Pancreatic Cancer Group: Introduce yourself and connect with others

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

Profile picture for grams2015 @grams2015

I went in to remove what was thought to be a stone in my bile duct by ERCP. Once there no stone found but a mass on head of my pancreas. He removed it and thought it looked good and not cancer however it came back cancer.

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Do you know what type of cancer was found in your pancreas? It usually ends in noma.

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Adenocarcinoma which resulted HER2 negative (1+)

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Hello all, I was diagnosed with pancreatic cancer in the fall of 2021. I lived through 6 months of chemo, 3 weeks of radiation and then surgery in June of 2022. As of my last visit at Rochester Mayo, I’m cancer free and grateful every day for successful treatment and good care at Mayo and Essentia care in Fargo. I would like to get suggestions with some troubles Ive been dealing with since surgery….Chronic diarrhea and neuropathy (both feet and up left leg). Any new ideas for the neuropathy? Which vitamin help? Etc etc.
Thanks, Jane

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Profile picture for Jane @joshua1

Hello all, I was diagnosed with pancreatic cancer in the fall of 2021. I lived through 6 months of chemo, 3 weeks of radiation and then surgery in June of 2022. As of my last visit at Rochester Mayo, I’m cancer free and grateful every day for successful treatment and good care at Mayo and Essentia care in Fargo. I would like to get suggestions with some troubles Ive been dealing with since surgery….Chronic diarrhea and neuropathy (both feet and up left leg). Any new ideas for the neuropathy? Which vitamin help? Etc etc.
Thanks, Jane

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I’m not @ joshua as my address says… but I can’t figure out how to get rid of that name in my address

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Profile picture for Jane @joshua1

Hello all, I was diagnosed with pancreatic cancer in the fall of 2021. I lived through 6 months of chemo, 3 weeks of radiation and then surgery in June of 2022. As of my last visit at Rochester Mayo, I’m cancer free and grateful every day for successful treatment and good care at Mayo and Essentia care in Fargo. I would like to get suggestions with some troubles Ive been dealing with since surgery….Chronic diarrhea and neuropathy (both feet and up left leg). Any new ideas for the neuropathy? Which vitamin help? Etc etc.
Thanks, Jane

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Good luck on the neuropathy. Many people looking for answers. Some on drug combos with gabapetin (sp) with varied results. Certainly vitamins could help but will not be curative. The diarrhea is certainly involving your GI system and probably fat digestion. Are you taking creon or zenpep?

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Profile picture for grams2015 @grams2015

Adenocarcinoma which resulted HER2 negative (1+)

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Is there any additional testing being done prior to your next surgery?

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I'm an 87 year old male, in good health otherwise, diagnosed with pancreatic cancer 7 months ago after about 2 months of stomach discomfort (turned out to be pancreas). Tumor in pancreas involves superior mesenteric artery and vein, hence no Whipple in the picture. Started Chemo with 40% Gemcitibane every 2 weeks, have advanced to 80% Gemcitibane and 80% Abraxane. Supporting the chemo ok, nothing unusual.
Have been working with a surgical oncologist with Lee Health in SW Florida who does nanoknife, is trained on and performing histotripsy on liver tumors, looking forward to using the latter on pancreatic tumors. Going forward, more chemo, looking to see whether higher levels of G and A will result in any shrinkage. Possibly going to nanoknife in the next months.

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Profile picture for joealp1 @joealp1

I'm an 87 year old male, in good health otherwise, diagnosed with pancreatic cancer 7 months ago after about 2 months of stomach discomfort (turned out to be pancreas). Tumor in pancreas involves superior mesenteric artery and vein, hence no Whipple in the picture. Started Chemo with 40% Gemcitibane every 2 weeks, have advanced to 80% Gemcitibane and 80% Abraxane. Supporting the chemo ok, nothing unusual.
Have been working with a surgical oncologist with Lee Health in SW Florida who does nanoknife, is trained on and performing histotripsy on liver tumors, looking forward to using the latter on pancreatic tumors. Going forward, more chemo, looking to see whether higher levels of G and A will result in any shrinkage. Possibly going to nanoknife in the next months.

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Who is the NanoKnife doctor at Lee Health?

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Profile picture for joealp1 @joealp1

I'm an 87 year old male, in good health otherwise, diagnosed with pancreatic cancer 7 months ago after about 2 months of stomach discomfort (turned out to be pancreas). Tumor in pancreas involves superior mesenteric artery and vein, hence no Whipple in the picture. Started Chemo with 40% Gemcitibane every 2 weeks, have advanced to 80% Gemcitibane and 80% Abraxane. Supporting the chemo ok, nothing unusual.
Have been working with a surgical oncologist with Lee Health in SW Florida who does nanoknife, is trained on and performing histotripsy on liver tumors, looking forward to using the latter on pancreatic tumors. Going forward, more chemo, looking to see whether higher levels of G and A will result in any shrinkage. Possibly going to nanoknife in the next months.

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I was diagnosed in December 2024. Tumor acinar cell 4.2x4.8 cm. Involving SMV and SMA so no surgery for me either. Did 6 months of gemcitabine and abraxane with no tumor change. Am currently doing SBRT radiation with last treatment this Monday. If the tumor shrinks at least 25 percent I will be eligible to or nano-knife procedure. Tumor has to be under 3.5 cm. for nano-knife .I won't know for at least 2 months after CT scan. That gives the white blood cells time to clean up the dead tissue and get an accurate picture. Would love to know if you end up with the nano-knife and how it goes for you.

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Profile picture for omarcamacho74 @omarcamacho74

Hola me diagnosticaron cáncer de páncreas en mayo del 2023 en estadio IV con metástasis en la pared del estómago, cómo el tumor obstruyo el dueno ya no pude alimentarme y de 81 Kilos baje a 50 kilos, me operaron para poder unirme el estómago con el yuyeno y poder alimentarme, no pudieron quitar el tumor del páncreas porque estaban comprometidas la vena orta y otra. Posteriormente me dieron quimioterapia, ya llevo dos años en el proceso.

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Hola, siento mucho lo de tu cáncer. Has podido comer después de tu cirugía ? Como va la chemotherapia? A mi esposo le hacen esa cirugía el martes y luego comienza chemo. Cualquier consejo que pudieras darme te lo agradecería

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