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Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
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I'm taking B12 on the advice of my oncologist, also gabapentin. Neither seem to make any difference at all.
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1 ReactionOk good luck, r u taking any natural vitamins for it? I read Alpha-Lipoic-Acid ( ALA) is effective for neuropathy.
I don't know yet. Medicare won't pay for it but I found out today that the VA will. If/when I've had a session or two, I'll report back. My leg/feet chemotherapy induced neuropathy is very bad.
After being diagnosed with mass on pancreas. Im waiting for biopsy results. Im also gonna try RSO. Has anyone tried it? I've heard great results with this. RICK SIMPSON OIL.
What does it do for you
Yeah, looking into acupuncture. Thanks.
Acupuncture is helping me. Wish I had known about it 3 years ago when I started chemo.
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3 ReactionsGood info, Mark. Thanks.
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1 ReactionCold therapy and compression therapy have both been shown to help reduce chemo-induced peripheral neuropathy. At least one member here, @murray3 , has reported good success with acupuncture as well. I've tried all three, and can't say if they alone or collectively have helped my case; technically I couldn't tell unless I treated one hand/foot but not the other. With that said, I'm confident there's no harm done, and I might be worse off without those treatments.
There are other herbs, vitamins, foot baths, and techniques like massage that may help, or at least not hurt. However, "overdosing" on certain B vitamins has been shown to potentially make neuropathy worse, so be careful there.
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2 ReactionsHi, I'm Todd.
I was diagnosed with pancreatic cancer on May 14, 2024. My Whipple surgery was on 28 August, and I completed my chemo in February of 2025. Today, I'm 80 pounds lighter, and I feel great in remission.
I was fortunate to find the remarkable Dr. Marco Del Chiaro at the University of Colorado (UCHealth) Pancreatic Center of Excellence. If I had not sought out the best options myself, I most likely would not be here to engage with you. You must be your advocate.
If you're feeling apprehensive about your treatment or need someone to talk to who has been through the same journey, reach out.
Best of luck!
Todd