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Parkinson's Disease and Long Covid

Posted by lindalk @lindalk, Apr 20 6:01am

Has anyone been diagnosed with PD by their neurologist and feels it is really long covid ?

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Bsquared | @barbarabell | Apr 21 10:58am

Because of my internal tremors, tics and paternal history of Parkinson's, my neurologist ruled it out. What did your neuro base his/her diagnosis on? An office exam? An MRI?

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1 reply
borg54 | @borg54 | Apr 22 12:11pm

Long Covid can mimic many of the symptoms of Parkinsons. I believe this is due to the effect LC has on Dopamine in the brain. I have also been ruled out for Parkinsons, but I have tremors and twitching, etc. I take both Ropinerol and Amantadine. Both have really helped along with Sertraline (SSRI).

What are your symptoms? Did the doctor say what led them to believe it was Parkinson's? With that type of a diagnosis I would absolutely get a second opinion.

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2 replies
bettew | @bettew | Apr 22 12:31pm
In reply to @borg54 "Long Covid can mimic many of the symptoms of Parkinsons. I believe this is due to..." + (show)
@borg54

Long Covid can mimic many of the symptoms of Parkinsons. I believe this is due to the effect LC has on Dopamine in the brain. I have also been ruled out for Parkinsons, but I have tremors and twitching, etc. I take both Ropinerol and Amantadine. Both have really helped along with Sertraline (SSRI).

What are your symptoms? Did the doctor say what led them to believe it was Parkinson's? With that type of a diagnosis I would absolutely get a second opinion.

Jump to this post

yes, but both meds are for Parkinson's...

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1 reply
borg54 | @borg54 | Apr 22 12:42pm
In reply to @bettew "yes, but both meds are for Parkinson's..." + (show)
@bettew

yes, but both meds are for Parkinson's...

Jump to this post

Not sure I understand your statement. Both medicines are for Dopamine; both are used in Parkinson's and in Long Covid and other dopamine disorders. Long Covid can damage dopamine cells in the brain (similar to Parkinson's). That does not mean that long term, it is Parkinson's.

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1 reply
kentkemmerling1949 | @kentkemmerling1949 | Apr 22 8:04pm
In reply to @borg54 "Not sure I understand your statement. Both medicines are for Dopamine; both are used in Parkinson's..." + (show)
@borg54

Not sure I understand your statement. Both medicines are for Dopamine; both are used in Parkinson's and in Long Covid and other dopamine disorders. Long Covid can damage dopamine cells in the brain (similar to Parkinson's). That does not mean that long term, it is Parkinson's.

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What side effects has anyone noticed that take these 2 drugs?

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lindalk | @lindalk | Apr 22 9:07pm
In reply to @barbarabell "Because of my internal tremors, tics and paternal history of Parkinson's, my neurologist ruled it out...." + (show)
@barbarabell

Because of my internal tremors, tics and paternal history of Parkinson's, my neurologist ruled it out. What did your neuro base his/her diagnosis on? An office exam? An MRI?

Jump to this post

Office exam and observation. She is the 2nd neurologist I have seen I have had 2 MRI's one MRA because of 2 small strokes. I could type a freaking book about what I have been through over the past 2 1/2 yrs if it did not take me such a long time to type.

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Bsquared | @barbarabell | Apr 23 8:02am

I should clarify. I only have internal tremors and some facial tics. I don’t have stiffness or slowness of movement. My neurologist ruled Parkinson’s out. Have you seen this?
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lindalk | @lindalk | Apr 23 10:46am
In reply to @borg54 "Long Covid can mimic many of the symptoms of Parkinsons. I believe this is due to..." + (show)
@borg54

Long Covid can mimic many of the symptoms of Parkinsons. I believe this is due to the effect LC has on Dopamine in the brain. I have also been ruled out for Parkinsons, but I have tremors and twitching, etc. I take both Ropinerol and Amantadine. Both have really helped along with Sertraline (SSRI).

What are your symptoms? Did the doctor say what led them to believe it was Parkinson's? With that type of a diagnosis I would absolutely get a second opinion.

Jump to this post

Stiff gait, fatigue, handwriting has become extremely small, my voice has become almost a whisper, hands are really hard to move (clumsy) no hand tremors, did have internal tremors still do not as bad. My neurologist had me on carpidopa levidopa first trial did not help then she tried primoproxle I am sure I massacred the spelling, neither med worked. Thank you all for responding.

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borg54 | @borg54 | Apr 24 4:51pm

Those symptoms are consistent with Parkinson's (but I am not a doctor), but those meds should have helped. The pramipexole is very similar to the Ropinerol that I am on. There are pretty good treatments for Parkinson's these days, but if you do have it, those meds should have helped. I would recommend seeing another doctor as well. I am not saying yours isn't right; just worth getting another opinion.

I hope you find some answers. I sympathize with your symptoms; I am sure that is difficult and scary.

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