly reduced my nightly leg and foot cramps, I also do calf stretches before retiring. Hope this helps. Helen

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I also have neuropathy and take Gabapentin but befote bed I also use Epsom Salts on my neuropathy either by bath and soak which I cant do anymore bur use a washcloth and soak it in E.S. and pat on area let it soak in for awhile I do take mag. at night all this helps me .

Liked by Lisa Lucier, lioness

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@darlingtondoll

Wow! I never even considered that the horrible burning in my legs could be influenced by what I eat. I always feel confused when the burning is bad one night, but I have no burning other nights. I need to keep a journal that contains what I ate that day. Tomato meat sauce gives me diarrhea, so I try to avoid that, but I do love nightshade vegetables. Hmmmm. Thanks for your post.

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@darlingtondoll I have fibromyalgia symptoms and neuropathy and cant do night shade vegetable at all No tomato sauces and If I want the tomato flavor I have to dilute it with water to make it less acidic . The peppers I can only eat are the yellow,orange or red. they don't seem to bother me like the green ones. You just have to journal for yourselve and see what harms you . Good luck

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I am curious, have you tried an antacid before you eat tomato sauced pasta? I wonder if it would help you.

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