Parkinson’s unresponsive episodes.

Posted by bethv @bethv, Sep 16, 2018

My father, 93 years old, is suffering these unresponsive episodes, not to be confused with “freezing” of gait. The episode can last two hours and we think might be related to dehydration. Why can’t I find any mention of this in any web sites that describe Parkinson’s? Only in caregiver sites have I found any information. Is no one studying this phenomenon? There may be some connection here that needs investigation.

Interested in more discussions like this? Go to the Parkinson's Disease group.

You bet Teresa!! I walk at least 5 days a week 3 to sometimes 6 miles. Most often around 4 1/2. Always have and plan to keep it up until I can’t. Great for my body as well as for my sense of well-being. I appreciate your support.

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Buenos días. MI nombre es Justiniano Murphy, tengo 55 años y radico en LIma Perú. En mi caso fui diagnosticado en 2017 y atendido excelentemente por el Doctor Rodolfo Savica en Rochester, iniciando con 1, 2 y luego tres SInemet (carbidopa levodopa) 100/25 al día. EL problema que tengo ahora son los diarios ataques de ansiedad que no responden normalmente a los ansiolíticos deteriorado sostenidamente mi calidad de vida, por lo que como último recurso he optado hace dos días a elevar mi dosis de Sinemet. 100/25 de 9 a 12 pastillas diarias. Espero que eso me ayude, por que no me ha sido posible comunicarme con mi Doctor ni obtener respuesta y estoy desesperado.

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@susan62

You bet Teresa!! I walk at least 5 days a week 3 to sometimes 6 miles. Most often around 4 1/2. Always have and plan to keep it up until I can’t. Great for my body as well as for my sense of well-being. I appreciate your support.

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That is great to hear, @susan62! There was a PT who often said that PD patients who exercise on a regular basis have much less disability than those who don't have an exercise program. So, we need to all keep moving….

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@justiniano

Buenos días. MI nombre es Justiniano Murphy, tengo 55 años y radico en LIma Perú. En mi caso fui diagnosticado en 2017 y atendido excelentemente por el Doctor Rodolfo Savica en Rochester, iniciando con 1, 2 y luego tres SInemet (carbidopa levodopa) 100/25 al día. EL problema que tengo ahora son los diarios ataques de ansiedad que no responden normalmente a los ansiolíticos deteriorado sostenidamente mi calidad de vida, por lo que como último recurso he optado hace dos días a elevar mi dosis de Sinemet. 100/25 de 9 a 12 pastillas diarias. Espero que eso me ayude, por que no me ha sido posible comunicarme con mi Doctor ni obtener respuesta y estoy desesperado.

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Buenos días y bienvenido @justiniano. I used Google Translate (https://translate.google.com/) to translate your message from Spanish to English.
"Good Morning. My name is Justiniano Murphy, I am 55 years old and I live in LIma Perú. In my case I was diagnosed in 2017 and treated excellently by Dr. Rodolfo Savica in Rochester, starting with 1, 2 and then three SInemet (carbidopa levodopa) 100/25 a day. The problem that I have now are the daily attacks of anxiety that do not respond normally to the anxiolytics. My quality of life has deteriorated steadily, so as a last resort I chose two days ago to raise my dose of Sinemet. 100/25 from 9 to 12 pills daily. I hope that helps me, because I have not been able to communicate with my Doctor or get an answer and I am desperate."

I hope you'll use Google translate to interpret responses from the community here on Mayo Clinic Connect.
Espero que use el traductor de Google para interpretar las respuestas de la comunidad aquí en Mayo Clinic Connect.

Have you tried to get in contact with your Mayo doctor through the patient portal? Here is the link to create an account if you haven't already https://gpsnetx.mayoclinic.org/psi/content/staticpatient/showpage/patientonline

I understand that you are desperate, but it is best to have the guidance of a doctor when changing medication doses. Do you also take anti-anxiety medication?

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@colleenyoung

Buenos días y bienvenido @justiniano. I used Google Translate (https://translate.google.com/) to translate your message from Spanish to English.
"Good Morning. My name is Justiniano Murphy, I am 55 years old and I live in LIma Perú. In my case I was diagnosed in 2017 and treated excellently by Dr. Rodolfo Savica in Rochester, starting with 1, 2 and then three SInemet (carbidopa levodopa) 100/25 a day. The problem that I have now are the daily attacks of anxiety that do not respond normally to the anxiolytics. My quality of life has deteriorated steadily, so as a last resort I chose two days ago to raise my dose of Sinemet. 100/25 from 9 to 12 pills daily. I hope that helps me, because I have not been able to communicate with my Doctor or get an answer and I am desperate."

I hope you'll use Google translate to interpret responses from the community here on Mayo Clinic Connect.
Espero que use el traductor de Google para interpretar las respuestas de la comunidad aquí en Mayo Clinic Connect.

Have you tried to get in contact with your Mayo doctor through the patient portal? Here is the link to create an account if you haven't already https://gpsnetx.mayoclinic.org/psi/content/staticpatient/showpage/patientonline

I understand that you are desperate, but it is best to have the guidance of a doctor when changing medication doses. Do you also take anti-anxiety medication?

