PD Progression, stages and what to expect

@hopeful33250
From: jon1547
Thanks for your welcoming message requesting intro comments about me. Since I am very new to this whole connect group and PD I'm not sure what to say. It was more of an accident that I ended up here. I was just poking around in the Mayo directory looking for information on Parkinsons.
I was officially diagnosed with Parkinsons disease little over a year ago. It was a relief to have a name and information to go with all the odd and irritating things happening to my body. Of the 33 items on my WT*# list 24 were on the PD symptom list. What makes it difficult for me is how unpredictable my disfunctions are.
I am curious by nature. Really don't believe In accidents. PD has changed my life.

Hello @jon1547 and welcome to the PD support group on Mayo Connect. Your idea of exercise and building a strong social network are great suggestions for anyone with PD.

As this is your first post on this discussion group, please share, as you are comfortable doing so, a little about your experience with PD. I look forward to hearing from you again.

@itchyw you are not alone with your back pain and being tired a lot. Keep doing what you can exercise. Building a healthy strong social network is very healthy. Mine saved my life. Blessings to you on your journey. Take care

@windyh There are some chair exercises you can do if you are afraid of falling. From what I iunderstand, it you don't have to heavy exercises like pushups and pullups and runnning , even the smaller, more gentle things can make a difference.the Main thing is to do SOMEthing - ANYthing, is better than nothing. Youo can google them I have these things poppuing up on my phone all the time.

@windyh That would be me. ALL of it !Been there, done that, got the tattoo I can sit down to do something and lose track of time. I don't have a clue whether I've been there 5 minutes or 3 hours. When I tried to help my husband by filling up all my agddzillion pill boxes I knew I was having a hard time and had to check myself al lthe time, but I didn't know until he told me that it took me 3 hours to fill 8 pillboxes. And it wasn't helping him at all because he still had to check them when I finished. I've tod my grandkids not to trust m \y memory one little bit, so if they want to remind me o of somethng, please don't worry about my taking offense, because I won't, or even if I do, I'm bettter off with their help and attention than I am on my own. I told them that they now hadve3 Grandmas. Their Omi,( their Mother's mom, and They have regular Grandma sometimes and then other times they have PD Grandma, who can be a real pain in the patootee

@popo1

As you look for someone to give you a second opinion on your diagnosis, I'm wondering if you have had an evaluation at a multidisciplinary healthcare system, such as Mayo Clinic (Here is a link with appointment information for Mayo Clinics in Minnesota, Arizona, and Florida http://mayocl.in/1mtmR63) or at a university medical school.

I look forward to hearing from you again.

i wish i could read all of this at one time, but i get so tired i need to rest , come back, type, etc. i now am 80 yrs old this has been going on for 3 1/2 yrs. keep getting worse. bbl

I will let you know.

It is very helpful to discuss treatments. @hirschho.

PD can cause double vision and mine occurred while I have PD. So I thought it would be useful to mention my optometrist's treatment.