Caring for spouse with Parkinson's: Some days he's overwhelmed

Posted by sillyblone @sillyblone, Jun 4 3:25pm

I am in a caregiver role for my spouse. He is overwhelmed sometimes and other times like his old self. Comments are appreciated.

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@s100

You have been immersed in Parkinson's for a long time. I wish the experience would make taking care of you husband easier but likely the knowledge can add to the stress and anxiety. There are so many emotions swirling in us. Caring,love and wanting to help mixed with exhaustion, frustration, loss, anger, guilt to name a few.
My husband has only had diagnostic symptoms for 4 years - but the general exhaustion, slow loss of executive function for much longer. As a highly educated Ph,D, he was able to mask the symptoms for a long time.
Can you tell me more about Lewy Body disease.
Wishing you strength, patience and boundless love.

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LBD is similar to Alzheimers or Dementia. They usually use the drug that is used for most patients..but be careful and watch the symptoms you see and record it in a diary or wherever you write down changes. My Dad saw a Dog and another person.He once said it was God talking to him. My brother saw light white something. We could never get a clear idea. He now has mean outbursts and sometimes he seems perfectly normal. It is a frustrating disease. Especially Parkinsons in general. They have very vivid dreams and sometimes need meds for that. The staring and not blinking is what I saw my brother have this year. It was like he was "FROZEN". I hope that helps. Each day is different. Try to find a good friend or family member to be your relief. You might need to get out or just take a nap. Look into the Parkinsons Association for reading and texting info such as pod casts. Find your chapter near you. I hope this helps. Much love ur way!

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@becsbuddy

@s100 Here is some information from Mayo Clinic on Lewy Body dementia.
https://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/symptoms-causes/syc-20352025
Do you have any help or any outlet for yourself?

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Yes, a very good friend. But.. usually I am connected at the hip with my spouse. I saw mistakes that happen to my Dad and brother. I know what I have seen and really thought it could be handled differently. That being said my spouse can be challenging and very difficult.

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