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Buenos días y bienvenido @justiniano

It is good to have you as part of our Parkinson's discussion group. I agree with Colleen that it is good to check with your doctor before adjusting and/or changing any medications and their dosages.

Anxiety and depression are common for patients with Parkinson's as it is an organic brain problem which will affect your thinking. I would encourage you to start an exercise program. This will be good for both the Parkinson's symptoms as well as the anxiety. Do you have an exercise program in place?

I understand the language barrier so I trust you can get some help through Google in interpreting this article on Parkinson's and anxiety. Here is a link to the article, https://www.apdaparkinson.org/article/anxiety-parkinsons-disease/

As Colleen mentioned, have you talked with a doctor regarding some medication for anxiety?

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My mom is 82 with Parkinson’s and is having these unresponsive episodes. She has had two that I know of so far in the past two weeks. She has gone to the hospital and no one knows what it is. Any info is welcome please.

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@farmerleebs

My mom is 82 with Parkinson’s and is having these unresponsive episodes. She has had two that I know of so far in the past two weeks. She has gone to the hospital and no one knows what it is. Any info is welcome please.

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Hello @farmerleebs and welcome to Mayo Connect. Thank you for posting your concerns about your mom in our Parkinson's discussion group. How long due the unresponsive episodes last? Several hours or less than that? When your mom went to the hospital do you recall what kind of tests she had? Was an MRI done? What about an EEG (where they put electrodes on the head to determine brain wave activity)?

How long do these unresponsive episodes last (for several hours or less than that) and how often do they occur? Has she had a work up with a movement disorder specailist? A movement disorder specialst is a neruologist who has special training in disorders like PD.

Here is a link to a website from Mayo Clinic that lists different reasons for unresponsive episodes. I would encourage you to read it.
https://www.mayoclinic.org/search/search-results?q=unresponsiveness
As you can see, others in this group have discussed unresponsivness in elderly parents who have PD. I would encourage them to share with you their findings. I would like to invite @bethv, @mshoggie and @judithanne to share with you as well.

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The unresponsive episodes seem to last anywhere between an hour or two. Leaning more towards the two. I know they did a cat scan and it came up normal. They took her vitals and they were low normal. There is no specialists involved. We live in a really small town and with Covid they have only taken her to the hospital once. Thank you for your help.

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@farmerleebs

The unresponsive episodes seem to last anywhere between an hour or two. Leaning more towards the two. I know they did a cat scan and it came up normal. They took her vitals and they were low normal. There is no specialists involved. We live in a really small town and with Covid they have only taken her to the hospital once. Thank you for your help.

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@farmerleebs, I wonder if hypotension or very low blood pressure may be causing the unresponsive episodes. See this article that @judithanne references earlier in this discussion:
– Cognitive fluctuations in Parkinson’s disease dementia: blood pressure lability as an underlying mechanism https://clinicalmovementdisorders.biomedcentral.com/articles/10.1186/s40734-018-0068-4

Is it possible that her blood pressure is low, but by the time she is seen by a professional her blood pressure has recovered? Do you have a home blood pressure monitor?

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@farmerleebs

The unresponsive episodes seem to last anywhere between an hour or two. Leaning more towards the two. I know they did a cat scan and it came up normal. They took her vitals and they were low normal. There is no specialists involved. We live in a really small town and with Covid they have only taken her to the hospital once. Thank you for your help.

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Hello again @farmerleebs

I appreciate the extra information you provided about your mom's episodes. Vitals, with a low normal might indicate, as Colleen, @colleenyoung, suggested that low blood pressure and/or low heart rate might also be a factor, I would encourage you, as Collen did, to have a blood pressure monitor available and to check your mom's BP and heart rate on a regular basis. Then when and if she has nother episode, you might be able to pinpoint if her BP drops lower than what is her ususal BP. Are you aware that the meds used for Parkinson's can also cause a decrease in BP? When she next sees her primary care provider, you might ask for a testing of her BP when she is seated and then again after standing and being seated again. This will often reveal this type of fluctating BP problem.

I also have Parkinson's and fight the low BP problem brought on by the Parkinson's meds as well as meds that I take for a heart condition. Given your mom's age, I'm sure she might be taking BP meds as well. Is your mom a diabetic?

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@colleenyoung

@farmerleebs, I wonder if hypotension or very low blood pressure may be causing the unresponsive episodes. See this article that @judithanne references earlier in this discussion:
– Cognitive fluctuations in Parkinson’s disease dementia: blood pressure lability as an underlying mechanism https://clinicalmovementdisorders.biomedcentral.com/articles/10.1186/s40734-018-0068-4

Is it possible that her blood pressure is low, but by the time she is seen by a professional her blood pressure has recovered? Do you have a home blood pressure monitor?

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I will certainly look in to this. She is at a care home for which I go to see her, now 4 times a week because of COVID. I am going to get them to check her blood pressure more often. Thank you!

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@farmerleebs

I will certainly look in to this. She is at a care home for which I go to see her, now 4 times a week because of COVID. I am going to get them to check her blood pressure more often. Thank you!

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Hello @farmerleebs,

It has been a while since you posted about your mom's unresponsive episodes and I was wondering how she is doing. Has she been able to see a doctor who could look into this further?

Will you post an update?

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